Hi everyone! My name is Andrea and I am 33 yrs old, living in California. I was just diagnosed yesterday but I would like to share my story and gain some insight.
I gave birth at the end of last Sept. and my labs were all normal then, including liver enzymes. They were normal throughout my whole pregnancy. Even normal back in 2015 when I had routine bloodwork done for a health program I was going into. But just a little over two months after giving birth, (beginning of Dec), I had routine labs done to check my thyroid levels. This was when it was discovered that I had the elevated liver enzymes. The next day I went in for more blood tests and got the call a few days later diagnosing me with the PBC based on the AMA test (I dont know the exact number, but it was pretty high). I was referred to the g.i. doc who sent me to get the biopsy. I had the biopsy done a few weeks ago but the inflammation is so little they couldn't confirm the diagnoses. They are sending the sample to the university hospital to get a second opinion. My g.i. doc believes its because the disease literally JUST began.
After being diagnosed, I've been doing a lot of thinking about everything that could have caused this to happen within the 2 month period and I'm wondering if it could be tied to acetaminophen. Just 9 days before my first routine blood draw that detected the elevation, I had taken 2 extra strength tylenols. I state this because I read an article where researchers out of China were linking PBC to acetaminophen and considering I know within a two month period when this disease began, I feel like this information could be of some importance. Especially since this happens to both men and women.
I thought I would share this with y'all and I was also hoping to get some questions answered.
What are all the medications out there to treat this? I know of Urso but I'm also under the impression it doesn't work for everyone.
What are considered "decent" levels to be at for the lft?
Will I know at my 3 month checkup whether I'll respond to urso or could it take additional time to respond?