Hello, I have recently been diagnosed with PBC, which was quite a shock. I'd never heard of the condition and it's taken a while to get my head around it, but I've found the PBC foundation really kind and helpful and I've started to make contact with other sufferers so it's beginning to feel less isolating.
At present I am in good health, have no horrible side effects and my liver levels are only just above normal, so it's been caught at an early stage. I'm also now on Urso but yet to see if I am responding to it.
My question really to other people out there with PBC, has anyone with a similar profile to mine had PBC for many years and kept it under control and not started to develop other symptoms? is this likely, or is it more normal that as time goes on I may start to develop itching, tiredness etc.?
I would really value hearing the experiences of other people.