Hi everyone. Was diagnosed with PBC just over a year ago after blood tests and biopsy. On Urso and my blood tests have stabilised. Have had episodes of liver pain and had a scan last yr which was clear.
My husband has dragged me to Drs today (I'm a v reluctant patient) because I've got constant pain over my liver, sometimes sharp but usually griping like labour pain. Also exhaustion a lot worse and struggling to keep going! I'm v determined, go to gym, dog walk, housework etc..
Dr rather dismissive, doesn't know anything about PBC, I've yet to see a gp who does! Shrugged when I told him about my exhaustion told him I'm also struggling to lose weight (about a stone to lose) and he just said "aren't we all"
Asked him if PBC causes liver pain, just said he doesn't know. Suggested I ring my consultant (who I only see once a year) and it's incredibly hard to get to speak to him...I'm feeling v unsupported and a bit down if I'm honest. Really do try to be as healthy as possible and not let this illness define me but just needing a bit of support and to feel I'm looked after!!
Sorry, rant over. Any advice as to what to do, questions to ask etc would be v appreciated. I'm 47 yrs old. I'm in the UK
Thank you! 😬