I have had PBC diagnosed for 3 years now and am on urso.
I have been pregnant twice in the last few years and both times got ICP - diagnosed easily the first time as that was pre urso so bile acids went quite high but the second time I was only ever borderline for diagnosis as my bile acids never got above 16 - until the day they suddenly spiked to over 80 and killed my daughter at 35 weeks.
Now I am pregnant again, still on urso and really worrying that this will mean I could have ICP or the risk of another bile acid spike but I may not be diagnosed if urso keeps BA low (currently 9). Just looking for any reassurance or advice really as this is such an anxious time for me and despite a lovely and helpful GP and midwife I still haven't spoken to anyone who really seems to know anything much about either condition. I am waiting for a consultant referral but do not have high hopes as they were pretty much useless last time and essentially caused my daughter's death by not checking my bloods when I presented at hospital with a multitude of worrying symptoms.