Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,468 members • 8,283 posts

All posts for January 2017

Anyone else?

Hello, Has anyone else out there been diagnosed with PBC and "unable" to take/tolerate URSO? I'm wondering about the rate of progression with the disease and...

Hello, Has anyone else out there been diagnosed with PBC and "unable" to take/t...

Ktltel

•8 years ago

33 Replies

Please refer your doctor to this site

Can we all please refer our GP's to this site .- Things like the posts on rib pain etc. My doctor would also see that as just muscle soreness possibly. It's...

Can we all please refer our GP's to this site .- Things like the posts on rib pa...

kingerm

•8 years ago

3 Replies

Lost

Av been diagnosed with AIH last uear my specialist has left not had any bloods work done since 30th of November 2016 and still not had results from that yet...

Av been diagnosed with AIH last uear my specialist has left not had any bloods w...

Sylvia1968

•8 years ago

12 Replies

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Hi everyone

My husband recently suffered from pbc but suffers from swelling of the liver and pain in the area since. What is the relationship between the enlarged liver...

My husband recently suffered from pbc but suffers from swelling of the liver and...

Mysa1981

•8 years ago

4 Replies

Should be Sceptical with OCA?

Sorry... first, I don't want to make People unnecessarily scared especially because of my very limited Knowledge reading Articles / Reports here and there and...

Sorry... first, I don't want to make People unnecessarily scared especially beca...

Betonarme

•8 years ago

11 Replies

Newly diagnosed mom

Hi all fairly new to the site here i have read posts mostly and just wanted to see if there are other moms out there struggling with pbc. My PBC jurney started...

Hi all fairly new to the site here i have read posts mostly and just wanted to s...

NinaC

•8 years ago

9 Replies

Struggling with work

Can anyone please advise me how they cope working as I am really struggling. I am just newly diagnosed with PBC and although it's great to finally know why I'm...

Can anyone please advise me how they cope working as I am really struggling. I a...

Ditz_

•8 years ago

17 Replies

Weight loss

Has anyone with pb c or under active thyroid ever tried green tea tablets for help with weight loss? I've read it can help but scared but also desperate to...

Has anyone with pb c or under active thyroid ever tried green tea tablets for he...

jen23lilly

•8 years ago

8 Replies

New to this

Hi everyone , I have just joined today I have really bad heart burn from taking capsules been on them for 3 month now hope it get better .

Hi everyone , I have just joined today I have really bad heart burn from taking ...

Lass50

•8 years ago

10 Replies

Cleanse

Has anyone ever tried a liver cleanse diet? With success?

Urso462

•8 years ago

7 Replies

Newly diagnosed

Hi everyone. Only just diagnosed November 2016 aged 30 and found it very scary at the beginning. Now trying not to focus on worrying about it and taking each...

Hi everyone. Only just diagnosed November 2016 aged 30 and found it very scary a...

Sharilee59

•8 years ago

29 Replies

PBCers UK Facebook group

Being based in the UK I've tried to join the PBCers UK Facebook group, I think I must have been rejected the first time, although I have no idea why, and now...

Being based in the UK I've tried to join the PBCers UK Facebook group, I think I...

weavergirl

•8 years ago

8 Replies

Pbc

Hi everyone. Ive been to see my consultant for my pbc and he said i have auto imune hepertitis and would only trest if and when my liver levels become unstable...

Hi everyone. Ive been to see my consultant for my pbc and he said i have auto im...

janine541

•8 years ago

8 Replies

Constant dry throat

Hello everyone, just a small question but I've had a croaky voice for a while now and my husband has commented today my voice is often weak and I'm often...

Hello everyone, just a small question but I've had a croaky voice for a while no...

Caroline-12

•8 years ago

2 Replies

D-I-Y blood test!

Whilst online this afternoon I have come across a UK site that offers DIY blood testing (pin prick) - their liver test kits is currently £29. For those of...

Whilst online this afternoon I have come across a UK site that offers DIY blood ...

KatherineM_PBC

•8 years ago

15 Replies

Dog ownership and PBC

Any dog owners out there? I am on my own and seem to spend a lot of time worrying about fatigue and making sure my dog gets a decent walk every day. Felt so...

Any dog owners out there? I am on my own and seem to spend a lot of time worryi...

fred6577

•8 years ago

13 Replies

Anyone who attends Kngs College Hepatology.

After months of struggle I have finally been referred to KCH. This was no easy task and I almost gave up and had decided to just keep taking the Urso and get...

After months of struggle I have finally been referred to KCH. This was no easy t...

CathieG

•8 years ago

7 Replies

From Gastro to Hepatologist

I haven't been on in a while just so much going on. My 9 year old had to open heart surgery in November. She is doing great. My question is this...I went to...

I haven't been on in a while just so much going on. My 9 year old had to open he...

Lisa15

•8 years ago

8 Replies

A suddern burning in my skin

Hi all. I've found my way here due to searching for red palms. I don't know if Summer UK 2016 was humid or whether I was coming down with liver problems....

Hi all. I've found my way here due to searching for red palms. I don't know if...

jaffa1947

•8 years ago

4 Replies

ENTEROSGEL

I have come across a product online called ENTEROSGEL. In 1 article a Doctor referring said "it is associated with intestinal health and recovery from leaky...

I have come across a product online called ENTEROSGEL. In 1 article a Doctor ...

KatherineM_PBC

•8 years ago

6 Replies

ALLERGY AND 'FREEFROM' SHOW

For anyone with auto-immune wanting to improve their digestive health, the Allergy and Freefrom Show is at Olympia London 7-9 July 2017 (other dates and places...

For anyone with auto-immune wanting to improve their digestive health, the Aller...

KatherineM_PBC

•8 years ago

6 Replies

Sore fingers

Hi all, I have PBC and Sjogrens, recently the top of my fingers on my right hand are very sore, the quicks on three fingers are raised and I wear plasters to...

Hi all, I have PBC and Sjogrens, recently the top of my fingers on my right hand...

kandiepat

•8 years ago

3 Replies

Diet

I have recently booked to see a nutrician expert reccomended by my gp. She has treated PBC before. So i am hopeful and a little relieved. My itching is scalp...

I have recently booked to see a nutrician expert reccomended by my gp. She has t...

Hidden

•8 years ago

8 Replies

Still gaining weight :(

I wrote a few months back saying I had rapidly gained weight since coming out of hospital, I spoke to my consultant in October and he said it shouldn't be the...

I wrote a few months back saying I had rapidly gained weight since coming out of...

Lilbear89

•8 years ago

14 Replies

Biopsy

I have today received my liver biopsy appointment for 26th January to diagnose PBC/AIH overlap.i have been diagnosed with PBC for 2 1/2 years I'm worried about...

I have today received my liver biopsy appointment for 26th January to diagnose P...

Jayne1863

•8 years ago

9 Replies

Itch. What does your doctor prescribed for your itch?

Finally going to see the doctor after having my liver biopsy 3 weeks ago. I should now be able to get treated. I need some suggestions for when I go in. What...

Finally going to see the doctor after having my liver biopsy 3 weeks ago. I shou...

marty102

•8 years ago

17 Replies

Head on overtime ...any ideas how 2 stop it please?

Hi, 51 yr old peter pan type female 😇. Diagnosed PSC 2006, seen QEH BHam by Nueberger/Hirschfield semi change diagnosis PSC / PBC 2012 (wont have colonoscopy...

Hi, 51 yr old peter pan type female 😇. Diagnosed PSC 2006, seen QEH BHam by Nue...

AliPhillips

•8 years ago

4 Replies

Has anyone with PBC had Hodgkin's lymphoma ?

I was on a Hodgkins Lymphoma survivor site the other night and met someone who also had PBC. She also had been treated with radiation for her Hoskins disease....

I was on a Hodgkins Lymphoma survivor site the other night and met someone who a...

Ohio82

•8 years ago

4 Replies

Hello I'm new! Bit confused about ALP and imaging options..

Hi fellow PBCers I've recently found this forum and already I'm feeling more supported. I'm 60, and AMA (M2) was found in 2002 when I was treated for another...

Hi fellow PBCers I've recently found this forum and already I'm feeling more sup...

Skypony

•8 years ago

17 Replies

Panic

Sorry all my last post was not helpful I think I better not post for a bit...I think I am getting too worried. I want to say I am very thankful to every single...

Sorry all my last post was not helpful I think I better not post for a bit...I t...

Hidden

•8 years ago

5 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for January 2017

Anyone else?

Please refer your doctor to this site

Lost

Hi everyone

Should be Sceptical with OCA?

Newly diagnosed mom

Struggling with work

Weight loss

New to this

Cleanse

Newly diagnosed

PBCers UK Facebook group

Pbc

Constant dry throat

D-I-Y blood test!

Dog ownership and PBC

Anyone who attends Kngs College Hepatology.

From Gastro to Hepatologist

A suddern burning in my skin

ENTEROSGEL

ALLERGY AND 'FREEFROM' SHOW

Sore fingers

Diet

Still gaining weight :(

Biopsy

Itch. What does your doctor prescribed for your itch?

Head on overtime ...any ideas how 2 stop it please?

Has anyone with PBC had Hodgkin's lymphoma ?

Hello I'm new! Bit confused about ALP and imaging options..

Panic

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