Hi everyone. Only just diagnosed November 2016 aged 30 and found it very scary at the beginning. Now trying not to focus on worrying about it and taking each day as it comes as there isn't anything I can do to stop it progressing. Have 2 young children (aged 8 months and 2 yrs old) so hard to tell if my fatigue is from running around after them or the dies ease. Itching isn't too bad at the minute and comes and goes.
Starting taking Urso and going next month th (February) to find out if my body is responding to the medication. Fingers crossed! It's great to read about other people's experiences as well as daunting! Going to attend one of the talks in my local area next month to see if I can become more informed about the disease - not sure if that's a good thing, sometimes after reading certain information on PBC I think ignorance is bliss!