Hi peeps, hope today finds everyone ok,
I just wanting rack your brains for those of you suffer from pbc like I do. The past week has been hell, and ive had two close hospital admissions, first diagnosed with pancreatitis, yesterday, found myself in accute central abdo pain under my breasts. Pain so severe, I thought my time was up. I was given morpine and told it was my pbc, as my ALP level was raised more than normal, I had a urgent x ray which showed nothing. Discharged home as was told there was nothing they could do other than pain control, which they had given me. I am left feeling still very unwell but also frustrated as its made feel written off and left to battle whatever this is without any care, or compassion. Ive had pbc since 2013 and never experinced pain like this. It comes in waves of severe off the scale pain lasting anything between 4-8 minutes then subsides to more bearable pain. I have spent all day trying to research this, still with no answers. I have docs again today, but have no confidence in the fact I will be fobbed off again. I have a gastro consultant who sees me every 3 months, but surley I should be seeing a liver specialist. Has anyone experinced this sort of pain or experince. I feel so alone with this and worn out fighting to get answers. Sorry to be so negative, and thanks in advance for taking the time to read this. Any replies much appreciated thank you.