rheumatoligist: going to hospital next week... - PBC Foundation

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sadie21 profile image
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going to hospital next week to find out if it is my pbc that is causing bad hip pain or is it something else is there any thing I should ask or be tested for thanks Sadie x

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sadie21
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5 Replies
Tigger858 profile image
Tigger858

Hi sadie21 I suffer from severe hip pain to the point that it wakes me up if I'm lying on my side. I have had a bone scan which is thankfully clear. I've tried just about every painkiller with little effect however, a consultant recommended trying a SSRI. My GP prescribed citralopram and I was on them for about 10 months. I was unsure if they were having a real impact so came off them, after consultation with my GP, about 5 weeks ago. I now have severe pain again especially in my hips. I am seeing my GP this week and will be going back on to the citralopram. It might be worthwhile raising this with your doctor. Hopefully your other tests will be negative ( PBC is enough to contend with lol) I also found out through this site that many others are on SSRI's for pain. I hope everything goes well. Take care.

Kaywal profile image
Kaywal

Hi Sadie21. I'm interested to know if you have pain in both hips or just one? I have pain in my right hip and in fact my pelvis is twisted on the right so I have a lot of pain all round right pelvic area. Ask therm to check everything's in alignment! I hope you get some answers next week. Best Wishes

Sorry to read that you are having a hip problem sadie21.

Could be a case of wear and tear on the hip joint or the knock-on effect of the fact that certain vitamins (D for one) is less well absorbed in the system in PBC.

I do know of several women in particular who have hip problems and one who was in her mid-50s when she had a hip replacement op and these women do not have PBC. The friend who had the hip op., she spent a few decades doing fell and hill walking so whether that had an effect I cannot say.

I think normally you have a DEXA bone scan if you have PBC. I know if I'm offered one after I am 50+ as women under the NHS seem to be offered these if they are apparently categorised as vulnerable to bone problems in later life or have gone through the menopause (I've not yet), I won't be attending unless I feel I should. But unlike yourself at present apart from the odd shoulder twinge which I do think is PBC related I have no problems as such with aching joints as yet. I know several of my joints do crack these days but I am a very active person, do a lot of walking and have worked in manual (domestic) jobs for some years. I am currently in the stage of perimenopause.

Anne123_45 profile image
Anne123_45

I had scans carried out on my knees, hips and lower back... The rheumatologist thinks connective tissue is causing the pain. The pain is on both sides of the body though.

sadie21 profile image
sadie21

thanks for all your replies got hospital tomorrow fingers crossed don't think I can cope with anything else thanks again Sadie x

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