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PBC Foundation
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How long have people had to wait for a Liver transplant at Leeds?

Hi All, I am getting desperate and can't seem to focus on anything. I am losing my temper at the slightest thing and my emotions are all over the place, I know people keep saying "positive mental attitude" but my negativity has gone into overdrive and my head feels fuzzy. I am scared to death waiting for the call and also frightened for what will happen during and especially after the lengthy operation.

Would love to hear from anyone with experience.

Thanks in advance for your time x.

2 Replies

Hi Florrie sorry to hear your feeling so topsy-turvy emotionally but not suprised considering the transplant is prob on your mind 24/7. I had transplant assessment done last OCT and although I was not listed did find out the waiting time depends on what blood group you are. Have you been long on the list? This is probably easier said than done but if you are not fit to get out and about to keep your body busy (and release those feel good natural chemicals in your body through exercise , try to keep your mind busy at least eg. Read a good book, do some puzzles, watch some movies invite friends over to visit, get a take away meal and just chill and try to put it to the back of your mind. I know 3 people whom have had transplants and all 3 are doing brilliantly. So hang in there and stay positive and please God you will get the call soon and then I am told there is no time for worrying its all systems go and you will be in and out of theatre and ready to start a whole new life. Bfn take care.


I would try some physical activity, swimming is great.......anything that get's your blood flowing.........start slow ! I went from 10 lengths of the pool to 32 lengths in a couple of weeks, my next goal is 50. Anyway it really helped me both mentally and physically , do what you enjoy.

I found this other day, it's worth reading a few times...............

I do not fear.

for Fear is the mind-killer.

Fear is the little-death that brings total obliteration.

I have faced my fears and laughed.

I will face my fear again and laugh again.

I will permit it to pass over me and through me.

And when it has gone past I will turn the inner eye to see its path.

Where the fear has gone there will be nothing. Only I will remain, laughing.

Take care .


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