Posts - PBC Foundation | HealthUnlocked

PBC Foundation

9,391 members • 8,002 posts

All posts for June 2013

I had 2heart attacks in Jan&have now been told cus of test results I still need more tests. Im due to fly 2Oz in August. Whats my chances??

Hidden

•11 years ago

2 Replies

sorry for being dense but can you explain

as those of you whove been kind enough to answer my questions will know im still struggling on urso.can tolerate 500 mg with just mild upset tum now but its...

as those of you whove been kind enough to answer my questions will know im stil...

cazz22

•11 years ago

10 Replies

High Copper Levels

Good Evening I just had a call from my surgery to make an appointment to speak to GP as I have high copper levels. Receptionist said that GP said nothing...

Good Evening I just had a call from my surgery to make an appointment to spea...

Silvers

•11 years ago

3 Replies

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Advice on what questions to ask consultant gastroenterologist?

I was diagnosed with PBC one week and one day ago (feels like a year ago!). This forum has really helped - so thank you. I have been referred to a...

I was diagnosed with PBC one week and one day ago (feels like a year ago!). This...

SheepJane

•11 years ago

5 Replies

Iv just won my appeal for mid DLA-care. My ESA is also awaiting appeal!! Can I receive the backdated care comp while ESA is under appeal??

Hidden

•11 years ago

10 Replies

An inspirational man raising money for the PBC Foundation

Hi everyone, We all know how marvellous the PBC Foundation is, well my friend and colleague, Rob, who knew nothing about PBC before my diagnosis,...

Hi everyone, We all know how marvellous the PBC Foundation is, well my fr...

busylady

•11 years ago

6 Replies

Why do I have white hard substance coming out of random places of my skin?

Very hard to explain properly, but I have a very strange substance coming out of the top layer of my skin... It comes out white and soft like puss, then...

Very hard to explain properly, but I have a very strange substance coming out of...

freakedoutsally

•11 years ago

3 Replies

why does it take so long to get my money re-instated?

I had letter last week saying I no longer need to go for medical assessment as the extra info provided by my doctor was enough evidence. however, it is not in...

I had letter last week saying I no longer need to go for medical assessment as t...

skyebo

•11 years ago

4 Replies

Underactive thyroid and PBC

I have an underactive thyroid and have just been diagnosed with PBC my B12 levels are low does anyone know if there is a link to these please.

I have an underactive thyroid and have just been diagnosed with PBC my B12 level...

Margaret59

•11 years ago

18 Replies

Does anyone of you has problems with ammonia levels?

Hello, I only got diagnosed with PBC a month ago and was started on Urso straight away and my LFT's started to improve drastically after that. However, they...

Hello, I only got diagnosed with PBC a month ago and was started on Urso stra...

littledragon23

•11 years ago

7 Replies

I'm in this Questran mess, is it safe to continue taking the last seven sachets I have left?

jodingdong

•11 years ago

3 Replies

Conflicting Advise

Hi All, Had my appointment with the prof in Newcastle, I'm going on the trials for the bile drugs hopefully in 2-3 months, it was proven from the bile...

Hi All, Had my appointment with the prof in Newcastle, I'm going on the tria...

Bookworm7

•11 years ago

10 Replies

A doctor writing about chronic illness

http://more-distractible.org/2010/07/14/a-letter-to-patients-with-chronic-disease I thought this was very interesting. It's a blog post by a doctor in the...

http://more-distractible.org/2010/07/14/a-letter-to-patients-with-chronic-diseas...

SC49

•11 years ago

2 Replies

Does anyone suffer from nosebleeds

I have woken up the past two mornings with a heavy nosebleed. Had an endoscopy last year which found a couple of slightly enlarged veins in stomach which will...

I have woken up the past two mornings with a heavy nosebleed. Had an endoscopy l...

mojo62

•11 years ago

2 Replies

Is it likely that I have pbc?

Hi. I have been referred to a gastroenterologist but my appt is 3 weeks away and I feel I need to know how likely it is that I have pbc. I started itching...

Hi. I have been referred to a gastroenterologist but my appt is 3 weeks away and...

blondie76

•11 years ago

8 Replies

EMPLOYMENT and SUPPORT ALLOWANCE ADVICE PLEASE

I was moved from support group to back to work group last May, I appealed on the grounds that no circumstances had changed and provided documentation from my...

I was moved from support group to back to work group last May, I appealed on the...

Bluffpaddy

•11 years ago

6 Replies

bleeding gums

hi has anyone got a problem with bleeding gums? tried all sorts of toothpaste and mouthwash.dentist refuses to believe its linked to pbc tho she cant find...

hi has anyone got a problem with bleeding gums? tried all sorts of toothpaste an...

cazz22

•11 years ago

21 Replies

I went to Boots today to collect my prescription for Questran and was told I can't have it because "the manufacturers have issues a recall"

of Questran and Questran light. Does anyone have any knowledge of why? Pat_H

Pat_H

•11 years ago

6 Replies

Raising Awareness for Primary Biliary Cirrhosis

I would like to thank all of you for your blog's. Reading your blog's have helped me with a lot of my own symptoms. I just wanted to let you know that I feel...

I would like to thank all of you for your blog's. Reading your blog's have helpe...

sbouloubassis

•11 years ago

25 Replies

DOCTORS VISIT

Hi Everyone, Visisted the doctor yesterday for second blood test. They are slightly better which is good news. All your help and advice seems to have helped....

Hi Everyone, Visisted the doctor yesterday for second blood test. They are slig...

astondb9

•11 years ago

4 Replies

Gall stones Kidney stones how lucky am I

I have just spent the last week in hospital where I thought I had bad constipation turns out I have gall stones and kidney stones an omg they are sore but...

I have just spent the last week in hospital where I thought I had bad constipati...

suemac1

•11 years ago

3 Replies

ALP Mine field?

I have been looking into what the normal ALP value should be! and I found three different types that state the level is based on (IU/L) International Units...

I have been looking into what the normal ALP value should be! and I found three...

skywalker

•11 years ago

8 Replies

Has anyone has plasmapheresis for an intractable itch?

Jill68

•11 years ago

3 Replies

Transplant unit

I finally have an appointment at the transplant unit at the royal infirmary in Edinburgh on 4th July.......I have been signed off my work for two weeks due to...

I finally have an appointment at the transplant unit at the royal infirmary in E...

Jill68

•11 years ago

1 Reply

HELP PLEASE. ESA

now that ive won my tribunal. do i still have to send in sick notes?

leon92uk

•11 years ago

2 Replies

GP will not prescribe Urso

Has anyone on here had the same problem, my GP won't prescribe Urso, even though the Consultant has written to her asking her to prescibe it. She has sent him...

Has anyone on here had the same problem, my GP won't prescribe Urso, even though...

highwood

•11 years ago

22 Replies

Shall I Give up !!!

Have been on Questran Light now 3 months taking 2 drinks per day before meals but the itching is still as bad do I need to give them more time to work or if...

Have been on Questran Light now 3 months taking 2 drinks per day before meals bu...

cavi

•11 years ago

7 Replies

an honest but useless Gastro consultant who needs to get educated on PBC

for the last 3 visits to a Gastro consultant i have seen the same doctor who is as informed as i am about PBC, although i did need to point out the amount of...

for the last 3 visits to a Gastro consultant i have seen the same doctor who is ...

wendyh

•11 years ago

9 Replies

Waiting time for ATOS appeals?

Can anyone give me any idea how long one typically has to wait to have an appeal heard in the Stockport area please.

Can anyone give me any idea how long one typically has to wait to have an appeal...

ronniedt

•11 years ago

1 Reply

HELP PLEASE got my ESA tribunal tomorrow.

Was cancelled 4 months ago now have date for tomorrow. Having to go alone have no one to go with me. I am very worried and am sure i will not get it just don't...

Was cancelled 4 months ago now have date for tomorrow. Having to go alone have n...

macR

•11 years ago

16 Replies

Posts - PBC Foundation | HealthUnlocked

PBC Foundation

All posts for June 2013

I had 2heart attacks in Jan&have now been told cus of test results I still need more tests. Im due to fly 2Oz in August. Whats my chances??

sorry for being dense but can you explain

High Copper Levels

Advice on what questions to ask consultant gastroenterologist?

Iv just won my appeal for mid DLA-care. My ESA is also awaiting appeal!! Can I receive the backdated care comp while ESA is under appeal??

An inspirational man raising money for the PBC Foundation

Why do I have white hard substance coming out of random places of my skin?

why does it take so long to get my money re-instated?

Underactive thyroid and PBC

Does anyone of you has problems with ammonia levels?

I'm in this Questran mess, is it safe to continue taking the last seven sachets I have left?

Conflicting Advise

A doctor writing about chronic illness

Does anyone suffer from nosebleeds

Is it likely that I have pbc?

EMPLOYMENT and SUPPORT ALLOWANCE ADVICE PLEASE

bleeding gums

I went to Boots today to collect my prescription for Questran and was told I can't have it because "the manufacturers have issues a recall"

Raising Awareness for Primary Biliary Cirrhosis

DOCTORS VISIT

Gall stones Kidney stones how lucky am I

ALP Mine field?

Has anyone has plasmapheresis for an intractable itch?

Transplant unit

HELP PLEASE. ESA

GP will not prescribe Urso

Shall I Give up !!!

an honest but useless Gastro consultant who needs to get educated on PBC

Waiting time for ATOS appeals?

HELP PLEASE got my ESA tribunal tomorrow.

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