for the last 3 visits to a Gastro consultant i have seen the same doctor who is as informed as i am about PBC, although i did need to point out the amount of Urso to weight ratio to him, but he was happy for me to up my dose but did not think i needed to. However, today i see a different doctor who actually said, i have never heard of a non alcholic related liver disease before, is there a foundation or something for it. luckily i had my latest copy of the Bear Facts from the PBC Foundation with me to read in the waiting room, so i showed it to him. oh, he says, so there is a foundation for it, when and how were you diagnosed, what are your symptoms? All the while, i am thinking "what a waste of time this appointment is, i know more about my disease then the consultant".
however, after getting home and thinking about it, maybe!!!! he will now go and look it up and educate himself, here's hoping that we will soon have one more PBC educated consultant on the books!!!!!!