I only got diagnosed with PBC a month ago and was started on Urso straight away and my LFT's started to improve drastically after that. However, they did check my ammonia levels as well and the first set which came back was high and because of that they did repeat them to see whether it was a mistake by the lab. This time the ammonia came back even higher than the first one. Apparently, you only can get such high levels when you are already cirrhotic which I don't seem to be. My gastroscopy was ok and didn't show any varizes, nor portal hypertension. My repeat liver US showed a virtually normal liver and a few mini gallstones with the biggest at 4 mm. The only symptoms are, that I have this foggy feeling in my head, with slight underlying headaches and I continue to have some minor dizzy spells. I suffered very bad virtigo a week before my first liver appointment.
I still suffer left sided abdominal pain with nausea. Although, my appetite has improved a lot I hardly tolerate fat, but I managed to keep my weight over the past few weeks.
So, now I am booked for an urgent abdominal CT to see what is happening in my liver.
When my ammonia was first high and due to constipation after starting on the Urso, I also got started on Lactulose 2x day.
Has anyone of you had problems with ammonia levels?