Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for July 2024

can loading doses cause liver enzymes to go up

hello All, I received some blood work back and I noticed my liver enzymes are high alt and ast. I am injecting EOD now and on 6th week. just curious because...

hello All, I received some blood work back and I noticed my liver enzymes are h...

JesusMercy60

•18 days ago

8 Replies

How does it feel to have too much B12?

I have not SI for 5 weeks now due to anxiety/panic attacks arising after my last couple of injections. I am not sure if I needed to push through this or stop...

I have not SI for 5 weeks now due to anxiety/panic attacks arising after my last...

Krysagnes

•18 days ago

6 Replies

So, reversing out. Why?

I have read all about reversing out symptoms after having iron infusion and starting B12 injections. But can anyone tell me why we get these symptoms. What is...

I have read all about reversing out symptoms after having iron infusion and star...

Chickens44

•18 days ago

9 Replies

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Haematologist uk

Hi Please forgive me if this post is inappropriate. I am looking for a good B12/PA understanding Haematologist in the Uk preferably NHS if anyone can...

Hi Please forgive me if this post is inappropriate. I am looking for a good B12...

Diane1961

•18 days ago

1 Reply

Crash after Covid?

I’m really struggling to balance my body back out after having Covid and so so puzzled. Not sure why this has happened or where to go with it next. Has anyone...

I’m really struggling to balance my body back out after having Covid and so so p...

Littledancingtiger

•18 days ago

25 Replies

What is the conversion for red blood cell folate from nmol/L to micro g/L?

I'm researching folate and I'm interested to know what blood levels of folate are required to prevent neural tube defects in studies. I found this study that...

I'm researching folate and I'm interested to know what blood levels of folate ar...

Carrie234

•19 days ago

16 Replies

Vitamin B6 Dosage?

Hi, I want to take B6 on its own (not in complex). What dosage (in mg and how often) is recommended to take along with folate and SI B12.

Hi, I want to take B6 on its own (not in complex). What dosage (in mg and how of...

B12again

•19 days ago

8 Replies

esomeprazole

I've posted or replied a few times now about my struggle to stop this medication. Now I have a new reason. I've needed a couple of teeth extracted and bled...

I've posted or replied a few times now about my struggle to stop this medication...

tomdickharry

•19 days ago

1 Reply

Sharp Bins

Hi - I have been using B12 patches for years - but found I needed more and more to feel OK. So I went to my GP - who was unhelpful. I found an Aesthetic...

Hi - I have been using B12 patches for years - but found I needed more and mor...

Pixie330

•20 days ago

5 Replies

B12 advice please

Hi i am new to this group, nice to meet you all. I just wondered if I should order an MMA urine test or contact the GP with concerns of low B12. Or should I...

Hi i am new to this group, nice to meet you all. I just wondered if I should ord...

Ankles

•20 days ago

9 Replies

68.1 pmoI/L

My test results shows active B12 of 68.1 with Normal range 25.1 - 165.0 pmol/L. My GP says it's normal and won't do anything. Can any tell me whether this is...

My test results shows active B12 of 68.1 with Normal range 25.1 - 165.0 pmol/L. ...

Salis80

•20 days ago

10 Replies

advice about iron infusion

I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and dopamine agonists like ropinorole and pramipexole. Lately hemoglobin levels...

I am a patient of young onset Parkinson’s; currently 40 yrs old. On Levodopa and...

Divii

•20 days ago

8 Replies

Reversing out?

Am I reversing out? I’ve had between 3-4 weeks of every other day injections and actually feel worse than ever. I don’t even want to wake up if I am honest. My...

Am I reversing out? I’ve had between 3-4 weeks of every other day injections and...

Gobbozoid

•20 days ago

83 Replies

Hot Dog - for anyone who prefers a cool day

This small painting is called Hot Dog. An overheating old dog trundled into the pond, stood there and gulped back the pond-water, looking hot, pestered and...

This small painting is called Hot Dog. An overheating old dog trundled into the...

Cherylclaire

Forum Support•20 days ago

7 Replies

Help please

Can anyone recommend a b12 specialist in the south of England? And can burning in the buttocks be a symptom of b12 deficiency?

Can anyone recommend a b12 specialist in the south of England? And can burning i...

Popcorn12345

•21 days ago

20 Replies

Breast tenderness?

Anyone suffer breast pain/tenderness after starting EOD B12 injections. Five weeks in and suddenly this morning my boobs are so painful. I’m 64 and through...

Anyone suffer breast pain/tenderness after starting EOD B12 injections. Five wee...

Chickens44

•21 days ago

3 Replies

A Thank You!

A shout out to those who shared their positive experience with Folate. Those that shared their misunderstanding about methylation pathways not so much. I am...

A shout out to those who shared their positive experience with Folate. Those tha...

WIZARD6787

•21 days ago

2 Replies

Has anyone had insomnia from B12 injections?

I have not been able to sleep since my B12 loading injections (EOD for 6 weeks) - has this happened to anyone else? If so, for how long?

I have not been able to sleep since my B12 loading injections (EOD for 6 weeks) ...

Krysagnes

•21 days ago

33 Replies

Mental health issues associated with low b12

Hi, so this is a slightly off piste post so I apologise if its not for this board. My son for several years has needed b12 injections, not to the extent some...

Hi, so this is a slightly off piste post so I apologise if its not for this boar...

Worksop1

•22 days ago

24 Replies

NHS stopping B12

Why are they doing this???

Donny21

•22 days ago

9 Replies

Finally have confirmation of my worth!

Totally off-topic but I have to vent somewhere! Just over one year ago I was the passenger in a car which hit something in the road which had disappeared by...

Totally off-topic but I have to vent somewhere! Just over one year ago I was th...

Nonameme

•22 days ago

2 Replies

MMA Urine Result

Good morning! I recently had an MMA Urine Test and the result came back as <30. I thought over 3 was indicative of B12 deficiency. Why is there no specific...

Good morning! I recently had an MMA Urine Test and the result came back as <30....

Spinach19

•22 days ago

1 Reply

Serum ferritin too high?

Can anyone tell me whether 286 is too high for a serum ferritin level? I had an iron infusion a few months ago and this is my new level. I have been feeling...

Can anyone tell me whether 286 is too high for a serum ferritin level? I had an...

Krysagnes

•22 days ago

13 Replies

absorbing b12 in cells with liquid sublingual on days not injecting

hello all, I was wondering if using the liquid sublingual oral drops would be absorbing in the cells on days that I do not inject EOD. also does our b12 that...

hello all, I was wondering if using the liquid sublingual oral drops would be a...

JesusMercy60

•22 days ago

6 Replies

how long does our b12 injection stay in our bodies

hello everyone, Now that I have been diagnosed on my bloodwork with PA I was wondering when we give ourselves an injection of B12 how long do we keep it in...

hello everyone, Now that I have been diagnosed on my bloodwork with PA I was wo...

JesusMercy60

•22 days ago

19 Replies

In a word ‘knackered’! moan time

Hope I’m allowed to use that word. I am in my 5th week of SI EOD following visit to Dr Klein. I am absolutely exhausted. The fatigue is awful and my pains...

Hope I’m allowed to use that word. I am in my 5th week of SI EOD following visit...

Chickens44

•23 days ago

5 Replies

B12 website - Norway (Norge / Noreg)

This has probably been mentioned before but just thought I'd post it for any forum members from Norway. B12-Foreningen https://www.b12-foreningen.no/...

This has probably been mentioned before but just thought I'd post it for any for...

Sleepybunny

•23 days ago

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Does B12d.org still exist as a charity?

Hi, Just wondered if B12d.org still exists as a UK charity. The website doesn't seem to be working any more. Dr Chandy who was central to the work of the...

Hi, Just wondered if B12d.org still exists as a UK charity. The website doesn'...

Sleepybunny

•23 days ago

6 Replies

USA Physicians

In the USA physicians have the brand of being noble and most of them believe it. The problem is always difficult patients that want to be treated in a way...

In the USA physicians have the brand of being noble and most of them believe it....

WIZARD6787

•23 days ago

2 Replies

GP has asked for data/study on safety of frequent B12 injections

Can anyone direct me to some data/peer review study or such confirming there is no health risk of frequent B12 injections? I saw one GP who confirmed her...

Can anyone direct me to some data/peer review study or such confirming there is ...

auldreekie

•23 days ago

13 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2024

can loading doses cause liver enzymes to go up

How does it feel to have too much B12?

So, reversing out. Why?

Haematologist uk

Crash after Covid?

What is the conversion for red blood cell folate from nmol/L to micro g/L?

Vitamin B6 Dosage?

esomeprazole

Sharp Bins

B12 advice please

68.1 pmoI/L

advice about iron infusion

Reversing out?

Hot Dog - for anyone who prefers a cool day

Help please

Breast tenderness?

A Thank You!

Has anyone had insomnia from B12 injections?

Mental health issues associated with low b12

NHS stopping B12

Finally have confirmation of my worth!

MMA Urine Result

Serum ferritin too high?

absorbing b12 in cells with liquid sublingual on days not injecting

how long does our b12 injection stay in our bodies

In a word ‘knackered’! moan time

B12 website - Norway (Norge / Noreg)

Does B12d.org still exist as a charity?

USA Physicians

GP has asked for data/study on safety of frequent B12 injections

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