NHS stopping B12

[Donny21]

Why are they doing this???

[clivealive Forum Support]

Hi Donny21 Can you give more details of where you "saw" this?

[wedgewood]

I don’t know what you are referring to .

[Wheat]

hello, need more info. Thanks.

[Nackapan]

Stopping you b12 injections ?

[wedgewood]

Please give us more information, and we might be able to help .

[Whitemists]

Hi Donny 21 I've read this too but I think it's people being transferred to tablet form b12 if the docs think there's no reason it can't be absorbed.

Ask your local pharmacy, but I'm sure hydroxocobalamin is still on the approved drugs list.

It is worrying when these rumours pop up but I'm sure that's all it is 🙂

[Bellabab]

It coincides with the 2010 new government imposing austerity for no good reason. They recon its too expensive and its all in the mind. I hope the new Nice recommendations on 5th.March this year will see this ludicrous attitude change.

[yvonneu]

Is this true? I've not read about it anywhere ....

[Lilian15]

A few years ago it became the policy of the NHS, through the then CCG's, to try and save money by going through all medicines and weighing up the effectiveness, cost etc. There were millions being lost through all kinds of things, even fraud. They were systematically going through all medicines. There had been some research done in Sweden, or some other country round there, that put everyone on B12 pills and they said it worked. I believe it was eventually proved it does not work for everyone. However in the meantime doctors here were told they should be putting their patients on Pills, to buy themselves. The wording was to give injection to bring bloods into range, then leave the patient to maintain by buying their own pills over the counter. I was at the CCG meeting when this was announced. My GP then told me (after 17 years of injections) that it was a mistake and I did not have PA and immediately stopped my injections. Meanwhile people were up in arms about this. I did not have a leg to stand on as they told me I just did not have PA. She even got a haematologist to say I did not have PA. Last year I started getting the symptoms back, had tests and was told I did have PA. They were starting giving me 3 monthly injections like they had never stopped but I finally got them to give me the loading doses, but they will not follow the protocol of giving injections until neurological symptoms stopped and I am concerned that stopping might have cause permanent damage. Policy behind all this was/is to save money. It not only costs for the B12 itself, it includes the nurses time, overheads etc.