Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for July 2024

Brain lesions?

G’day! Just wondering, does anyone have any insights into MRI reports, specifically brain and cord lesions? My report has come back and my follow up...

G’day! Just wondering, does anyone have any insights into MRI reports, specific...

PlatypusProfit8077

•13 days ago

10 Replies

how b12 injections takes neuro pain go away

hello Everyone, as I'm on my 11th EOD injection I'm trying to always study all my wake up symptoms as they get better or worse either comming back or going...

hello Everyone, as I'm on my 11th EOD injection I'm trying to always study all ...

JesusMercy60

•14 days ago

4 Replies

Help with self-injecting

Hi everyone. As scared as I am to think of self-injecting, I finally placed an order for B12 ampoules today. (Thanks, Wedgewood for the info!) I have...

Hi everyone. As scared as I am to think of self-injecting, I finally placed ...

rubyone

•14 days ago

13 Replies

Want to take advantage of all our features? Just log in!

Hi Son travelling in Europe and needs injection.

Hi. My son was having twice weekly injections, given by myself as he was passing out even with subcut. He has gone to europe for a month, we thought he would...

Hi. My son was having twice weekly injections, given by myself as he was passing...

Hectorsmum2

•14 days ago

2 Replies

Couple of questions re blood results

I've been trying to get my doctor to let me have B12 injections more frequently. I am currently having them every three months am noticing some improvements in...

I've been trying to get my doctor to let me have B12 injections more frequently....

Dfthbhjj

•14 days ago

18 Replies

help with test results

I have recently posted my results on the thyroid section ,I was told it may be useful to post them on here for your views Plasma vitamin b. 275ng/l....

I have recently posted my results on the thyroid section ,I was told it may be u...

Astlebridge

•15 days ago

4 Replies

B12 temperature in transit.

When I saw the dr at the Cambridge blood clinic I was told to get my b12 from a company in Germany. But it’s 30 degrees most days over there the last two weeks...

When I saw the dr at the Cambridge blood clinic I was told to get my b12 from a ...

Gobbozoid

•15 days ago

18 Replies

AUGH!

I have been battling for about 10 years with numerous health issues and was finally diagnosed about 2 years ago with PA along with many of the accompanying...

I have been battling for about 10 years with numerous health issues and was fina...

YearsNow

•15 days ago

13 Replies

Bittersweet Bonds - Pernicious Anemia and the Doctor-Patient Dance

Not sure if this is any good but as I was hating my doctors it occurred to me how much I need them. A typical love-hate relationship. A Poem In the...

Not sure if this is any good but as I was hating my doctors it occurred to me ho...

Rexz

•15 days ago

22 Replies

PA weight gain and numbness

Hello PA community, I want to check with your guys if anyone has problem loosing weight, I have been on B12 for the nearly 10 years. I have been putting on...

Hello PA community, I want to check with your guys if anyone has problem loosing...

Icomaria

•15 days ago

32 Replies

another excellent B12 article by B. Wolffenbuttel

https://journals.sagepub.com/doi/10.1177/03795721241229500?fbclid=IwZXh0bgNhZW0CMTEAAR37XhrBq5rOfXZyNhRlxKwMqJQjmPDuhMsrOeM1_0d8Mqo-RJyg4S-F-i8_aem_qrZvOGooSM1M

https://journals.sagepub.com/doi/10.1177/03795721241229500?fbclid=IwZXh0bgNhZW0C...

PlatypusProfit8077

•15 days ago

8 Replies

Back pain

Hi everyone, I just wondered if you can get increased severe back pain with B12 deficiency? I have Fibromyalgia so I'm in a lot of pain anyway and my doctor...

Hi everyone, I just wondered if you can get increased severe back pain with B12...

Kma123

•15 days ago

2 Replies

Double vision

Hi there. Can anyone tell me if they have experienced double vision with PA? I have Vertigo and also double vision in one eye. I know PA can cause vertigo...

Hi there. Can anyone tell me if they have experienced double vision with PA? I ...

Goaliegirl

•16 days ago

32 Replies

Am I wrong?,

My doctor is trying to make out I'm crazy. Please can people clarify if my understanding is correct or am I completely wrong?So August 2023 I pay for an active...

My doctor is trying to make out I'm crazy. Please can people clarify if my under...

Popcorn12345

•16 days ago

25 Replies

Would I absorb B12 in tablet form if I had PA?

Hi all, On a hunt to figure out the cause of my continued iron loss... Had an iron infusion in July 2021 and I'm now back to deficiency. GP has done all...

Hi all, On a hunt to figure out the cause of my continued iron loss... Had an ...

WitchingHour2point0

•16 days ago

31 Replies

How do I know if I have PA?

My issues with B12 only came to light after booking an iron infusion with Dr. Klein earlier this year. He asked me to stop taking any b vits for a month prior...

My issues with B12 only came to light after booking an iron infusion with Dr. Kl...

Krysagnes

•16 days ago

2 Replies

Symptom flare up after working out (?!) advice please

Hi everyone, I've had PA symptoms for about ten years. Was diagnosed two years ago and have injections from GP once every 2 months but supplement with my own...

Hi everyone, I've had PA symptoms for about ten years. Was diagnosed two years a...

DocAJB

•16 days ago

5 Replies

PA to have treatment?

do you have to have PA to have b12 injections from the doctor? My PA test was negative but I’m obv having symptoms and I just wanted to get clarity on this....

do you have to have PA to have b12 injections from the doctor? My PA test was n...

Em19911

•16 days ago

2 Replies

Post Covid B12 and Vitamin D crash

Hi,I have had multiple health problems since my first bout of Covid in 2022, and blood panels revealed low B12, D and very low ferritin (11). I started having...

Hi,I have had multiple health problems since my first bout of Covid in 2022, and...

Skater21

•16 days ago

27 Replies

Enter The Dragon

Dear All, As a community, our journey can be extremely arduous. There is no set pattern to recovery, once we believe that we are on an even keel, something...

Dear All, As a community, our journey can be extremely arduous. There is no se...

Narwhal10

•16 days ago

5 Replies

B12 5mg, is it worth it?

Hi, I have b12 injections and have been offered ampoules of 1mls at 5mg. Has anyone had any experience with these, does it give you a mega boost so I wouldn't...

Hi, I have b12 injections and have been offered ampoules of 1mls at 5mg. Has an...

VMITCHELL78

•16 days ago

2 Replies

Creating a Framework for Treating Autoimmune Gastritis—The Case for Replacing Lost Acid

A paper from Bruce Wolffenbuttel and colleagues, released last February https://www.mdpi.com/2072-6643/16/5/662 Conclusion: "Autoimmune gastritis is not a...

A paper from Bruce Wolffenbuttel and colleagues, released last February https://...

Technoid

•16 days ago

13 Replies

B12 Toxicity

Our Doctor recently did a B12 and Ferritin blood test and is now demanding that we stop self injecting with immediate effect to prevent B12 toxicity….. Has...

Our Doctor recently did a B12 and Ferritin blood test and is now demanding that ...

Granny2024

•17 days ago

27 Replies

b12 advice

Hey, So for ten years or so now I’ve suffered with a “on and off” B12/folate deficiency. I had loading doses and then injections in 2017 and my levels were...

Hey, So for ten years or so now I’ve suffered with a “on and off” B12/folate d...

Em19911

•17 days ago

4 Replies

An update…..and pins & needles

Hi everyone, For all who know me through my infrequent posts on this site over the years I thought I’d share the news that I have received recently a...

Hi everyone, For all who know me through my infrequent posts on this site over ...

RoseFlowerDew

•17 days ago

5 Replies

Iron infusion

I've been si eod for 18mnths now, I have had blood tests to keep an eye on ferritin, iron and folate every 4/5 months in that time,the results are checked by a...

I've been si eod for 18mnths now, I have had blood tests to keep an eye on ferri...

Charlie27612

•17 days ago

7 Replies

Newly diagnosed

Hi all, I was diagnosed with PA last week after a month or two of symptoms. From what I have read, my symptoms are pretty mild in comparison to other...

Hi all, I was diagnosed with PA last week after a month or two of symptoms. F...

eg1503x

•17 days ago

10 Replies

worse after b12 injection

really confused what and where to go from here… I had a b12 hydroxy shot done 3 days ago and I have had so much brain fog, fatigue and just feel spacey ever...

really confused what and where to go from here… I had a b12 hydroxy shot done ...

B12stuff

•17 days ago

1 Reply

feeling normal at times today off and on I'm greatfull

Hello everyone, so this is the third day and not in a row that I had times during the day that I felt like myself and pretty normal, it was off and on then I...

Hello everyone, so this is the third day and not in a row that I had times dur...

JesusMercy60

•17 days ago

7 Replies

How do you know it’s b12 deficiency and not ms?

Ok maybe I am going down a bad rabbit hole here and you can save me. But,… All my symptoms of b12 deficiency overlap completely with MS. urinary issues and...

Ok maybe I am going down a bad rabbit hole here and you can save me. But,… All ...

Gobbozoid

•17 days ago

48 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for July 2024

Brain lesions?

how b12 injections takes neuro pain go away

Help with self-injecting

Hi Son travelling in Europe and needs injection.

Couple of questions re blood results

help with test results

B12 temperature in transit.

AUGH!

Bittersweet Bonds - Pernicious Anemia and the Doctor-Patient Dance

PA weight gain and numbness

another excellent B12 article by B. Wolffenbuttel

Back pain

Double vision

Am I wrong?,

Would I absorb B12 in tablet form if I had PA?

How do I know if I have PA?

Symptom flare up after working out (?!) advice please

PA to have treatment?

Post Covid B12 and Vitamin D crash

Enter The Dragon

B12 5mg, is it worth it?

Creating a Framework for Treating Autoimmune Gastritis—The Case for Replacing Lost Acid

B12 Toxicity

b12 advice

An update…..and pins & needles

Iron infusion

Newly diagnosed

worse after b12 injection

feeling normal at times today off and on I'm greatfull

How do you know it’s b12 deficiency and not ms?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive