Haematologist uk: Hi Please forgive me... - Pernicious Anaemi...

Pernicious Anaemia Society

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Haematologist uk

Diane1961 profile image
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Hi Please forgive me if this post is inappropriate. I am looking for a good B12/PA understanding Haematologist in the Uk preferably NHS if anyone can recommend I would appreciate it I am in LINCOLNSHIRE but happy to travel. Thank you

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Diane1961
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Narwhal10 profile image
Narwhal10

Hi Diane1961,

Welcome here. It is worth joining the Pernicious Anaemia Society for accurate information. You do not need a diagnosis.

pernicious-anaemia-society.org

Please get copies of your NHS blood results, note the range and cut-off level of B12 in Lincolnshire Integrated Care Board. You also need good folate, ferritin and vitamin D levels too. Please know if there is any family history and gut problems.

Please keep a symptoms diary. If you can please buy a copy of Dr Joseph Chandy’s Vitamin B12D in Clinical Practice. This book will explain a bit of the anatomy, physiology and cases.

P.A./ B12D is very poorly understood by the medical profession. To my knowledge, there is no U.K. haematologist who specialises in it. The doctor people tend to go to has trained in anaesthetics but takes a special interest. I will private message you their name.

To echo, Health Secretary Wes Streeting’s opinion of the NHS, it is broken. If people cannot read the room, know that they dealt with a pandemic, then strike, after strike, after strike and still do not know that the NHS is in a permanent state of crisis ; they really do need to smarten up.

Usually once diagnosis is agreed, we source from Germany and self-treat. We swerve the NHS. We are quite used to hearing rubbish that B12 is toxic and addictive unlike OxyContin.

Cofion cynnes

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