Blimey: It's 3 days since my first... - Pernicious Anaemi...

Pernicious Anaemia Society

32,395 members23,649 posts

Blimey

Popcorn12345 profile image
6 Replies

It's 3 days since my first injection and my word the burning nerve pain is even worse.Is this infact a good sign? Is this reversing out?

Written by
Popcorn12345 profile image
Popcorn12345
To view profiles and participate in discussions please or .
6 Replies
Nackapan profile image
Nackapan

Nerves wake up with B12 if it's needed .I found it pretty painful in the loading phase and beyond

B12life profile image
B12life

yes! This is the "it gets worse before it gets better and as Nackapan states, it's because the nerves are healing, ALL AT ONCE. The pain ached all the way to the bone for me. It was intense. I had to pace. However after 3-5 weeks it went away. During that time it was tempting to back off on the injections but I knew if I did, it would delay getting better.

The healing journey is SLOW but sure.

Glad to hear you are on the right path. Also this forum is the best in the world for b12 bar none.

Popcorn12345 profile image
Popcorn12345 in reply to B12life

Thank you. I'm now really concerned with getting my vit D levels up to. Vit D causes me anxiety but i am very low in it. Also I'm worried I won't be absorbing it if I do try again as I don't yet know why I'm not absorbing things

B12life profile image
B12life in reply to Popcorn12345

been there with low vit d. fortunately independantly before I had low 12. low vit D can be debilitating as well. So yes, very important to get that back to norm. Work with a doc. Docs usually understand and will help with vit D. I did high does for 3 months then was tested again. it takes about a 1-3 months it back to normal.

Popcorn12345 profile image
Popcorn12345 in reply to B12life

Did you take co factors? Any side effects?

B12life profile image
B12life in reply to Popcorn12345

For but D? I had that issue in 2012.

K-2 is the only cofactor for vit D that I take.

Vit d can be toxic if levels get too high so that's why I recommend working with a doc. And they can tell you safe doses when high dosing.

For b12, my cofactors are these daily:

Benfomax (b1) 250mg

b12 complex without b6

B6 - 50mg in p5p form as other forms can lead to chronic toxicity with neurological symptoms

Magnesium glucinate 4-800 mg per day (this is good in general but need it to metabolize the b1 in higher doses)

Not what you're looking for?

You may also like...

Was thinking of Dr. Chandy yesterday, God bless him for having such courage

Long story but I have had a couple of head MRIs due to lesions that are perpendicular in nature. To...

Intrinsic Factor Negative

I’ve been feeling grotty for a couple of years and have thyroid antibodies. Started on...

Excess Folic Acid and Vitamin B12 Deficiency: Clinical Implications?

This is a very recent paper. Some of the areas covered are well-known. Such as not treating B12...

When will it end?

In the 1970s I had severe anxiety and panic attacks: in the 80s I developed ME which lasted into...

Cofactors - B complex?

should I be starting on a B complex? I had iron infusion end of May and have been on EOD B12...