Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,318 members • 23,534 posts

All posts for September 2023

Metformin and B12 Levels

My husband takes Metformin. He has just been for his review and I badgered him to ask if his B12 had been tested and if so, what the level was. I didn't...

My husband takes Metformin. He has just been for his review and I badgered him ...

FancyPants54

•10 months ago

13 Replies

Did I get this wrong

So I’ve worked my frequency’s out on the basis of when I feel breathless and achy I’ve overdone it and prob need to increase my shots or I’ve left too long a...

So I’ve worked my frequency’s out on the basis of when I feel breathless and ach...

Thrones12

•10 months ago

4 Replies

Scalloped tongue just appeared had 4 loading doses

Sorry I keep posting my partner is just so down with all symptoms. Hes had 4 loading doses due 5th one today and hes just developed a new symptom a scalloped...

Sorry I keep posting my partner is just so down with all symptoms. Hes had 4 loa...

Nic878

•10 months ago

10 Replies

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Parathesia

Low vitamin B12 in January. 3 months of oral supplements. Bloods completed again results even lower than original results. 6 loading doses of B12 injections....

Low vitamin B12 in January. 3 months of oral supplements. Bloods completed agai...

Janine60

•10 months ago

4 Replies

Dizziness

I started doing SI EOD recently following great advice from forum members. I saw a different GP at my new surgery last week and she was very helpful. She...

I started doing SI EOD recently following great advice from forum members. I ...

Inishfree

•10 months ago

22 Replies

weeing a lot

does anyone with pernicious anemia wee a lot during the day

Becca2023

•10 months ago

8 Replies

Neurological Symtoms how to get regular injections until improvement advice please

My partner is having his 5th loading injection tomorrow, he's also having an appointment with GP in morning. He has neurological symtoms and I'm wondering if...

My partner is having his 5th loading injection tomorrow, he's also having an app...

Nic878

•10 months ago

15 Replies

Vitamin b12 levels 2000 Pmol/l after b12 injection

Is it normal for your vitamin b12 levels to rise that much two days after b12 injection

Is it normal for your vitamin b12 levels to rise that much two days after b12 in...

Oldbloke1

•10 months ago

12 Replies

1 or 2 time a day vit b12 1000 microgram???

Hello dear friends I read here some post that someone is injecting one or two time a day of vitamin b12 ampules (1000 microgram or 1 mg). Is it safe to inject...

Hello dear friends I read here some post that someone is injecting one or two ti...

Emiroskui

•10 months ago

8 Replies

Low iron test results and a way forward please

I had some blood tests recently and am wanting advice on a way forward, please. My serum iron level and my transferrin saturation index are both below the...

I had some blood tests recently and am wanting advice on a way forward, please. ...

yorkshiregirl4

•10 months ago

4 Replies

Association.

I do a lot of work with what I associate with past experiences. It is hard for me and just accomplishing a task now that was horrible in the past does not meet...

I do a lot of work with what I associate with past experiences. It is hard for m...

WIZARD6787

•10 months ago

4 Replies

Description of Fatigue.

I find it helpful when others share their experiences with fatigue. I do not expect to be understood when I express my experience except here. So February...

I find it helpful when others share their experiences with fatigue. I do not exp...

WIZARD6787

•10 months ago

5 Replies

Question on NHS Coverage.

If a person in the UK hires a physician say at the Iron Clinic in Cambridge can that physician order tests and those tests are covered by NHS?

If a person in the UK hires a physician say at the Iron Clinic in Cambridge can ...

WIZARD6787

•10 months ago

16 Replies

Sunshiny Days...

To all of us, Rex Sunshiny Days - From pernicious anemia's cold embrace, we emerged, as warriors, finding grace. In the depths of shadowed, endless...

To all of us, Rex Sunshiny Days - From pernicious anemia's cold embrace, we...

Rexz

•10 months ago

17 Replies

Efudix cream

A bit off topic but I've been given Efudix Cream for pre cancerous skin things called actinic keratosis, GP told me it was "a bit of Dermatitis" Mmmm...... I...

A bit off topic but I've been given Efudix Cream for pre cancerous skin things c...

Hidden

•10 months ago

4 Replies

Paper on the design of B12 deficiency treatment protocols

This might be one of the most fascinating papers I've read on B12 deficiency and treatment, with several sections exploring how symptoms relate back to the...

This might be one of the most fascinating papers I've read on B12 deficiency an...

Technoid

•10 months ago

22 Replies

Where to buy supplies

I've had lots of helpful links to information etc in another post. But I'm still none the wiser on what and where to buy to self-inject. I have my first ever...

I've had lots of helpful links to information etc in another post. But I'm stil...

FancyPants54

•10 months ago

47 Replies

B12 inje

I was diagnosed 4 yrs ago on injections for life ,every 12 weeks ,lately I have been very ill ,went to my doctor she did pile of bloods because of my symptoms...

I was diagnosed 4 yrs ago on injections for life ,every 12 weeks ,lately I have ...

Myratom

•10 months ago

17 Replies

Do expired B12 hydroxocobalamin ampoules still work?

Do expired B12 hydroxocobalamin ampoules still work? I still have at least forty that expired back in February. I feel like they may not be working as I've...

Do expired B12 hydroxocobalamin ampoules still work? I still have at least fort...

jkiron

•10 months ago

9 Replies

Culture & Sensitivity

These are medical tests which look for bacteria, viruses or fungi. They can be ordered for body fluids such as urine, blood or stools. Some of us with P.A. or...

These are medical tests which look for bacteria, viruses or fungi. They can be o...

Narwhal10

•10 months ago

11 Replies

Can I inject twice a day?

Thanks to you guys I have been happily managing my B12 deficiency by self injecting Hydroxocobalamin 1500 every day. Of I don't inject daily my symptoms come...

Thanks to you guys I have been happily managing my B12 deficiency by self inject...

SKYROCKET123

•10 months ago

16 Replies

Anyone care to share their experiences of Dr Andrew Klein

He’s was very kindly recommended on here and I’ve emailed him. I got a speedy response and in his reply his tone seemed very amenable Would really like to...

He’s was very kindly recommended on here and I’ve emailed him. I got a speedy re...

Noelnoel

•10 months ago

1 Reply

Rant to Physicians.

Physicians have their own classification by insurance companies when they hold a pilot's license. They crash more than other pilots. Instead of following...

Physicians have their own classification by insurance companies when they hold a...

WIZARD6787

•10 months ago

2 Replies

Changing from methyl to hydroxo worries

Hi everyone. I'm about to switch from methyl b12 ampules to Dr myhill's hydroxo, and I'm worried about side effects. I've only been SI for under a year and...

Hi everyone. I'm about to switch from methyl b12 ampules to Dr myhill's hydroxo,...

Sunnysidoop

•10 months ago

17 Replies

Chronic exhaustion

Hi, I have a question! I have had chronic exhaustion for about a year now It felt better when I started b12 in back in May, The problem is that once my...

Hi, I have a question! I have had chronic exhaustion for about a year now It fe...

brenanddave

•11 months ago

14 Replies

So nervous

Hi guys, coming to ask you guys a question but so afraid of a bad answer. You wouldn't believe how I've been shaking and feeling so nervous and worried and...

Hi guys, coming to ask you guys a question but so afraid of a bad answer. You wo...

25092

•11 months ago

15 Replies

depression

can I ask if any members find that lack of B12 increases depression.I find when “low” that an increase in SI is becoming necessary.I would be grateful for...

can I ask if any members find that lack of B12 increases depression.I find when ...

Mrsannabbott

•11 months ago

19 Replies

More B12 injections?

I’m currently injecting hydroxo once a day. I feel this isn’t enough. I’ve been injecting for 2 years. Does anyone here inject more than once a day? If so...

I’m currently injecting hydroxo once a day. I feel this isn’t enough. I’ve been ...

qwertystar

•11 months ago

6 Replies

No stomach acid

Hi everyone, I have been diagnosed with Hypochlorhydria due to autoimmune gastritis. This means I don't produce any stomach acid and don't absorb protein. I...

Hi everyone, I have been diagnosed with Hypochlorhydria due to autoimmune gastri...

sasha_nico

•11 months ago

10 Replies

Help, need guidance, major setback

Hi, all. I've had a terrible month. Long story short, I got sudden hydronephrosis and passed a lot of sediment from my kidney that wasn't identified by the...

Hi, all. I've had a terrible month. Long story short, I got sudden hydronephrosi...

Iheartb12

•11 months ago

9 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2023

Metformin and B12 Levels

Did I get this wrong

Scalloped tongue just appeared had 4 loading doses

Parathesia

Dizziness

weeing a lot

Neurological Symtoms how to get regular injections until improvement advice please

Vitamin b12 levels 2000 Pmol/l after b12 injection

1 or 2 time a day vit b12 1000 microgram???

Low iron test results and a way forward please

Association.

Description of Fatigue.

Question on NHS Coverage.

Sunshiny Days...

Efudix cream

Paper on the design of B12 deficiency treatment protocols

Where to buy supplies

B12 inje

Do expired B12 hydroxocobalamin ampoules still work?

Culture & Sensitivity

Can I inject twice a day?

Anyone care to share their experiences of Dr Andrew Klein

Rant to Physicians.

Changing from methyl to hydroxo worries

Chronic exhaustion

So nervous

depression

More B12 injections?

No stomach acid

Help, need guidance, major setback

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