Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for September 2023

Morning Live this morning

Have just seen Morning Live this morning. They discussed Nitrous Oxide effects and banning with Dr Xand - and he talked about it's effects on B12 ! This may...

Have just seen Morning Live this morning. They discussed Nitrous Oxide effects ...

Cherylclaire

Forum Support•8 months ago

14 Replies

Jaundice

Has anyone with PA or very low B12 suffered from Jaundice , I read somewhere that this can be a common occurrence , many thanks , Will.

Has anyone with PA or very low B12 suffered from Jaundice , I read somewhere tha...

wp69

•8 months ago

25 Replies

Great doctor!

I want to share my experience with my lovely new doctor! I thought from my conversation that he had PA like me. It turns out itis a very rare condition that...

I want to share my experience with my lovely new doctor! I thought from my conve...

brenanddave

•8 months ago

5 Replies

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Skin issues and b12

Hi guys! I am wondering if anyone here has experienced a continuous thickening of skin over their face. It started like dermatitis and was very itchy Now I am...

Hi guys! I am wondering if anyone here has experienced a continuous thickening o...

brenanddave

•8 months ago

6 Replies

Starting B12 injections

Hi I am hypothyroid, on Armour Thyroid but still dog tired all the time. I’m on HRT and I have horrible peripheral neuropathy in my feet and lower legs. I...

Hi I am hypothyroid, on Armour Thyroid but still dog tired all the time. I’m on...

FancyPants54

•8 months ago

36 Replies

Supplements before Diagnostic Blood Tests - Newbie Question

Hello I’ve had unexplained fatigue and neurological symptoms for 10+ years. I recently found out about PA. The symptoms fit my profile and when I mentioned PA...

Hello I’ve had unexplained fatigue and neurological symptoms for 10+ years. I r...

Harpee

•8 months ago

13 Replies

when micronutrients are deficient aka co-factors will the continuation of B12 IM self-inject really help me?

Hello all, Background info; I was dx w/ pernicious anemia finally in October 2022 after over 10 years of lack of appropriate testing and treatment. PCP...

Hello all, Background info; I was dx w/ pernicious anemia finally in October 2...

Schpsych2414

•8 months ago

4 Replies

How often should inject?

Background: Diagnosed 9 years ago with ME and fibro (b12 not tested). Been bedbound since but was slowly getting a bit better, then got covid and I never...

Background: Diagnosed 9 years ago with ME and fibro (b12 not tested). Been bedbo...

Pepperpots302

•8 months ago

53 Replies

Supplements - Dangerous, Essential or Useless?

Wizard recently made an interesting post on the "drive to minimize supplementation" that I wanted to respond to in-depth. The post:...

Wizard recently made an interesting post on the "drive to minimize supplementati...

Technoid

•8 months ago

36 Replies

info needed

Hi I wonder if any one has any information I was diagnosed with pernicious Anaemia in 2021 I had a course of injections initially and now I have a jab every 11...

Hi I wonder if any one has any information I was diagnosed with pernicious Anaem...

Frosty52

•8 months ago

2 Replies

”Surplus” B12 in urine

Hi Guys Had an unexpected breakthrough today, Thursday. I am away from home and I forgot to pack my B12 and needle, syringe etc. I have my “emergency” jab...

Hi Guys Had an unexpected breakthrough today, Thursday. I am away from home a...

Wwwdot

•8 months ago

16 Replies

B12 Depot Panpharma

Can any one help. Where can i order this from im in the UK I have been on some sites in Germany and they do not ship to UK Thanks

Can any one help. Where can i order this from im in the UK I have been on some...

BRYNITHEL123

•8 months ago

8 Replies

The drive to reduce minimize supplementation?

I experience the feeling that reducing supplementation to be "good". It seems to be the medicial fields creed. Perhaps the medicial field's hippocratic oath is...

I experience the feeling that reducing supplementation to be "good". It seems to...

WIZARD6787

•8 months ago

8 Replies

Need mental health support

Is this the right place

Iamhealthy123

•8 months ago

2 Replies

Chronic inability to fall asleep/maintain/resume sleep and electric shock sensation.

Hi everyone,Hope we're doing better today. I have been on methyl cobalamin capsules (meconerv forte) for three months now. I was on 1 tablet (1000mcg) daily. I...

Hi everyone,Hope we're doing better today. I have been on methyl cobalamin capsu...

Orimini

•8 months ago

2 Replies

borderline haemoglobin

my recent blood test show that my haemoglobin A12 level is borderline .Does this indicate that I should increase my SI of B12?Have been feeling more exhausted...

my recent blood test show that my haemoglobin A12 level is borderline .Does this...

Mrsannabbott

•8 months ago

9 Replies

sibo advice

I have been unwell for 3 years with multi symptoms including stomach , history of diarrhoea, constipation, food in the stool ,joint pains, exhaustion. Can...

I have been unwell for 3 years with multi symptoms including stomach , history o...

Merav

•8 months ago

6 Replies

Intrinsic Factor

It occurred to me that it must be possible to synthesise Intrinsic Factor as a supplement to replace what PA people have lost. Does anyone of a scientific bent...

It occurred to me that it must be possible to synthesise Intrinsic Factor as a s...

Orchard33

•8 months ago

24 Replies

Tested my b12 level again after loading doses

Hello dear members. I tested my b12 level again to see how much raised it after 5 loading dose during loading dose period. I injected 5 dose of 1mg or 1000...

Hello dear members. I tested my b12 level again to see how much raised it after ...

Emiroskui

•8 months ago

6 Replies

A helpful video for me.

https://www.youtube.com/watch?v=q5cyMLt6N7Q This was posted by someone else on this site 6+- months ago and resonated with me. I do not know who the creator...

https://www.youtube.com/watch?v=q5cyMLt6N7Q This was posted by someone else on ...

WIZARD6787

•8 months ago

1 Reply

My fear of using up B12 and crashing.

The first time in my explicit memory was when I was 3 years 8 months. There are events from my implicit memory. The second major event was when I was 8 and...

The first time in my explicit memory was when I was 3 years 8 months. There are ...

WIZARD6787

•8 months ago

9 Replies

All about Vitamin B12 in 10 mins

Long timers can skip, but could be a nice summary for new visitors. From Gil Carvalho. https://m.youtube.com/watch?v=6FY2VPEnfko Extraordinary to learn that in...

Long timers can skip, but could be a nice summary for new visitors. From Gil Car...

Technoid

•8 months ago

4 Replies

Trouble finding Hydroxocobalamin in USA

Hi all. I am not able to order any vials of Hydroxocobalamin as all suppliers to pharmacies here are saying it's on back order and unavailable (even tried...

Hi all. I am not able to order any vials of Hydroxocobalamin as all suppliers to...

Greeneyecolor

•8 months ago

13 Replies

edeuweed

I'm new to all of this, although I was diagnosed with PA in 2016........One of my constant issues is with dehydration at night.......causing sore throats and...

I'm new to all of this, although I was diagnosed with PA in 2016........One of m...

edeuweed

•8 months ago

15 Replies

Blood results

Can anyone make sense of my partners blood results im going to attach both pages I know his b12 is low but I dont know what else to look for image removed by...

Can anyone make sense of my partners blood results im going to attach both pages...

Nic878

•8 months ago

4 Replies

Pins and needle

I have had pins and needles in my feet for the past 2 years I saw a neurologist and there is no damage to the nerves I have injections every 3,months. What is...

I have had pins and needles in my feet for the past 2 years I saw a neurologist ...

Arranger

•8 months ago

17 Replies

Statins

Good morning. I may have to go on statins for high cholesterol . Do these affect B12 need or are there any reactions I should be aware of please?Thank you

Good morning. I may have to go on statins for high cholesterol . Do these affect...

smg1950

•8 months ago

6 Replies

Help please interpreting blood results

Hi all. I've been very unwell for just over three years with very bad muscle twitches, weakness all over, extreme fatigue. I've been to neurologist several...

Hi all. I've been very unwell for just over three years with very bad muscle twi...

Sheba14

•8 months ago

4 Replies

prudendal neuralgia

hi all!!! I hope this post finds you all well!! I have not posted in some time. I have been receiving bi-weekly B12 injections for 3 years. I have made a...

hi all!!! I hope this post finds you all well!! I have not posted in some tim...

Ctadds1

•8 months ago

6 Replies

September 17 2023 11:20 AM EST

That was the time and place that Wizard6787 first published the hypothesis that those with a diagnosis of B12 deficiency may benefit from more frequent...

That was the time and place that Wizard6787 first published the hypothesis that ...

WIZARD6787

•8 months ago

11 Replies

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2023

Morning Live this morning

Jaundice

Great doctor!

Skin issues and b12

Starting B12 injections

Supplements before Diagnostic Blood Tests - Newbie Question

when micronutrients are deficient aka co-factors will the continuation of B12 IM self-inject really help me?

How often should inject?

Supplements - Dangerous, Essential or Useless?

info needed

”Surplus” B12 in urine

B12 Depot Panpharma

The drive to reduce minimize supplementation?

Need mental health support

Chronic inability to fall asleep/maintain/resume sleep and electric shock sensation.

borderline haemoglobin

sibo advice

Intrinsic Factor

Tested my b12 level again after loading doses

A helpful video for me.

My fear of using up B12 and crashing.

All about Vitamin B12 in 10 mins

Trouble finding Hydroxocobalamin in USA

edeuweed

Blood results

Pins and needle

Statins

Help please interpreting blood results

prudendal neuralgia

September 17 2023 11:20 AM EST

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive