Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for September 2023

Eustachian tube dysfunction is it possible this is connected to b12 deficiency?

My partner has has b12 deficiency symptoms for years, only recently diagnosed. He gets a fullness in his ears, he cant pop them even with all methods ENT teach...

My partner has has b12 deficiency symptoms for years, only recently diagnosed. H...

Nic878

•11 months ago

45 Replies

tingling feet and hands

I have a tingling/buzzing feeling in feet and hands. I also get a burning leg sensation at night in bed which I've always put down to menopause. The tingling...

I have a tingling/buzzing feeling in feet and hands. I also get a burning leg se...

lolajone

•11 months ago

9 Replies

Finally diagnosed, but next steps unclear

Hi, newbie here. I've felt like crap since last year. A health check had my B12 at about 250 with folate just below the NHS bottom range around December...

Hi, newbie here. I've felt like crap since last year. A health check had my B1...

Onefish

•11 months ago

20 Replies

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Designing new trial

I chose to stop my SL methylcobalamin and start injecting methylcobalamin. I started with 1 mg three times a day. After three days I found that sometimes I...

I chose to stop my SL methylcobalamin and start injecting methylcobalamin. I s...

WIZARD6787

•11 months ago

10 Replies

My body did not get the memo.

I accept that a test had been done measuring the amount of Hydroxocobalamin and Cynocabalamin that can be measured in the urine at different times after the...

I accept that a test had been done measuring the amount of Hydroxocobalamin and ...

WIZARD6787

•11 months ago

5 Replies

Burning tongue "syndrome": nerve-related ?

I saw a different Oral Medicine consultant very briefly last week, who told me that nerve damage was the cause of my constantly burning tongue - and then...

I saw a different Oral Medicine consultant very briefly last week, who told me t...

Cherylclaire

Forum Support•11 months ago

8 Replies

absorption of vitamins

I was diagnosed with PA several years ago. Atrophic gastritis and anemia so I understand I have to inject b12 due to my gut not being able to absorb it. What...

I was diagnosed with PA several years ago. Atrophic gastritis and anemia so I un...

lifegems

•11 months ago

8 Replies

Which is the brand of B12 that has fewest additives

To clarify, B12 to inject Thanks!

Noelnoel

•11 months ago

12 Replies

The Role of Neurotropic B Vitamins in Nerve Regeneration

Interesting paper. Highlights B1, B6 and B12. Summary and Conclusion: "All of the three highlighted B vitamins may create the necessary environmental...

Interesting paper. Highlights B1, B6 and B12. Summary and Conclusion: "All of th...

Technoid

•11 months ago

9 Replies

Make of B12

Sorry just a quick one.I usually use panpharma but this time round (last few months) I have been using Hevert due to jot being able to get the other. Would...

Sorry just a quick one.I usually use panpharma but this time round (last few mon...

Sunshine1932

•11 months ago

6 Replies

Hair loss

This question may have been asked before, if so I’ve missed the response. About two years ago my hair started falling out. I’d been in hospital with blood...

This question may have been asked before, if so I’ve missed the response. About ...

Twaddletop

•11 months ago

29 Replies

Mayo Clinic studies B12 def, are very interesting!!

Check these studies out! I printed a few copies for my medical practice Abstract Although cobalamin (vitamin B12) deficiency was described over a century...

Check these studies out! I printed a few copies for my medical practice Abstr...

brenanddave

•11 months ago

16 Replies

Oxford Biosciences methylcobalamin in 2023 ( - 6yrs on!).

Hi all, Found this thread by Hopefulandpositive, re. the above: https://healthunlocked.com/pasoc/posts/136257339/oxford-bioscience - from ~6yrs ago....

Hi all, Found this thread by Hopefulandpositive, re. the above: https://healthu...

Sid_Arthur

•11 months ago

20 Replies

Shortage of Hydroxocobalimin in USA

It appears that there is a major shortage of Hydroxocobalimin in the USA. All pharmacies and mail order outlets that I can locate have zero supply and this is...

It appears that there is a major shortage of Hydroxocobalimin in the USA. All ph...

scnuke

•11 months ago

27 Replies

Pulse Today article - Overdiagnosis of B12 deficiency

Hi All, Thought this might be of interest to all here, especially those in UK....

Hi All, Thought this might be of interest to all here, especially those in UK.....

Sleepybunny

•11 months ago

46 Replies

How much folic acid while on ED injections?

I inject b12 daily or at least every other day for over two years now. I'm lots better by now but have still slight polyneuropathy left. During this time I've...

I inject b12 daily or at least every other day for over two years now. I'm lots ...

Asselchen

•11 months ago

10 Replies

Milestones.

Seems to me that my milestones associated with my cobalamin issues tend to be known to me only in hindsight. I thought about it and came to understand that...

Seems to me that my milestones associated with my cobalamin issues tend to be kn...

WIZARD6787

•11 months ago

6 Replies

Can I still inject while pregnant?

Currently I inject EOD 1 ml methylcobalamin . I think I may be pregnant and was wondering if doing so is recommended during pregnancy,would that be harmful to...

Currently I inject EOD 1 ml methylcobalamin . I think I may be pregnant and was ...

Blackbeauty876

•11 months ago

8 Replies

Unexplained bruising a B12 symptom?

Hello all, Backstory My daughter is continuing to receive EOD shots from her GP surgery by the grace of a switched on GP who I sent in the NICE guidelines to...

Hello all, Backstory My daughter is continuing to receive EOD shots from her G...

Sneedle

•11 months ago

6 Replies

Thoughts welcome

My mum has the following symptoms Unexplained weight loss (so she now eats biscuits, cakes, chocolate to make sure she doesn't lose any more, and my dad makes...

My mum has the following symptoms Unexplained weight loss (so she now eats bisc...

Enuffisenuf

•11 months ago

43 Replies

my help

😀I do not need to tell everyone my problems I just want some info@😀

64219

•11 months ago

4 Replies

MrJustatip: Advice to help save my wife's leg.

Hello all. I now know "I" have pernicious anemia. But at this time I'm not writing about me. It's my wife I'm very, very worried about. She has been having the...

Hello all. I now know "I" have pernicious anemia. But at this time I'm not writi...

MrJustatip

•11 months ago

32 Replies

Newly diagnosed b12, are these symptoms all b12 deficiency symptoms?

Hi im posting for my partner, he's been struggling with symptoms for around 15 years gradually getting worse. GPs kept saying that he has health anxiety. He...

Hi im posting for my partner, he's been struggling with symptoms for around 15 y...

Nic878

•11 months ago

36 Replies

Results of latest trial.

When I first started doing trials I did them for 120 days, then 90. This was based on the average lifespan of a red blood cell which I no longer consider. I...

When I first started doing trials I did them for 120 days, then 90. This was bas...

WIZARD6787

•11 months ago

1 Reply

symptoms with treated PA

Hello forum Autoimmune Metaplastic Atrophic Gastritis (AMAG) results in the loss of parietal cells which causes a loss of production of stomach acid and...

Hello forum Autoimmune Metaplastic Atrophic Gastritis (AMAG) results in the los...

Laundretta

•11 months ago

6 Replies

PA /B12 curious

hi there, Quick question for you PA experts. with a few symptoms that tick PA boxes over many years that are not completely resolved by B Complex would...

hi there, Quick question for you PA experts. with a few symptoms that tick P...

Regenallotment

•11 months ago

9 Replies

Hydroxycobalamin and oxalate formation

Hi, I participate in a forum called Trying Low Oxalates. It is a very good forum but the opinions can be all over the place. One of the more respected...

Hi, I participate in a forum called Trying Low Oxalates. It is a very good fo...

EiCa

•11 months ago

52 Replies

Megloblastic anemia again

Hi, all. I recently went through a severe sickness that lasted 4 weeks. It was really hard on my body. I got blood tests done every week. I usually do 2...

Hi, all. I recently went through a severe sickness that lasted 4 weeks. It was r...

Iheartb12

•11 months ago

6 Replies

Keeping Up With Research Papers

Here's some technical assistance with keeping up with new research papers on B12 or PA. You can do this by by setting up alerts via either Google Scholar or...

Here's some technical assistance with keeping up with new research papers on B12...

Technoid

•11 months ago

18 Replies

recent bloods advice please newby

Hello. We recently tested my sons bloods he has hashimoto, takes Levo. However recent bloods have flagged up a B12 deficiency B12 34.5……Range 37.5-188. He...

Hello. We recently tested my sons bloods he has hashimoto, takes Levo. However ...

Blister4

•11 months ago

5 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for September 2023

Eustachian tube dysfunction is it possible this is connected to b12 deficiency?

tingling feet and hands

Finally diagnosed, but next steps unclear

Designing new trial

My body did not get the memo.

Burning tongue "syndrome": nerve-related ?

absorption of vitamins

Which is the brand of B12 that has fewest additives

The Role of Neurotropic B Vitamins in Nerve Regeneration

Make of B12

Hair loss

Mayo Clinic studies B12 def, are very interesting!!

Oxford Biosciences methylcobalamin in 2023 ( - 6yrs on!).

Shortage of Hydroxocobalimin in USA

Pulse Today article - Overdiagnosis of B12 deficiency

How much folic acid while on ED injections?

Milestones.

Can I still inject while pregnant?

Unexplained bruising a B12 symptom?

Thoughts welcome

my help

MrJustatip: Advice to help save my wife's leg.

Newly diagnosed b12, are these symptoms all b12 deficiency symptoms?

Results of latest trial.

symptoms with treated PA

PA /B12 curious

Hydroxycobalamin and oxalate formation

Megloblastic anemia again

Keeping Up With Research Papers

recent bloods advice please newby

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