Has anyone with PA or very low B12 suffered from Jaundice , I read somewhere that this can be a common occurrence , many thanks , Will.
Jaundice: Has anyone with PA or very... - Pernicious Anaemi...
Jaundice
Written by
wp69
To view profiles and participate in discussions please or .
Read more about...
25 Replies
•
Hi,
I have read that people with PA sometimes develop a lemon yellow skin colour.
I searched online for "yellow skin pernicious anaemia".
Thanks
I had a yellow skin tingeband bright mustard stools. Early on in treatment
Medics not interested when I wax concerned.
Then thought speeded up metabolism
I was convinced a liver concern that then passed.
Gilbert's syndrome can be present too.
My daughter has it.
More pronounced in winter as the sun breaks down bilirubin.
Hence sunshine or s phototherapy unit for jaundiced babies.
Immature lives caused thr common sort.
So yes i think connected
Scientist, not medic.
A mild jaundice is a common finding in untreated PA. It's generally due to what is termed 'Ineffective Erythropoiesis' because the bone marrow isn't able to complete the 'assembly process' of new red cells every 120 days. The bone marrow is working overtime but not completing the job, and so there's an excess of cells being broken down, and the jaundice is due to breakdown of Haemoglobin. The globin is recycled into amino acids and used elsewhere; the haem is recycled to a degree, [the iron is conserved] but the pyrrole bits end up as bilirubin, giving urine a yellow colour, and various other coloured materials; stercobilin giving faeces a brown colour, for instance.
Thanks for your reply , my bilirubin was very high and urine was quite dark in colour
Good news. I'm sure you'll start seeing benefits in no time at all, although some bits will take longer than others.
Yes was one of my symptoms.
It was one symptom that went away pretty well instantly with b12 shots.
What other symptoms did you have if you don't mind me asking
Best of luck reading as they were written when I still had crazy brain fog in 2019.
B12 symptoms
#2
B12 symptoms
#3 (Also had a severe vitamin d deficiency at the same time 7.6/19 so some overlap)
B12 symptoms
One common issue is called proprioception. It means the inability to judge your body in surrounding space. I was called clumsy & would regularly irritate a loved one by walking into her on the sidewalk. Foot drop and gait changes came early as well. As did air hunger, which can seem like constant sighing. And can also irritate the heck out of loved ones, laughing.
Yes, yes and yes !
The foot drop only happened to me once that I know of. I was misjudging my back doorstep when walking in and out of kitchen to garden on a hot day. Constantly tripping.
"Funny," I thought, "I've lived here for 40 years......" - then realised that I was having to raise legs ridiculously high from the knee to avoid tripping, like a clown.
"Oh. So that's what they mean."
As for the yawning, I really thought that was all but gone. Then had an injection that just did nothing yesterday. Went to the supermarket, completely unaware of having administered a "duff one" - and yawned my noisy, overlapping, frankly startling yawns all the way round every single aisle, leaning on the trolley for support. Unable to either make decisions or compare simple prices. Never entirely gone, any of it, is it ? Just containment.
So wish that GPs could understand that.
Thanks , I can relate to a lot of that .
Good news is I went rogue and went every other day almost right away. And over 80% of those symptoms listed above went poof, almost immediately. After having some of them for years. My nerve pain was in many areas and was severe. Diagnosed at the same time with trigeminal neuralgia. But it has never returned.
But some have taken time, a long time.
And a few have not been recovered but could be another issue as I have since had a thyroidectomy.
All the best to you.
I have Gilbert syndrome. My B12 was 160. I inject 3 times a week at the moment and take orthomolecular doses of some vitamins.
I hope you are a lot better
Yes I am indeed, thank you. 1 year of injecting next month. ~200 injections. Lots of soft boiled eggs, butter, daily. Going quasi keto helped me a lot, quasi because I still eat fruits and honey. Taking big doses(in grams) of vitamin C and vitamin B3(nicotinic acid version) daily helped me immensly. I also inject B1 from time to time.
Im also on a heavy protein diet
Superhydro, can you explain the why on the vitamin C, B3 and B1. I mean not the exact science but how you came to this in general? Thank you.
Litatamon, my doctor was useless, just gave me 5 injections at once and said to me to drink sugar water in the afternoon when feeling about to pass out, I have low blood pressure. So I searched and found help alone in Orthomolecular medicine. Orthomolecular means healing with nutrients, opposed to Toximolecular which means taking pharmaceutical drugs. Our body wants and needs nutrients not toxic drugs. I belive in this approach and practice it daily. If you take a look at PA, it made us dependent on a nutrient B12 on which you cannot overdose. Pretty much same principle goes for other nutrients like vitamin C and vitamin B3(Niacin) but strictly in the form of nicotinic acid. I also read the book Niacin The Real Story. If interested look at doctoryourself.com and read about the life work of Dr. Abram Hoffer. Personnaly I do not belive in the big pharma driven raised and paid conventional medicine anymore because they have become sellers of new pricy big pharma products. Nutrients - vitamins can’t be patented and no use to them. This is my 2 cents, not coming here to fight anybody or to make anyone belive in anything. This just my path and point of view.
