prudendal neuralgia

[Ctadds1]

hi all!!!

I hope this post finds you all well!! I have not posted in some time. I have been receiving bi-weekly B12 injections for 3 years. I have made a great deal of improvement and I am able to live my life with little disruption. I have a question though, does anyone have experience with prudendal neuralgia? I believe I am experiencing this. I am assuming it’s probably some permanent nerve damage partly from lack of B12 for years and intensified by child birth.

Thanks so much!!

[Narwhal10]

Hi Ctadds1,

Lovely to see you back. That is great news that you are on the road to recovery.

For others to know, the pudendal nerve is the main nerve of the perineum. This area is often not discussed due to embarrassment or being taboo.

I like you have problems with my pelvic floor muscles and sensations in this area. I have ‘toileting issues’ and when I was in a relationship, intimacy was rather ‘awkward’. I do do pelvic floor exercises and ‘massage’.

However, whilst studying to be a midwife, I worked with a blind physiotherapist who specialised in the pelvic floor muscles and therefore, this nerve. She was amazing as she obviously just worked by touch.

I could not believe when I learnt where the Pernicious Anaemia Society was based. The same place where I had worked with the physiotherapist.

I hope that is of some help.

🐳

[IBS-]

Hi there,

I have recently discovered that I have Pudendal Neuropathy to my right side. My symptoms are chronic constipation and I now suffer with inflammation and GERD. Mine was caused during childbirth (C/-Section). It would be great to chat with anyone who suffers with this problem as it is debilitating and I am desperate to find a solution. My Gastro has prescribed me Prucalopride and Linaclotide but both stop working after a few months..

I would be so grateful to anyone who would be happy to share your story, thoughts or advice and I welcome any information to any doctors out there that know anything about this terrible condition.

Thank you all.

[B12life]

i'm no doc but when I get these problems I look for physical therapy but I find some entity online that actually makes sense and explains the literal cause and why the fix will fix it rather than just throwing text book , ineffective therapy at me. There might be some muscle that is weak causing another muscle to tighten to compensate and so strengthening the weak muscles may balance the two and stop the pinching. Again, I'm not saying this is the cause.

I had sciatica that was resolved by 1.5 years of EOD b12 shots. but then I had another issue that was due to being a "desk jockey" in a sense that for 20 years I sit at a desk, causing the front muscles in my hip to tighten and my glutes to become weak. tightening the glutes over 4 months fixed the issue.

[B12life]

newscentermaine.com/article...

[tomdickharry]

I have similar problems. Years of poorly treated PA, then a sloppily done mesh hernia repair. This has robbed me of all sensation in that area, with obvious consequences.

[JanCymru]

Pudental neuralgia is very debilitating and often misdiagnosed or overlooked. Often goes hand in hand with childbirth whether C-section or vagina delivery. I had a very difficult birth with my Son - it was a 1st pregnancy and he was over 10.5 lbs. Very prolonged labour and forceps resulting in tearing and a very poor repair. That led to scar tissue and my right side of the vagina and cervix being shortened, and naturally the muscles kept trying to balance to no avail. So a pelvic floor in spasm on the right which has given rise to pudental neuralgia. I have seen a pelvic PT but only privately as there are none locally to me. I have a PelviWand which I use (was shown by PT), and this sometimes helps relieve the worse of the neuralgia. When I'm due my PA shot it is one of the things that gets worse, so obviously connected. (*Am SI now so hopefully things will settle). If you can see a pelvic physio therapist it might well help, especially if they can show you how to use the PelviWand. It's a bit painful to use effectively but does provide some respite from the neuralgia. Hope that helps.