I experience the feeling that reducing supplementation to be "good". It seems to be the medicial fields creed. Perhaps the medicial field's hippocratic oath is a large part of it. That they see the undersumplimentation or not supplementation as doing no harm. When in fact it is the safest thing for them to do as those that have the power to harm them are themselves and they will not be harmed if they advise under supplementation or reducing. They have no oversight except the courts and they are only really on the hook if they commit a felony and are caught and prosecuted.
Every time I increase my supplementation and feel better I think well now maybe I can reduce. Sometimes I do, to date has always resulted in a downturn although it may be that I feel better and increase activity and that is the cause of the downturn.
Perhaps it is I don't want anything to be wrong with my body?
It is harder now as my main symptom is not being able to do as much as I want. I no longer experience the return of symptoms if I over do. I just get tired and need a lot of sleep. Although that could be fatigue from undersuplimenting.
I experience some symptoms being resolved from my lifelong deficiency that I really only notice after they are resolved. I am much calmer now, my life long extreme cramps are no more etc.
With me personally I have a hard time integrating that I really have only been successfully treating since I abandoned the 1mg EOD concept. I see the 2.5 years of EOD as part of my successful self treating. Which it was only in that I eventually healed enough so I could think clearly enough to abandon the EOD concept.
I use the term EOD concept to describe the first 2.5 years. I was injecting more than that to prevent pain. My goal was to get back to the EOD concept until I determined to my satisfaction that was a failed concept for the life time B12 I experienced and likely a transcobalamin issue.
I am having a hard time writing here, it feels like I am evangelical in promoting an abandonment of the EOD concept. I am simply sharing and live that I understand I do not understand.
I am fortunate in that I am in the USA and I can not advocate for following the guidelines as they are not available to the peons. Plus it helps that my self-treatment is yielding positive results they cannot imagine happening and likely will attribute my healing to these things just happen.
Well I have no answers. Perhaps it is one of those things to be aware off and that is as good as it gets.
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WIZARD6787
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I so identify with the desire to step off the constant self treating and self diagnosis treadmill.
I think what you have achieved is nothing short of miraculous given you didn’t have the experience of never having been B12 deficient to guide you.
Could it be that you are at the stage of your journey that requires some stillness to allow yourself mental and physical rest to recharge in preparation for the next part of your journey?
I sometimes find that I need timeout from me and my health issues. It’s not easy to do but necessary.
I pondered if I was neglecting my stillness. Pondering being my highest level of consideration other than grieving.
I came up with a new concept for me. Journey check. Not about where I am going or how I got to this place rather what I am doing right now.
I am going in a direction I am OK with.
I did touch on that I will need to grieve this Chapter of The Journals of the Wizard and the Falcon. It is impossible to tell if the Falcon turns into a Wizard or it is the other way around. That is the way of Falcons and Wizards.
If I were in Scotland a trip to the Highlands would be in order.
I find it extremely encouraging that you have managed to reduce supplementation and are much improved. That you have challenged the status quo with a flexible approach. What is your current regime? Apologies if you have already covered this, but I find it hard some days to keep up with topics and the thread of replies.
I may have miscommunicated. I have tried reduction and to date every time has been negative. 3 +- years ago the reduction caused severe suffering.
My goal is not to reduce rather to effectively supplement. The ultimate and unattainable goal would be to supplement the exact amount. I err on the side of supplementing more and too often and then test by reducing. I carefully watch upper limits and toxicity of supplements. I am wary of slanted views born of fear which is not unlike the fear of too much B12. Importantly B6 deficiency which is rarely diagnosed and has all but healed my peripheral neuropathy and the associated pain. Importantly folic acid which I was under supplementing which caused my B12 intake to be less effective resulting in unnecessary distress.
My profile has an old regiment that was successful and is now improved. I am not spending the energy to update it at this time.
I was injecting 1.5 mg methylcobalamin 4 to 5 times a day and that was the most effective to date. I had to reduce due to a projected 1.5 month delay in procurement.
I am now currently injecting .75 mg methylcobalamin 5 times a day and it seems to not be as effective. It has only been a few days so I am monitoring. If it seems to be ineffective than I will increase and substitute cyanocobalamin as a test while I wait for the methylcobalamin to arrive.
I believe that the 1mg hydroxocobalamin EOD is effective if and only if the issue is specific to the malfunction of certain processes that B12 is used of which 25 are currently known. I do not assume the solution is a slight modification of this regiment and wait.
I expect that I experience transcobalamin issues as well as Intrinsic Factor issues. I am aware that the test for Intrinsic Factor is flawed and that the common understanding is the only flaw is false negative and that any test that is not repeatable is not in conformance with sound scientific principles. This is not to state the Intrinsic Test is not helpful rather it has unknown flaws that are ignored.
The reason for my original post was to explore why under supplementation can be seen as good. Pretty much you should never take a supplement you do not need, you should never take any supplement too often and you should never supplement at too high an amount. The opposite is all so true yet it seems to me some follow the methodology of professionals who have no risk as long as they are well on the side of caution often to the detriment to those that follow their caution/self protection.
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