Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,244 members • 23,422 posts

All posts for August 2023

Please some help treating low b12

Hi I have had low b12 for over 15 years I was first given injections in my 20s then told I was cured I became ill and struggled to walk shortly after I was...

Hi I have had low b12 for over 15 years I was first given injections in my 20s t...

Tbob

•11 months ago

16 Replies

A Leave of Absence.

Dear All, Just for you to be aware, I have not gone A.W.O.L. I will only be popping on for about 15 minutes a day. My responses will have to be brief, please...

Dear All, Just for you to be aware, I have not gone A.W.O.L. I will only be po...

Narwhal10

•11 months ago

56 Replies

Zoom courses about B12 deficiency are being given by Tracey Witty

Find out about the courses at www.b12info.com

wedgewood

•11 months ago

4 Replies

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Is the Pernicious Anaemia Society commenting on the proposed new NICE guidelines?

I am surprised not to see any mention of the new NICE guidelines on the PAS website. I was a paid up member last year but did not renew membership this year as...

I am surprised not to see any mention of the new NICE guidelines on the PAS webs...

jeremycat_

•11 months ago

11 Replies

Living with PA?

I came across this insane photo and it somehow struck me that this is what it's like living with PA. Building this road on a cliff and at any moment the...

I came across this insane photo and it somehow struck me that this is what it's ...

Rexz

•11 months ago

20 Replies

Is it reliable and trusty to measure homocystein after loading doses of b12 injections?

Hello everyoneone. I injected b12 shots last week. And wanted to test my homocystein level in order to make sure that i have really b12 deficiency. But i...

Hello everyoneone. I injected b12 shots last week. And wanted to test my homocys...

Emiroskui

•11 months ago

8 Replies

What ? and Watt !! 😜

Our power cells are called mitochondria (might oh con dria). We have trillions of them. Some cells just have one, other cells have hundreds. Special processes...

Our power cells are called mitochondria (might oh con dria). We have trillions o...

Narwhal10

•11 months ago

2 Replies

ordered cyanocobalamin by mistake

I have been doing SI EOD for the past 18 days, I thought I’d ordered hydrocobalamin but after reading some posts today I checked and found I’d inadvertently...

I have been doing SI EOD for the past 18 days, I thought I’d ordered hydrocobala...

Inishfree

•11 months ago

8 Replies

Tinnitus

I am hesitant to write this as I no longer experience Tinnitus and know it is awful. When I was 15 I discovered a way to not experience Tinnitus. I did not...

I am hesitant to write this as I no longer experience Tinnitus and know it is aw...

WIZARD6787

•11 months ago

6 Replies

Mental health

I'm not sure if this question belongs here but...... There is much emphasis these days on mental health - and rightly so - but not once in any context have I...

I'm not sure if this question belongs here but...... There is much emphasis the...

tomdickharry

•11 months ago

68 Replies

Evaluation of My latest 30 Day Trial

I was working with the concept of injecting as needed no less than 3 hours apart, up to 5 times a day and using more than one form at a time. I was injecting...

I was working with the concept of injecting as needed no less than 3 hours apart...

WIZARD6787

•11 months ago

21 Replies

Pink Blush after SI

Hi Guys Does anyone know the reason for the pink blush on the skin a few days after an injection? I know it’s from the B12 but does this suggest the B12...

Hi Guys Does anyone know the reason for the pink blush on the skin a few days ...

Wwwdot

•11 months ago

15 Replies

Best way to address new folate deficiency?

Hello, I'm looking for some advice on folate levels. I've just got back a set of test results from Thriva, which were generally okay, except that I am now...

Hello, I'm looking for some advice on folate levels. I've just got back a set ...

ktwing

•11 months ago

5 Replies

A Little of My Heart

When I first caught a glimpse of you, I thought, ‘Yes, not long now.’ When I gently encouraged and directed, When your head started to emerge, When I gently...

When I first caught a glimpse of you, I thought, ‘Yes, not long now.’ When I ge...

Narwhal10

•11 months ago

16 Replies

Finally somebody that listens AND understands !!!

like so many other people I have been banging my head up against a brick wall and having to battle to get b12 injections, having to explain to numerous GPS and...

like so many other people I have been banging my head up against a brick wall an...

Jason_h123

•11 months ago

27 Replies

Can B12 capsules cause low mood?

I have been on meconerv, ligaba and ginsomin for two months now. Surprisingly, each time I take the drugs I feel low mood after. Please what can be responsible...

I have been on meconerv, ligaba and ginsomin for two months now. Surprisingly, e...

Orimini

•11 months ago

1 Reply

Living with PA since childhood, now 30 and about to start SI, will I ever reclaim good QOL?

hello all, this is my first time posting here, so I’m happy to meet you 😊 I just wanted to share a little of my journey so far and ask for some perspective,...

hello all, this is my first time posting here, so I’m happy to meet you 😊 I jus...

Aymelss

•11 months ago

22 Replies

B12 stock use by date

Hi Guys Just received 100 x Pascoe B12 ampules from Apohealth. Super efficient service as always. Interesting though … first order (Dec 2022 ) use by...

Hi Guys Just received 100 x Pascoe B12 ampules from Apohealth. Super efficient...

Wwwdot

•11 months ago

20 Replies

Just for Fun

It does not matter where you are in your journey. Several of us have been bed bound but I had this in mind when I awoke. 🐳

It does not matter where you are in your journey. Several of us have been bed b...

Narwhal10

•11 months ago

10 Replies

Missed period after b12 shots

Hi! I have been doing loading doses of b12- 2 a week for 5 weeks. I feel so much better! Only issue is now I have no period. I'm about 9-10 days late and not...

Hi! I have been doing loading doses of b12- 2 a week for 5 weeks. I feel so much...

Jemarti1

•11 months ago

9 Replies

Reminder of 'A Life Jolted' blog about PA

Just a reminder for those who haven't seen this yet: A Life Jolted - Weekly blog posts chronically one person's journey with Pernicious Anemia, at...

Just a reminder for those who haven't seen this yet: A Life Jolted - Weekly blog...

jade_s

•11 months ago

12 Replies

Deadline 5pm 22nd August 2023 - Comments on NICE's new B12 deficiency guidelines (UK document)

Hi All, Just wanted to encourage UK forum members to submit comments on new B12 deficiency guidelines. Comments need to be submitted by 5pm Tues 22nd August....

Hi All, Just wanted to encourage UK forum members to submit comments on new B12...

Sleepybunny

•11 months ago

16 Replies

How quickly does homocysteine rise following cessation of B12 injections?

Previous post for context:...

jeremycat_

•11 months ago

8 Replies

Adenosylcobalamin

I am trying to find out how to administer Adenosylcobalamin in the most efficient way. I am aware that Adenosylcobalamin is water soluble at .097 mcg/ml...

I am trying to find out how to administer Adenosylcobalamin in the most efficien...

WIZARD6787

•11 months ago

3 Replies

My B12 System

I still go with my neurological system in evaluating success. I am morphing into deciding on treatment for my B12 system which started when I abandoned the...

I still go with my neurological system in evaluating success. I am morphing into...

WIZARD6787

•11 months ago

Be the first to reply

confused

Hello everyone l am completely confused my Dr didn’t explain to me how intricate and complicated B12 is. I don’t understand all the jargon! Reading the posts I...

Hello everyone l am completely confused my Dr didn’t explain to me how intricate...

Ooopsy

•11 months ago

5 Replies

Difficult Patients.

Difficult patients do exist. A person that is hard to manipulate will be labeled a difficult patient by a physician who is a narcissist. There is little...

Difficult patients do exist. A person that is hard to manipulate will be label...

WIZARD6787

•11 months ago

20 Replies

Where to now!

Things have been getting gradually worse at my GP practice but now it appears to be non functioning. For the second time in 2 months and following e consult...

Things have been getting gradually worse at my GP practice but now it appears to...

Nonameme

•11 months ago

10 Replies

Liquid Iron

Has anyone with atrophic gastritis had any success with taking and tolerating liquid iron please ?I have iron deficiency finally accepted by my doctor after...

Has anyone with atrophic gastritis had any success with taking and tolerating l...

davina70

•11 months ago

8 Replies

Advice again please

I have written about my reaction to B12 subcutaneous . I’ve tried 3 types latest one Pasco before Hervert and Panpharma . I react very strongly bright red...

I have written about my reaction to B12 subcutaneous . I’ve tried 3 types latest...

smg1950

•11 months ago

14 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2023

Please some help treating low b12

A Leave of Absence.

Zoom courses about B12 deficiency are being given by Tracey Witty

Is the Pernicious Anaemia Society commenting on the proposed new NICE guidelines?

Living with PA?

Is it reliable and trusty to measure homocystein after loading doses of b12 injections?

What ? and Watt !! 😜

ordered cyanocobalamin by mistake

Tinnitus

Mental health

Evaluation of My latest 30 Day Trial

Pink Blush after SI

Best way to address new folate deficiency?

A Little of My Heart

Finally somebody that listens AND understands !!!

Can B12 capsules cause low mood?

Living with PA since childhood, now 30 and about to start SI, will I ever reclaim good QOL?

B12 stock use by date

Just for Fun

Missed period after b12 shots

Reminder of 'A Life Jolted' blog about PA

Deadline 5pm 22nd August 2023 - Comments on NICE's new B12 deficiency guidelines (UK document)

How quickly does homocysteine rise following cessation of B12 injections?

Adenosylcobalamin

My B12 System

confused

Difficult Patients.

Where to now!

Liquid Iron

Advice again please

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