Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for August 2023

Gypsy pains.

Hi again everyone. I was just wondering if anyone has experienced what we call "traveling" pains. For ex; I may have throbbing pain in my wrist and then 10...

Hi again everyone. I was just wondering if anyone has experienced what we call "...

MrJustatip

•9 months ago

5 Replies

Anxiety

I have never been DX with anxiety and understand it can be debilitating. I am often called high energy or high strung. Sometimes in sports it was called having...

I have never been DX with anxiety and understand it can be debilitating. I am of...

WIZARD6787

•9 months ago

1 Reply

The Sun and I

10 years ago I was on my porch in the sun one spring and was sick to my stomach and thought " Oh that is just the sun" Then I concluded that the sun should not...

10 years ago I was on my porch in the sun one spring and was sick to my stomach ...

WIZARD6787

•9 months ago

8 Replies

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Evaluating

When I try different trials evaluation is key. It is much harder to evaluate now that the symptoms are not severe. That I have been symptomatic my whole life...

When I try different trials evaluation is key. It is much harder to evaluate now...

WIZARD6787

•9 months ago

7 Replies

SI vs Self-treating

I started using the term self-treating as soon as I started to inject. In the USA I was prescribed 8 weekly cyno 1mg IM then 1mg cyno and 1 mg folic oral daily...

I started using the term self-treating as soon as I started to inject. In the US...

WIZARD6787

•9 months ago

6 Replies

Trusting Myself

Whole lot easier now that I have a protocol that I trust will result in continued positive results. See my profile for that protocol. I am currently working...

Whole lot easier now that I have a protocol that I trust will result in continue...

WIZARD6787

•9 months ago

4 Replies

Anyone have hypercalcemia?

Hi, All! I've been doing pretty well since my diagnosis and b12 injections for 5 months or so. I still had some lingering symptoms that I felt were not related...

Hi, All! I've been doing pretty well since my diagnosis and b12 injections for 5...

Iheartb12

•9 months ago

6 Replies

B12 ampoules

Can't find post but wondered if there was an outcome to only half the amount in .0.5ml rather than 1mg/1ml Was it an error of user? Or syringe Or was it a...

Can't find post but wondered if there was an outcome to only half the amount in ...

Nackapan

•9 months ago

2 Replies

Advice on blood test please

Hi everyone Just got these results back today A few elevated levels..one below Also elevated APTT 38.5 (26.9-34.5) below range GFR 74 (90-200) Any idea please...

Hi everyone Just got these results back today A few elevated levels..one below A...

Lincsangel1

•9 months ago

11 Replies

Great blog post on B12 and videos from Prof Bruce HR Wolffenbuttel

The professor is probably well known to forum members from his frequently referenced paper, "The Many Faces Of Cobalamin (Vitamin B12) Deficiency"...

The professor is probably well known to forum members from his frequently refere...

Technoid

•9 months ago

11 Replies

B complex vitamin

I am taking a multi vitamin every day. What are the B complex people are taking. Can I take them with multi vits and are the complex for everyday?

I am taking a multi vitamin every day. What are the B complex people are taking....

3rdNettydoon

•9 months ago

30 Replies

Pernicious Anaemia Society - communications team

We have set up this "user" as the communications team from the Pernicious Anaemia Society. We are not moderators on this forum and will not be answering any...

We have set up this "user" as the communications team from the Pernicious Anaemi...

PAScomms

•9 months ago

5 Replies

Has anyone consulted with Tracey Witty?

Or any other recommendations please In my previous post I asked for private messages only because I thought that we could only discuss practitioners or medics...

Or any other recommendations please In my previous post I asked for private mes...

Noelnoel

•9 months ago

2 Replies

How many times should we wait for new B12 level testing after loading doses?

Hello dear friends. I wondered if how many times should we wait for a new B12 serum level test. I did my loading doses that can be reliableAppreciate any...

Hello dear friends. I wondered if how many times should we wait for a new B12 s...

Emiroskui

•9 months ago

14 Replies

Can I still buy my b12 overseas with new law

I am afraid of our New Zealand govt’s intentions with the new Therapeutics Bill Products just passed thro parliament. They want to make all vitamins minerals...

I am afraid of our New Zealand govt’s intentions with the new Therapeutics Bill ...

brenanddave

•9 months ago

13 Replies

Grinding Knees

Hi Everyone,I'm going through the reversing out phase, having had my loading doses and one extra jab. I've had all sorts of pains in my legs. Also some...

Hi Everyone,I'm going through the reversing out phase, having had my loading dos...

Oneash

•9 months ago

7 Replies

B12 217ng/L low folate/serum ferritin

Hello,I have been suffering with exhaustion, lighted head and occasionally hard to catch my breath. My doctor ran bloods, my folate is low at 3.4ug/L, serum...

Hello,I have been suffering with exhaustion, lighted head and occasionally hard ...

Sotired3

•9 months ago

19 Replies

Update

I am still working out my next trial. I am having issues with procurement which is no fun. I now can reduce or eliminate a supplement and in a few days tell...

I am still working out my next trial. I am having issues with procurement which ...

WIZARD6787

•9 months ago

4 Replies

Advice please - Where do you learn to self inject?

I'm hypothyroid, self sourcing T3 since the NHS took it off me, and now it seems my B12 'is a bit low.' That was the receptionists considered opinion anyway....

I'm hypothyroid, self sourcing T3 since the NHS took it off me, and now it seems...

debra_bill

•9 months ago

30 Replies

Dr. Mark Porter's B12 Times article

Further to deniseinmilden's post I decided to risk my credit card and subscribed to the free trial of The Times to get the article. Here it is, for better or...

Further to deniseinmilden's post I decided to risk my credit card and subscribed...

Sneedle

•9 months ago

9 Replies

Nitrofurantoin

Sorry pressed send too soon. 7weeks since I had a bad reaction to this antibiotic one day OK next day tired and, just, off.Anyone else had this last so long?...

Sorry pressed send too soon. 7weeks since I had a bad reaction to this antibio...

3rdNettydoon

•9 months ago

8 Replies

Nitrofurantoin

https://bnf.nice.org.uk/drugs/nitrofurantoin/#important-safety-information

3rdNettydoon

•9 months ago

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atrophic gastritis

hi All i was diagnosed with PA approx 8 years ago with some atrophic gastritis. Which was mildly painful in and off. I SI for the PA but the pain in my tummy...

hi All i was diagnosed with PA approx 8 years ago with some atrophic gastritis....

lifegems

•9 months ago

12 Replies

Un knowledgable Neurologist aahhh!!

Hi, I am writing again to get the advice I have been waiting for months to see a neurologist and just heard today that the neurologist is not going to see me...

Hi, I am writing again to get the advice I have been waiting for months to see a...

brenanddave

•9 months ago

24 Replies

Some useful (?) publicity at last!

Came across this on Twitter https://twitter.com/thetimes/status/1683829051880767489?t=DcUxERn7qmmqR92WWP1uLA&s=19 It's a link to an article in The Times,...

Came across this on Twitter https://twitter.com/thetimes/status/1683829051880767...

deniseinmilden

•9 months ago

8 Replies

b12 deficiency - when to have Pernicious anaemia test?

hi, I am rather new to all this and would be very grateful for some advice. I recently had a blood test as I had moved GP surgeries and it came back with...

hi, I am rather new to all this and would be very grateful for some advice. ...

Digbydog123

•9 months ago

18 Replies

spinal disc degeneration

I have recently been diagnosed with L4/5 degenerative discs, lots of pain for a year before an x-ray was done and showed arthritis in both hips too but mild at...

I have recently been diagnosed with L4/5 degenerative discs, lots of pain for a ...

bethmoggie

•9 months ago

17 Replies

Possible allergy to b12

Good morning! I developed a rash a week ago that covered my body and made my lips swell. The doctor suggested stopping b12 and cofactors. He felt it was an...

Good morning! I developed a rash a week ago that covered my body and made my lip...

brenanddave

•9 months ago

22 Replies

Is it possible to have PA on a spectrum?

Hi, is it possible to have PA on a spectrum, where you get some B12 out of what you eat? I have to wait another long 2 months clear of supplements before I...

Hi, is it possible to have PA on a spectrum, where you get some B12 out of what ...

Ian232

•9 months ago

15 Replies

low folate. elevated liver enzymes

hello! this is a bit long winded so I’ll try and keep it brief…. About a month ago I was bitten by a spider in my sleep. I thought no more of it, then...

hello! this is a bit long winded so I’ll try and keep it brief…. About a mon...

Hedge_Walker

•9 months ago

1 Reply

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2023

Gypsy pains.

Anxiety

The Sun and I

Evaluating

SI vs Self-treating

Trusting Myself

Anyone have hypercalcemia?

B12 ampoules

Advice on blood test please

Great blog post on B12 and videos from Prof Bruce HR Wolffenbuttel

B complex vitamin

Pernicious Anaemia Society - communications team

Has anyone consulted with Tracey Witty?

How many times should we wait for new B12 level testing after loading doses?

Can I still buy my b12 overseas with new law

Grinding Knees

B12 217ng/L low folate/serum ferritin

Update

Advice please - Where do you learn to self inject?

Dr. Mark Porter's B12 Times article

Nitrofurantoin

Nitrofurantoin

atrophic gastritis

Un knowledgable Neurologist aahhh!!

Some useful (?) publicity at last!

b12 deficiency - when to have Pernicious anaemia test?

spinal disc degeneration

Possible allergy to b12

Is it possible to have PA on a spectrum?

low folate. elevated liver enzymes

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive