Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,244 members • 23,423 posts

All posts for August 2023

Active b12 result

Hello, so gp did my serum b12 which was 206 a few weeks ago and said he wasn't worried. I am worried because I have lots of symptoms and had a b12 deficiency a...

Hello, so gp did my serum b12 which was 206 a few weeks ago and said he wasn't w...

Hullaballop

•11 months ago

3 Replies

I've been SI methylcobalamin for over 3 years but now its clear that obtaining methylcobalamin is not going to happen!

Can someone reassure me that the other two Hydroxocobalamin &Cyanocobalamin are okay? I've just heard that methylcobalamin is the better out of the 3 and like...

Can someone reassure me that the other two Hydroxocobalamin &Cyanocobalamin are ...

Abbeyr28

•11 months ago

25 Replies

Which tests to ask for or pay for to aid diagnosis?

So Like many of us, I SI, couldn't get GP to listen to my concerns about symptoms my first serum B12 result was 354 I think, so he said normal , but we know...

So Like many of us, I SI, couldn't get GP to listen to my concerns about sympto...

Polo22

•11 months ago

17 Replies

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b12 injection and digestion problems

hi all! I am on injections for a few months and I noticed that I have indigestion issues like slow digestion, bloating , … for a while! Its not that I did not...

hi all! I am on injections for a few months and I noticed that I have indigestio...

Kat_88

•11 months ago

16 Replies

Advice - supplement and diagnosis

Hi, I'm hoping for some advice on whether to pursue b12 def with my GP.... Some history for me (currently not diagnosed with a B12 deficiency) 2021 - GP -...

Hi, I'm hoping for some advice on whether to pursue b12 def with my GP.... Som...

Balloonbbb

•11 months ago

12 Replies

"Subacute" "Combined" spinal cord degeneration, decoded?

An ongoing question is the meaning of the initial terms of Subacute Combined Spinal Cord Degeneration. Jade recently posted a link to the article, "A Case of...

An ongoing question is the meaning of the initial terms of Subacute Combined Spi...

WiscGuy

•11 months ago

13 Replies

Recent purchase of vitamin B12.

Hey Everybody, Just to let you know, I purchased Panpharma hydroxycobalamin from here today: https://www.apohealth.de/en PZN: 16199653 price€ 10.22 for...

Hey Everybody, Just to let you know, I purchased Panpharma hydroxycobalamin ...

Narwhal10

•11 months ago

34 Replies

self injections- feeling worse

New here. 57 years old and recently diagnosed in late stage PA and autoimmune atrophic gastritis. I was receiving weekly shots at doctor’s office but he...

New here. 57 years old and recently diagnosed in late stage PA and autoimmune at...

Deirdre118

•11 months ago

9 Replies

Pattern Glare

Does anyone else get this? It's the proper term ( learnt from pink vision Headway) It's one of the things I now live with . Supermarket syndrome (...

Does anyone else get this? It's the proper term ( learnt from pink vision Headwa...

Nackapan

•11 months ago

18 Replies

Needle problems

Hi. I do 2 IM injectios a week at home in alternating thighs. I sometimes has issues with the needles/syringes doc sends me. Recently had a new issue, just...

Hi. I do 2 IM injectios a week at home in alternating thighs. I sometimes has is...

Iheartb12

•11 months ago

8 Replies

Anyone have the book ((could it be B12))

Hello dear friends Has anyone here got the free PDF of (could it be b12)? How can i download this book? Can i downlod fo free?

Hello dear friends Has anyone here got the free PDF of (could it be b12)? How ca...

Emiroskui

•11 months ago

6 Replies

Just been diagnosed with low folic Acid

Hi, I'm new to this forum but have just been diagnosed with low folic acid .. I’ve just been diagnosed and given meds for 3 months but I’m struggling to...

Hi, I'm new to this forum but have just been diagnosed with low folic acid .....

Missprettyshoes

•11 months ago

23 Replies

Did I cause my PA?

So! I was visiting my doctor yesterday and voiced my concerns about gabapentin as he wants me to up the dose as says I can have up to 3000 mgs aday. I'm...

So! I was visiting my doctor yesterday and voiced my concerns about gabapentin a...

brenanddave

•11 months ago

42 Replies

Can b12 be administered together with proton pump inhibitors?

I have been treated for years now for stomach ulcer without good relief. Two years ago, I underwent endoscopy test. The results showed some healed ulcer and...

I have been treated for years now for stomach ulcer without good relief. Two yea...

Orimini

•11 months ago

4 Replies

Antibiotics

Hi everyone... feeling pretty dreadful right now... I was in theatre yesterday due to an infected sebaceous cyst on my back that just appeared overnight. In...

Hi everyone... feeling pretty dreadful right now... I was in theatre yesterday d...

Lincsangel1

•11 months ago

8 Replies

Where do I go to?

I am a 60 year old male, I don’t know if I have PA, B12 deficiency or other. I have a number of symptoms which lead me to believe it is at least a B12...

I am a 60 year old male, I don’t know if I have PA, B12 deficiency or other. I h...

Isok

•11 months ago

19 Replies

Advice for Ongoing Condition?

Have been on the forum for a while, and has been a great help but asking for advice. About 2 years ago I had problems walking, was constantly tired and...

Have been on the forum for a while, and has been a great help but asking for adv...

TomatoTomato

•11 months ago

5 Replies

Pasco 100 Ampoules depot B12

Hello All I hope you are all well and making progress. Has anyone recently ordered Pasco 100 Ampoules Depot B12 from Versandapo so I can get some Idea of...

Hello All I hope you are all well and making progress. Has anyone recently or...

WorkingProgress

•11 months ago

1 Reply

travelling

I’m after some advice . I’m going to Barbados next week if I want to take my SI stuff , how’s best to do it . Putting needles and syringes in hold all bags...

I’m after some advice . I’m going to Barbados next week if I want to take my SI ...

andepande

•11 months ago

1 Reply

heartburn/acid reflux?

Hi all, I just started injections for low B12 (caused by pernicious anemia, as confirmed by antibody testing and an endoscopy) around 3 weeks ago now. While...

Hi all, I just started injections for low B12 (caused by pernicious anemia, a...

Merlotponty

•11 months ago

6 Replies

Panpharma B12 Depot

Some of you might be interested to know that Panpharma Vitamin B12 Depot 1mg/1ml are currently in stock at Apohealth.de with a use by date of 3/26 2 boxes of...

Some of you might be interested to know that Panpharma Vitamin B12 Depot 1mg/1ml...

headgirl

•11 months ago

3 Replies

B12 injection advice please

I developed a B12 deficency in 2016 couldn't walk loads of symptoms only got 6 loading injections and 1 every 3 months.I still had pins/ needles but symptoms...

I developed a B12 deficency in 2016 couldn't walk loads of symptoms only got 6 l...

Paula1710

•11 months ago

8 Replies

Changed GP surgery

I had my first appointment at my new GP surgery this morning and was very hopeful that he would listen to me but he was very unsympathetic even when I said I...

I had my first appointment at my new GP surgery this morning and was very hopefu...

Inishfree

•11 months ago

7 Replies

Is it worth complaining about miss management of care ? 🤔

As many of you know I opened a case with pals against the treatment or should I say lack of by a neurologist who simply gaslighted me by sticking an FND label...

As many of you know I opened a case with pals against the treatment or should I ...

Jillymo

•11 months ago

43 Replies

B12 self-💉s: dose, form ... & frequency . . .

One small study from ~2015 of B12 💉s showed the benefits reported in those with CFS/ME & FM varied with: a) form of B12, . . . - methyl- form better than...

One small study from ~2015 of B12 💉s showed the benefits reported in those with...

Sid_Arthur

•11 months ago

22 Replies

Hevert B12

I have been sent by a friend in Germany Hevert B12 1 ampule with 2 ml and 1000 ug hydroxocobalaminacetat so normal amount of B12 in double amount of liquid. I...

I have been sent by a friend in Germany Hevert B12 1 ampule with 2 ml and 1000 u...

smg1950

•11 months ago

6 Replies

Injections stopped.

I was noticeably improved feeling good, after 21 weeks of EOD SI. Then I had antibiotics for a water infection, Nitrofurantoin.By day 3 of antibiotics I began...

I was noticeably improved feeling good, after 21 weeks of EOD SI. Then I had ant...

3rdNettydoon

•11 months ago

24 Replies

Low Serum Folate

Male with Hypothyroidism and have been on 100mcg of Levothyroxine for 6 years. In April, I had some infection (unknown) and was not good for 3 months. Felt...

Male with Hypothyroidism and have been on 100mcg of Levothyroxine for 6 years. I...

lostatsea2

•11 months ago

5 Replies

Can it still be B12 deficiency?

I was diagnosed with B12 deficiency and I have been on cyanocobalamin injection for more than a year now. I still have neuropathic symptoms, fatigue, lethargy...

I was diagnosed with B12 deficiency and I have been on cyanocobalamin injection ...

Orimini

•11 months ago

3 Replies

New Pernicious Anemia diagnosis

Hi Everyone,In a sleepy state here, getting no response from my GP, my next NHS B12 injection due on 1st September. What do you wish you'd know sooner? What...

Hi Everyone,In a sleepy state here, getting no response from my GP, my next NHS ...

Oneash

•11 months ago

13 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2023

Active b12 result

I've been SI methylcobalamin for over 3 years but now its clear that obtaining methylcobalamin is not going to happen!

Which tests to ask for or pay for to aid diagnosis?

b12 injection and digestion problems

Advice - supplement and diagnosis

"Subacute" "Combined" spinal cord degeneration, decoded?

Recent purchase of vitamin B12.

self injections- feeling worse

Pattern Glare

Needle problems

Anyone have the book ((could it be B12))

Just been diagnosed with low folic Acid

Did I cause my PA?

Can b12 be administered together with proton pump inhibitors?

Antibiotics

Where do I go to?

Advice for Ongoing Condition?

Pasco 100 Ampoules depot B12

travelling

heartburn/acid reflux?

Panpharma B12 Depot

B12 injection advice please

Changed GP surgery

Is it worth complaining about miss management of care ? 🤔

B12 self-💉s: dose, form ... & frequency . . .

Hevert B12

Injections stopped.

Low Serum Folate

Can it still be B12 deficiency?

New Pernicious Anemia diagnosis

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