Switching from EOD to daily injections - Pernicious Anaemi...

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Switching from EOD to daily injections

Mixteca profile image
6 Replies

Hello peeps! I'll try to be less vague today. So, I'm in week 6 of EOD and struggling mainly with neuropathic pain/burning (as I think I mentioned in my previous post).

Could the people who are injecting daily give some feedback on that? Is that working better for you? I'm doing IM, Pascoe 1500 mcg hydroxo, into thighs and considering subcut on alternate days, give my legs a break (I do have some SC needles).

If by chance my surgery prescribe more Accord 1 mg, which I injected for the first 2 weeks before continuing with Pascoe, would it be okay to mix the two or best stay with the same batch? As long as it's hydroxo it's okay, isn't it?

Thanks in advance 🙏

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Mixteca profile image
Mixteca
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Grygran profile image
Grygran

Changing from eod to daily worked for me very fast. A year of eod resolved my balance, fatigue and pins and needles but not the pain. My pain was different to yours though , not burning but a deep heavy ache inside my bones, particularly my legs and hips. Within a few days of daily, the pain lessened and after two or three weeks it was gone for good.

I still do daily, (sub cutaneous in tummy) and don’t plan on stopping.

Mixteca profile image
Mixteca in reply toGrygran

Sounds horrible! I had a similar deep ache in lower leg bones, whatever they're called, and blood tests showed my Vit D had dropped dramatically. That's since been resolved but the other deficiences are proving difficult to juggle. You have given me hope, thank you!

Grygran profile image
Grygran in reply toMixteca

Forgot to add it is now nearly two years since I started daily. Those awful pains have never come back. I do still have unresolved symptoms though: numbness of feet, problems focussing my eyes (optician can’t find any reason for this) and a facial twitch. I can lead a normal life now though.

mbhembe profile image
mbhembe in reply toGrygran

thank you on your response, really encouraging. It can be worrying sometimes

Scott-rock profile image
Scott-rock

it took me three months to see improvement from reversing out symptoms.

Be patient everyone is different and heals differently..

Mixteca profile image
Mixteca in reply toScott-rock

Patience is not my strong point...thank you though x

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