Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for August 2020

Scary symptoms

I am new here, I have had 5 episodes of extreme heaviness with loss of use of my left arm, muscle cramps and sweating, one of which ended in a&e suspected...

I am new here, I have had 5 episodes of extreme heaviness with loss of use of my...

Mag999

•4 years ago

12 Replies

B12 recovery ?

Has anyone recovered mobility from bed/wheelchair 24/7 with B12 alternate day injections ?

Has anyone recovered mobility from bed/wheelchair 24/7 with B12 alternate day i...

Oundle

•4 years ago

13 Replies

Has Anyone used any of these three sites for purchasing B12 online?

Ushcshots.com Oxfordbiosciences.com Regevelya.com I have had chronic fatigue syndrome for over three decades and have recently started B12 injections and it...

Ushcshots.com Oxfordbiosciences.com Regevelya.com I have had chronic fatigue s...

KEFNB

•4 years ago

8 Replies

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Has anyone in USA been able to get injectable B12 without a prescription?

I tried to order from the German Amazon site and two other pharmacies in Germany mentioned on this site, but each one would not mail to the US. Any...

I tried to order from the German Amazon site and two other pharmacies in Germany...

KEFNB

•4 years ago

22 Replies

PA and Mouth Ulcers?

Hello, I was diagnosed with PA around 8 months ago and ive been self injecting every week and I have seen major improvement. However, I still am getting...

Hello, I was diagnosed with PA around 8 months ago and ive been self injecting e...

Dakota17777

•4 years ago

2 Replies

PayPal?

Could somebody tell me whether B12 suppliers in Germany accept PayPal? If so, is payment made in €, to be converted to £ at some point? Is there any...

Could somebody tell me whether B12 suppliers in Germany accept PayPal? If so, i...

Oundle

•4 years ago

17 Replies

B12 and sores

Hi Does anyone else have sores when their B12 injection is due? I get sores on my face in the same place every time. Feeling very fed up!

Hi Does anyone else have sores when their B12 injection is due? I get sores on m...

Stephmurray

•4 years ago

2 Replies

Needing some advice

Hey everyone! So sorry to post again but not having much luck with my GP at the moment! Been having some strange sensations in my throat and neck, thought it...

Hey everyone! So sorry to post again but not having much luck with my GP at the ...

Ellesbells12

•4 years ago

4 Replies

Suitable Footwear

Morning all. Hope everyone is doing Okay. Around this time last year, I posted asking the question about suitable Footwear after being diagnosed with small...

Morning all. Hope everyone is doing Okay. Around this time last year, I posted ...

Ritchie1268

•4 years ago

11 Replies

Bananas??

Has anyone heard that banana skins are rich in b12.An article in "business insider"seems to be quite adamant they do.I was under the impression that b12 is a...

Has anyone heard that banana skins are rich in b12.An article in "business insid...

hendry

•4 years ago

31 Replies

Hi, 37 years with Crohn’s disease and B12 deficiency plus folate deficiency. New member.

Hi there.... just joined this site today. Hoping to find people in similar situation for support and sharing experiences. Thanks x

Hi there.... just joined this site today. Hoping to find people in similar situ...

B12_crohnie

•4 years ago

3 Replies

B12 deficiency with High Serum B12?

I have B12 deficiency (non-diet related) probably PA although I I tested negative for the antibodies. I my serum B12 levels were low/ normal and I had scary...

I have B12 deficiency (non-diet related) probably PA although I I tested negativ...

theverytiredperson

•4 years ago

14 Replies

Lack of b12

I just feel awful ache all over and fuzzy head confusion mad dreams ( when I get to sleep) keep waking up every 1 1/2 all night. also my skin breaks out and...

I just feel awful ache all over and fuzzy head confusion mad dreams ( when I get...

LorraineQ

•4 years ago

1 Reply

Men and B12 deficiency

New blog post on B12 Deficiency Info website about how men can be affected. https://www.b12deficiency.info/blog/2020/08/17/b12-deficiency-affects-men-too/

New blog post on B12 Deficiency Info website about how men can be affected. http...

Sleepybunny

•4 years ago

2 Replies

New member

Hi all. New to the forum but finding it really helpful. So pleased I found it. Great advice. I am a heath worker and am shocked by my ignorance on B12...

Hi all. New to the forum but finding it really helpful. So pleased I found it. G...

Ziggyzugg

•4 years ago

4 Replies

Great support

It great to have all your support during these difficult days. It's hard to get across how totally devastating the fatigue is to those who don't know. Great...

It great to have all your support during these difficult days. It's hard to get ...

Ziggyzugg

•4 years ago

5 Replies

B12 deficient but don’t know why

Hello everyone, I was diagnosed as b12 deficient in august 2016 and started 5 injections over 5 weeks and then 12 weekly intervals. I have been experiencing...

Hello everyone, I was diagnosed as b12 deficient in august 2016 and started 5 i...

MCkit

•4 years ago

13 Replies

Self injection cost on NHS?

Hi everyone, Just wondering if anyone has any information or similar experience of this... Due to the coronavirus pandemic, I had a bit of a tough time...

Hi everyone, Just wondering if anyone has any information or similar experience ...

amydemi

•4 years ago

13 Replies

Been self injecting now for 8 weeks

Please let me know .been having dodgy tummy and sweats

Mozza127

•4 years ago

13 Replies

Help and advice

I have just come on this site , I was diagnosed a year ago , and have injections every , 12 weeks , I managed to get last injection , I'm due end of August ,...

I have just come on this site , I was diagnosed a year ago , and have injections...

Mountple

•4 years ago

3 Replies

i need some help b12 deficiency(neurological symptoms)

Hello everybody, i follow this page for a long time. I need some help, please read my story. And sorry for the english, As a Child we eat vegeterian. And when...

Hello everybody, i follow this page for a long time. I need some help, please re...

Yves90

•4 years ago

4 Replies

Whole30 diet

Hi my doctor just came back with my blood test and said I need to loose some weight. Honestly, I don’t trust doctors anymore than I can throw them. She put me...

Hi my doctor just came back with my blood test and said I need to loose some wei...

mcginnmx

•4 years ago

3 Replies

A good crop

Pity you all not local to share it!! Not 'showing off' as none of it my work. Put your green ones facing south in the sun and hope for the best . If not...

Pity you all not local to share it!! Not 'showing off' as none of it my work....

Nackapan

•4 years ago

15 Replies

Reducing frequency - am I hysteric?

In the beginning, I would like to say that I am very grateful for this forum and I wish everybody all the best and the respect and appropriate therapy they...

In the beginning, I would like to say that I am very grateful for this forum and...

Lunario

•4 years ago

14 Replies

I have just been thanked by my nurse...

Just called into my GP for a first "monthly" B12 injection, due to the usual admin error, no prescription ready. We went on to have a discussion re why changed...

Just called into my GP for a first "monthly" B12 injection, due to the usual adm...

Hidden

•4 years ago

6 Replies

New and needing help with results B12 and Folate

Hi! I’m hoping someone can help interpreting some recent results. I had bloods done at my GP and also private with Blue Horizon as my GP insists I am fine. My...

Hi! I’m hoping someone can help interpreting some recent results. I had bloods d...

NIC777

•4 years ago

12 Replies

Dr stopped B12 injections.

My father who is in his 80's has been told by his GP that his 3 monthly B12 injections are being stopped because he has sufficient in his blood. He was...

My father who is in his 80's has been told by his GP that his 3 monthly B12 inje...

Observer

•4 years ago

13 Replies

B12 W/REFLEX METHYLMALONIC ACID

Hi, I’m 36 years old and I have been suffering from brain fog and severe fatigue for last 3 years. Since last few weeks, I was experiencing pins and needles...

Hi, I’m 36 years old and I have been suffering from brain fog and severe fatigue...

Trinkler27

•4 years ago

27 Replies

Thankful for this forum.

I just want to say that I am so thankful for this forum. It’s the only thing that keeps me sane in this horrible journey. My husband and kids and parents and...

I just want to say that I am so thankful for this forum. It’s the only thing tha...

HopetoB12better

•4 years ago

4 Replies

Day 8 after injection and I can hardly walk.

I had almost debilitating symptoms before being diagnosed with b12 deficiency and the worst one was that I could hardly walk, in addition to pins and needles,...

I had almost debilitating symptoms before being diagnosed with b12 deficiency an...

HopetoB12better

•4 years ago

3 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2020

Scary symptoms

B12 recovery ?

Has Anyone used any of these three sites for purchasing B12 online?

Has anyone in USA been able to get injectable B12 without a prescription?

PA and Mouth Ulcers?

PayPal?

B12 and sores

Needing some advice

Suitable Footwear

Bananas??

Hi, 37 years with Crohn’s disease and B12 deficiency plus folate deficiency. New member.

B12 deficiency with High Serum B12?

Lack of b12

Men and B12 deficiency

New member

Great support

B12 deficient but don’t know why

Self injection cost on NHS?

Been self injecting now for 8 weeks

Help and advice

i need some help b12 deficiency(neurological symptoms)

Whole30 diet

A good crop

Reducing frequency - am I hysteric?

I have just been thanked by my nurse...

New and needing help with results B12 and Folate

Dr stopped B12 injections.

B12 W/REFLEX METHYLMALONIC ACID

Thankful for this forum.

Day 8 after injection and I can hardly walk.

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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