Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,148 members • 23,314 posts

All posts for August 2020

B12 needles

Just got my yellow needles delivered there they are really small compared to the green and orange ones I usually use I’m hoping they’ll help reduce my anxiety...

Just got my yellow needles delivered there they are really small compared to the...

Hidden

•4 years ago

9 Replies

After the storm

Some flowers survived

Nackapan

•4 years ago

5 Replies

NHS GPs and COVID-19: Refusal of maintenance B12 injections for suffering patients.

How are other members coping with NHS GPs refusing to let B12 deficient patients through the door for their brief, but very important treatment, when the law...

How are other members coping with NHS GPs refusing to let B12 deficient patients...

Crittercrackers

•4 years ago

7 Replies

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Pain in chest after b12 injection?

I recently took 3 consecutive days of b12 injections. After the 3rd shot I started feeling extremely tired, high palpitations and pain in the chest area if I...

I recently took 3 consecutive days of b12 injections. After the 3rd shot I start...

Penguin5129

•4 years ago

12 Replies

Reoccurring yeast infections with high b12 level

Hi, Trying to figure out why I've been having reoccurring yeast infections. Just got back my b12 level and it's high at 1091 I looked up my previous one two...

Hi, Trying to figure out why I've been having reoccurring yeast infections. Ju...

Dottie301

•4 years ago

27 Replies

Where to next?

So I have hit a small impasse with my doctor and I'm not sure where to go next. To summarise where I am in my B12 journey, I was diagnosed B12 deficient...

So I have hit a small impasse with my doctor and I'm not sure where to go next. ...

Wolf79

•4 years ago

3 Replies

Tummy playing up

Morning all.Bit of advice please. I’ve had a sore burning tummy for the last three days,I think I ate some dodgy black pudding. My instinct says to get an...

Morning all.Bit of advice please. I’ve had a sore burning tummy for the last thr...

Hidden

•4 years ago

13 Replies

Damage from pernicious anemia

Does anyone with pernicious anemia feel a buzzing or vibration inside your body? I look down I feel it I raise my arms and I feel it.

Does anyone with pernicious anemia feel a buzzing or vibration inside your body?...

Book12

•4 years ago

7 Replies

Self injecting

Hi guys just wondering is the hydroxocobalaminacetat the same as the uk hydroxocobalamin? Once again my shitty doctor won’t budge from 12 weeks, so much so she...

Hi guys just wondering is the hydroxocobalaminacetat the same as the uk hydroxoc...

Bigdog1989

•4 years ago

5 Replies

Numbness in toes and fingers

I have been very fatigued for some time and am now having numbness in my right hand (little and ring finger) and left foot (three smallest toes). Had b12...

I have been very fatigued for some time and am now having numbness in my right h...

ENG76

•4 years ago

5 Replies

How long before B12 starts repairing damage?

I only ask as I know I've read somewhere that it can take up to 6 months before any real change is noticed in people who have had a real deficiency for years...

I only ask as I know I've read somewhere that it can take up to 6 months before ...

DaveT81

•4 years ago

11 Replies

Active b12 test

I am considering paying for an active b12 test. I self inject every other day - will a test be pointless? Am I injecting active b12 or is the active element...

I am considering paying for an active b12 test. I self inject every other day - ...

Luac

•4 years ago

8 Replies

Help please

Hello, I need a small help. I've been struggling with a strange sensation in my left foot for about 2 months. It felt like there's a feather in between my...

Hello, I need a small help. I've been struggling with a strange sensation in my ...

HiMax

•4 years ago

1 Reply

Is it pernicious anemia?

Just confused over my blood results, my b12 went from 197-144 in just one week. My intrinsic factor was 2. I am currently on my third injection and not feeling...

Just confused over my blood results, my b12 went from 197-144 in just one week. ...

Jemma28

•4 years ago

2 Replies

Swollen feet

I have B12 def with peripheral neuropathy currently struggling with immense fatigue and about to start supplementing NHS 3 monthly injections with my own. My...

I have B12 def with peripheral neuropathy currently struggling with immense fati...

Ziggyzugg

•4 years ago

8 Replies

Trouble with b12 jabs

Hi just wondering if anyone else gets trouble with getting the needle to pierce skin when having there b12 injections? Recently when having shots in top of my...

Hi just wondering if anyone else gets trouble with getting the needle to pierce ...

Davies06

•4 years ago

22 Replies

Any suggestions

Ive upped my b12 injections to every 6th day from May.After a year of 2 weekly. I'm finding on the day before injection too weary and flat mood on top of...

Ive upped my b12 injections to every 6th day from May.After a year of 2 weekly. ...

Nackapan

•4 years ago

9 Replies

B12

B12 alternate injections SI My ear hissing is continuous My folate level is optimal

B12 alternate injections SI My ear hissing is continuous My folate level is o...

Milley2

•4 years ago

11 Replies

B12 Deficiency Blog post - Severe Mental Impairment

Hi, New blog post on B12 Deficiency info website....

Sleepybunny

•4 years ago

Be the first to reply

How long after injections are MMA and Homocysteine tests inaccurate?

I'm having a very hard time finding the answer to this, how long must I go without injections for an MMA or homocysteine test to be accurate? I've read don't...

I'm having a very hard time finding the answer to this, how long must I go witho...

nikaoo

•4 years ago

1 Reply

Refused injection due to covid

Can anyone help? I am now 63 and was diagnosed with pernicious anaemia in my 40s. I have been having b12 injections every 12 weeks since then. I no longer...

Can anyone help? I am now 63 and was diagnosed with pernicious anaemia in my 40s...

Gwyn25

•4 years ago

11 Replies

Quert re brown small patches on face and darker freckles and B12 injctions

Morning everyone I started B12 injections a couple of months ago and since have come up with several small brown patches on my face and some of dark freckles...

Morning everyone I started B12 injections a couple of months ago and since have ...

smilingjane

•4 years ago

20 Replies

numbers

Sorry for long post I have had reoccurring low levels of iron and b12 and folate. Originally I tbought it was because of my periods, as they were very heavy....

Sorry for long post I have had reoccurring low levels of iron and b12 and folate...

DANCINGFEET20

•4 years ago

1 Reply

Feeling water drops on skin

Feelings water drops on skin I often feel the experience of sensation of cold drop of water on skin. Firstly I used to think it is Dysesthesia or Paresthesia...

Feelings water drops on skin I often feel the experience of sensation of cold dr...

Raunak08

•4 years ago

3 Replies

Injectable Adeno B12

Hi: Where can I buy injectable Adeno B12? I live in the US. Do I also need to inject Hydroxy B12? Thanks.

Hi: Where can I buy injectable Adeno B12? I live in the US. Do I also need to ...

KAS18

•4 years ago

23 Replies

Free syringes

Hi there - I have about 100 x of these BD U-100 1ml. Insulin syringes with needle. All obviously sealed and unsused. I am happy to post them to anyone who...

Hi there - I have about 100 x of these BD U-100 1ml. Insulin syringes with need...

Slosh

•4 years ago

2 Replies

Ordering injection?

Where do people order b12 from online ? I’ve looked at versandapo but I cannot work out how to pay or put my address in 😩 I am uk based ! Any help would be...

Where do people order b12 from online ? I’ve looked at versandapo but I cannot w...

Charlie2291

•4 years ago

7 Replies

B12 deficiency follow up.

Last week I posted about a letter I received from my GP practice telling me I was ‘borderline’ deficient (my level was 121) Anyway, today I finally got to...

Last week I posted about a letter I received from my GP practice telling me I wa...

MissKota

•4 years ago

14 Replies

Safe to do hydroxycobalamine injections during pregnancy?

Im currently 8 weeks pregnant, and wondering whether I will still be able to do b12 shots safely, or could it harm the baby? TIA 🙂

Im currently 8 weeks pregnant, and wondering whether I will still be able to do ...

Lojos105

•4 years ago

3 Replies

Best Lab in UK for MTHFR DNA Test???

I’m looking to take a reliable MTHFR DNA Test. The only tests I can find refer to “Ancestry”. Don’t need that. Are there any proper Labs who just do the...

I’m looking to take a reliable MTHFR DNA Test. The only tests I can find refer t...

knackersyard

•4 years ago

6 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2020

B12 needles

After the storm

NHS GPs and COVID-19: Refusal of maintenance B12 injections for suffering patients.

Pain in chest after b12 injection?

Reoccurring yeast infections with high b12 level

Where to next?

Tummy playing up

Damage from pernicious anemia

Self injecting

Numbness in toes and fingers

How long before B12 starts repairing damage?

Active b12 test

Help please

Is it pernicious anemia?

Swollen feet

Trouble with b12 jabs

Any suggestions

B12

B12 Deficiency Blog post - Severe Mental Impairment

How long after injections are MMA and Homocysteine tests inaccurate?

Refused injection due to covid

Quert re brown small patches on face and darker freckles and B12 injctions

numbers

Feeling water drops on skin

Injectable Adeno B12

Free syringes

Ordering injection?

B12 deficiency follow up.

Safe to do hydroxycobalamine injections during pregnancy?

Best Lab in UK for MTHFR DNA Test???

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