Help and advice

[Mountple]

I have just come on this site , I was diagnosed a year ago , and have injections every , 12 weeks , I managed to get last injection , I'm due end of August , but I think I will have to have battle due to covid , I see other post on here about levels ??? I suffer neurological symptoms , brain fog , can't think , balance pins needles , confusion ,dizziness, fallen over ,bumping into things etc, severe tinnitus,chronic fatigue , shortness of breath with exertion, loss of appetite etc , advice anyone please ?? I can't do another battle with doc ,mentally I'm not in good place , can't do the right , I get confused

[wedgewood]

Sorry to hear that you are going through such a bad time . It sounds as though you need more frequent B12 injections . Yes , GPS have been telling P.A. patients to take tablets instead of having injections , which is absolutely outrageous . First of all do write a letter to your G.P, and the practise manager , saying that you are suffering from neurological symptoms and tha you need your injection ,ASAP . You should be able to get injections every 2 months , if the latest guidelines are followed . If you get no joy ,as you are a member of PAS , you will get assistance from them in this .

[Sleepybunny]

Hi,

Have you considered joining PAS who can offer support and info?

PAS (Pernicious Anaemia Society)

Based in Wales, UK.

pernicious-anaemia-society....

There is a helpline number that PAS members can ring.

Link about "What to do next" if B12 deficiency suspected

b12deficiency.info/what-to-...

UK recommended treatment for those with b12 deficiency with neuro symptoms is in next link.

BNF

bnf.nice.org.uk/drug/hydrox...

Letters to GPs about B12 deficiency

b12deficiency.info/b12-writ...

Point 1 in above link is about being under treated for B12 deficiency with neuro symptoms.

I wrote detailed replies on the thread I've linked to below which might be useful.

There is a lot of info in them so you might want to read it over a few days. Some info may be upsetting.

healthunlocked.com/pasoc/po...

The pandemic is impacting patients' B12 treatment in UK.

I left a detailed reply about impact of pandemic on B12 treatment in UK in next link which might be of interest. Again there is a lot of info in it.

healthunlocked.com/pasoc/po.....

I am not medically trained.

[Seth12345]

My best advice is for you to get your own B12 supplies and inject yourself. Don't rely on the NHS to help you.