I just want to say that I am so thankful for this forum. It’s the only thing that keeps me sane in this horrible journey. My husband and kids and parents and friends have NO IDEA what I’m going through and I always feel like they look at me like “yeah, whatever, she’s complaining again.” They don’t get it. But then again, how could they?
It feels so good to have a support group and people to talk to who totally understand the agony of this condition. Peace and love to all! 💕
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HopetoB12better
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Yes this forum is very helpful . Like youhsay how can others get it up and down with no patterns. Never have I struggled for so long with bo real medical help. Obviously to rule out nasties with scans but nk understanding of how devastating this condition is. T C
Agree!!! I don’t know what I would have done without this forum. Probably still been very ill and just have a dr that wants to give me antidepressants!!!
I feel like this, my family have been so supportive but I feel they think “just stop moaning now” at times! No quick fix here so still struggling everyday they also keep referring to my anxiety and blaming most symptoms on that!
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