Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,969 members • 23,115 posts

All posts for August 2020

Update as promised.

I just had my consultation with my lovely endo professor there. My sst test result was 995 and he said he’s very happy with that.Hes delighted that I’ve...

I just had my consultation with my lovely endo professor there. My sst test resu...

Hidden

•4 years ago

4 Replies

Blood test query?

Hi there. Did your GP do these bloods tests for you? I have heard of most of them but I was wondering what TgAB and TPOAB We’re? Did you have to ask for...

Hi there. Did your GP do these bloods tests for you? I have heard of most of t...

Serenity182

•4 years ago

1 Reply

Day patches

I've recently upped my injection frequency. No idea if this is a reason. I've got small oval very dry patches that get very angry if I miss one with loads of...

I've recently upped my injection frequency. No idea if this is a reason. I've ...

Nackapan

•4 years ago

28 Replies

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B12 questions

Hi All I posted the other day about advice on how to convince my doctor to reinstate my injections. In the course of writing, I researched a number of things....

Hi All I posted the other day about advice on how to convince my doctor to reins...

Alfabeta

•4 years ago

2 Replies

To swab or not to swab ?

A year or so ago I asked a GP friend of mine what sort of wipe I should be using when I injected B12 and was surprised by his answer, basically he said that I...

A year or so ago I asked a GP friend of mine what sort of wipe I should be using...

Hidden

•4 years ago

7 Replies

Symptoms getting me down

I have my B12 jab every 2 and a half months, when I get near to being due for my jab I get a foggy head and pressure on my forehead (like someone is pressing...

I have my B12 jab every 2 and a half months, when I get near to being due for my...

Stephmurray

•4 years ago

2 Replies

Different forms of B12

Sorry yet another question! I thought I read somewhere on here but now cannot find it. If getting hydroxocobalamin injections you needed another form to help...

Sorry yet another question! I thought I read somewhere on here but now cannot fi...

CDALY474

•4 years ago

9 Replies

Sick

I keep vomiting lately dunno why? (Not pregnant ) with the heat & Pernicious Anaemia im not feeling good 😿

I keep vomiting lately dunno why? (Not pregnant ) with the heat & Pernicious Ana...

Queeniz

•4 years ago

6 Replies

Twitching

Hi guys! Sorry yet some more questions. Anyone have twitching in there head? Mine is on the left side above my ear and is like a muscle twitch if I could...

Hi guys! Sorry yet some more questions. Anyone have twitching in there head? Min...

CDALY474

•4 years ago

Be the first to reply

Which blood tests are required for a condition that causes hyperventilation and palpitations?

Hi Everybody, I would appreciate your advice on which blood tests are appropriate for my condition. For many years, I have been experiencing heart...

Hi Everybody, I would appreciate your advice on which blood tests are appropria...

Peterw112

•4 years ago

11 Replies

B12 GP Prescribes two adult sisters with same PA Condition an

My GP gives my sister (35) her B12 injection every 6 weeks and I get mine every 12 weeks as my GP thought, I could overdose on B12 and even when presented with...

My GP gives my sister (35) her B12 injection every 6 weeks and I get mine every ...

area16rep

•4 years ago

11 Replies

Birth control

Hey guys. So I’ve been reading and read that birth control can deplete your supplies. I have been on birth control continuously (no break for bleeding) for...

Hey guys. So I’ve been reading and read that birth control can deplete your supp...

CDALY474

•4 years ago

12 Replies

B12 injections stopped again

Hi, I was diagnosed with PA 20 years ago and have been having injections ever since every 3 months. I don't seem to have any symptoms so 3 months seems ok. My...

Hi, I was diagnosed with PA 20 years ago and have been having injections ever si...

Tonyworks

•4 years ago

8 Replies

Writing to my doctor

Hi All Like many on here my B12d injections were halted because of the COVID 19 emergency which caused my surgery to close to most patients. I’ve read the NICE...

Hi All Like many on here my B12d injections were halted because of the COVID 19 ...

Alfabeta

•4 years ago

14 Replies

4mm needles

Hi everyone, my daughter is thinking of using 4mm needles to sc inject her vitamin B as she see’s me doing that with insulin with no need to to pinch the skin....

Hi everyone, my daughter is thinking of using 4mm needles to sc inject her vitam...

weaverdee

•4 years ago

2 Replies

Burning Calves and Leg Pain

Hi everyone, I hope you’re all keeping well! Sadly, I’m having a rough time with my symptoms again and starting to worry about a few things so just wanted to...

Hi everyone, I hope you’re all keeping well! Sadly, I’m having a rough time wi...

Ellesbells12

•4 years ago

6 Replies

Hydroxocobalamin injection

Hi guys! I pray someone can help me. I finally got Hydroxocobalamin injectectable. However I had trouble and horrible anxiety ridden reactions to...

Hi guys! I pray someone can help me. I finally got Hydroxocobalamin injectectabl...

CDALY474

•4 years ago

6 Replies

Sore tongue again

My tongue is playing up again.I get a good run where I don’t have any problems then all of a sudden it starts again it’s like raw cuts or grazes on it and it’s...

My tongue is playing up again.I get a good run where I don’t have any problems t...

Hidden

•4 years ago

35 Replies

not painful...then agony

I am lucky enough to have a community nurse visit every 10 days for a b12 injections (long story about why). The first injection in my thigh was ok but this...

I am lucky enough to have a community nurse visit every 10 days for a b12 inject...

jillc39

•4 years ago

6 Replies

Fuzzy head

Just asking a question - when you are due your injections do you get a buzzing in your head and dreadful memory? I am trying to push for two monthly...

Just asking a question - when you are due your injections do you get a buzzing i...

Madmoo71

•4 years ago

6 Replies

Cannot Remember!

Hello everyone. My brain has gone on holiday and forgot to come back. I cannot remember who the people were who had the meeting with PAS (not the haematology...

Hello everyone. My brain has gone on holiday and forgot to come back. I cannot ...

briarhillcat

•4 years ago

1 Reply

Gut issues

I have recently joined this group and I’m finding the information you share really helpful. As I’m trying to navigate through this myself, but now I don’t...

I have recently joined this group and I’m finding the information you share real...

Serenity182

•4 years ago

16 Replies

Advice needed

I have B12 injections every 6 weeks since 2012. Last Monday they refused to give it to me saying my levels were too high so had to have a blood test instead....

I have B12 injections every 6 weeks since 2012. Last Monday they refused to giv...

lpmsjrb

•4 years ago

15 Replies

New neurologist - and he gets it!!! But Still suffering roller coaster during recovery :-(

I was diagnosed in May 2020 with b12 deficiency after months of agony. My regular doctor blew me off for 6 months and I ended up at the Cleveland Clinic...

I was diagnosed in May 2020 with b12 deficiency after months of agony. My regula...

HopetoB12better

•4 years ago

10 Replies

Side effects of injection

Hi guys! Sorry for all the questions I just want to feel better! I got my first injection yesterday. I felt fine after and then a few hours later I was...

Hi guys! Sorry for all the questions I just want to feel better! I got my first...

CDALY474

•4 years ago

3 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2020

Update as promised.

Blood test query?

Day patches

B12 questions

To swab or not to swab ?

Symptoms getting me down

Different forms of B12

Sick

Twitching

Which blood tests are required for a condition that causes hyperventilation and palpitations?

B12 GP Prescribes two adult sisters with same PA Condition an

Birth control

B12 injections stopped again

Writing to my doctor

4mm needles

Burning Calves and Leg Pain

Hydroxocobalamin injection

Sore tongue again

not painful...then agony

Fuzzy head

Cannot Remember!

Gut issues

Advice needed

New neurologist - and he gets it!!! But Still suffering roller coaster during recovery :-(

Side effects of injection

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive