Been self injecting now for 8 weeks

[Mozza127]

Please let me know .been having dodgy tummy and sweats

[Nackapan]

I get flu like symptoms without the flu at times. Keep a record

[Mozza127 in reply to Nackapan]

Ye it's weird maybe just getting my body used to it was doing every 3 weeks but my tougue stared burning half way through 3Rd weeknow. ..so every two how I lasted 12 weeks I will never know

[Nackapan in reply to Mozza127]

Sounds like everything getting ' fired up' k was on 2 weekly for a year . Every time I tried tk reduce it to 3 weeks I seemed initially to be okay then went very symptomatic again. Roller coaster. The longest gap I've had was 5 weeks right at the start after loading. I was supposed to wait 12 weeks! Hate thus having ti get worse before improvements. My head symptoms the slowest . Hoping more repair can be done. T C

[LorraineQ in reply to Nackapan]

Yes same here, I just feel awful ache all over and fuzzy head confusion mad dreams ( when I get to sleep) keep waking up every 1 1/2 all night. also my skin breaks out and mentally I don't feel great.

I was getting neo-cytamen injection every 3 months some times a little less than 3 months die to feeling so bad. But my new doctor says as my level is 600 I'm doing fine its in a good level what do others think???? I'm going to go back to him and tell him I need it.

[Nackapan in reply to LorraineQ]

Blood tests are pointless once on b12 I jections . Tour legend will be high but you need higher levels ad not all getting through to cell. About 80% of that number can be inactive.

In tour discussion concentrate on symptoms and any improvements made with Injections. Blood tests good for folate from ferritin vit d thyroid. Other minerals to make sure nothing else lacking or going on.

I'm not familiar with neo-cytamen . I have Hydroxocobalamin in the UK

[LorraineQ in reply to Nackapan]

Thats what I thought too, i get the injections because i am a coeliac i forgot to add that part

[Nackapan in reply to LorraineQ]

So absorbtion problems covered by bnf guidelines

[LorraineQ in reply to Nackapan]

what do bnf guidelines mean

[Nackapan in reply to LorraineQ]

The British National formulary guidelines or NICE guidelines . If you Google for b12 treatment.

[Bellabab in reply to LorraineQ]

See here - scroll down to see it.

bnf.nice.org.uk/drug/hydrox...

[Nackapan in reply to LorraineQ]

My surgery had neo-cytomen last visit. It I'd Hydroxocobalamin lol.

[Mozza127 in reply to LorraineQ]

My hands have been worse hit withard nerve damage. .pins and needles. .pain. and sore in morning

[Ziggyzugg]

I have noticed that since alternate day SI I can have a dodgy tum with frequent trips to the loo.

I have blamed the injections rather than B12 Def.