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Pernicious Anaemia Society

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All posts for August 2020

Naturally occurring cobalamin (B12) analogs can function as cofactors for human methylmalonyl-CoA mutase

A potentially interesting paper. I do not feel that I understand anything beyond what the highlights say. I can see that fuller understanding is desirable....

A potentially interesting paper. I do not feel that I understand anything beyo...

helvella

•4 years ago

5 Replies

B12 Injection

I have to undergo a B12 injection every 3 months. I am trying to take out travel insurance and have been asked if my Haemoglobin level is above 80g per......

I have to undergo a B12 injection every 3 months. I am trying to take out trave...

Hidden

•4 years ago

5 Replies

Asking a couple of questions- thank you ☺️

Hi everyone and thank you for having me. New here .. I have a question.. low B12 lots of bad symptoms.. started injections almost 7 weeks ago. I still have...

Hi everyone and thank you for having me. New here .. I have a question.. low B12...

Rex2020

•4 years ago

12 Replies

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Should a B12 injection be given slowly ?

Hi all, i have my B12 injection every 8 weeks, just recently when having i have noticed that nurses give the injection slowly and others seem to inject me in...

Hi all, i have my B12 injection every 8 weeks, just recently when having i have ...

Hidden

•4 years ago

4 Replies

Weird (heart) healing symptoms - any one else?

I was very ill at the time I Realized that I had pernicious anemia. I had to take two injections daily - 2mg hydroxycobalamin total - and still do. Like a lot...

I was very ill at the time I Realized that I had pernicious anemia. I had to tak...

Kerrierach

•4 years ago

11 Replies

B12 frequency

hi, I have PA for over 15 years and was advised to have injections every 8 weeks but over the last few years its not enough ans I wanted to try and gauge how...

hi, I have PA for over 15 years and was advised to have injections every 8 weeks...

Tch77

•4 years ago

2 Replies

Does anyone use these brands ?

I have two boxes I had got from my doctors one is neocytamen and the other cobalamin-H . Iv never used either of these and want to use them out before they go...

I have two boxes I had got from my doctors one is neocytamen and the other cobal...

Andypandy30

•4 years ago

4 Replies

Strange praise

I went to the surgery today to have an IM b12 injection. The nurse was very animated and praised me for going 6 weeks. Got me thinking why are we given the...

I went to the surgery today to have an IM b12 injection. The nurse was very anim...

Nackapan

•4 years ago

18 Replies

First time self injecting

I’ve just done my first jab (IM) on my own! I’m allowed them every 8 weeks at GP’s but can feel the effects a few weeks before, so had decided that if they...

I’ve just done my first jab (IM) on my own! I’m allowed them every 8 weeks at G...

Cinders70

•4 years ago

3 Replies

Intrinsic what?

Well, I got the blood test results back and it appears I no longer have a B12 deficiency, the figure having risen from 121 to 173 with the help of injections...

Well, I got the blood test results back and it appears I no longer have a B12 de...

MissKota

•4 years ago

15 Replies

Could someone interpret my blood test results, please?

Finally got my GP to email me my blood test results -- been waiting for a consultation about it since February/March but I've decided that I may go to a...

Finally got my GP to email me my blood test results -- been waiting for a consul...

Mark2974

•4 years ago

2 Replies

Buying b12 ampules

Can anyone send me a reputable link to buy b12 ampules please tia

Ashp24

•4 years ago

5 Replies

Still waiting on B12 injections resuming

Hi I normally get my B12 every 3 months. The last one was in February. I spoke to the surgery who put me through to the triage nurse just prior to the May...

Hi I normally get my B12 every 3 months. The last one was in February. I spoke ...

Evo25

•4 years ago

7 Replies

Confused!

Hi All My injections were stopped when my surgery closed due to Covid! Like others, I was prescribed 50ml b12 tablets twice daily. I became ill and was given a...

Hi All My injections were stopped when my surgery closed due to Covid! Like othe...

Alfabeta

•4 years ago

5 Replies

Worse before better / breathlessness

Hello, Since March I have felt out of breath. I thought it was covid, then thought it was anxiety, then finally went for a blood test which revealed while all...

Hello, Since March I have felt out of breath. I thought it was covid, then thoug...

katamarang

•4 years ago

26 Replies

Excess B12 Injections

Hello, A bit of background- I was diagnosed a B12 deficiency when was traveling India last year. Before I came home to the UK, I bought some B12 shots over...

Hello, A bit of background- I was diagnosed a B12 deficiency when was traveli...

graciefac

•4 years ago

6 Replies

iron's role in B12 injections

Could I ask your opinion please on iron? There are two conflicting views: B12 injections bring down iron levels and B12 will help absorption of iron and...

Could I ask your opinion please on iron? There are two conflicting views: B12 in...

Kerrierach

•4 years ago

14 Replies

B12 injections not working??

Have had b12 deficiency for several years. Drs have finally diagnosed this and I Have had 2 weeks of injections every other day and now on weekly injections....

Have had b12 deficiency for several years. Drs have finally diagnosed this and I...

Moby13

•4 years ago

13 Replies

Can pernicious anemia cause sudden, severe diarrhea?

Hi everyone, very recently diagnosed with P.A. and have had 7 injections so far (hydroxoco, 1mg). For weeks before I started the injections, and for a while...

Hi everyone, very recently diagnosed with P.A. and have had 7 injections so far ...

Hedgehog235

•4 years ago

12 Replies

Burning Mouth??

Has anyone experienced a burning mouth? I have B12 injections every 10 weeks and since the middle of May have had a burning mouth - on my tongue and roof of...

Has anyone experienced a burning mouth? I have B12 injections every 10 weeks an...

Colb53

•4 years ago

7 Replies

Home blood testing

Has anyone found home blood testing finger prick tests to be any less accurate than venous samples please? I've just found that Superdrug offer a good value...

Has anyone found home blood testing finger prick tests to be any less accurate t...

Bunny12345678

•4 years ago

7 Replies

ordering B12 ampules

Hi ... can anyone kindly help me please.. Trying to order b12 ampules. The site in Germany is not allowing me to transcribe to English, not happy to order what...

Hi ... can anyone kindly help me please.. Trying to order b12 ampules. The site ...

maypole66

•4 years ago

11 Replies

B12 Party?

F.Y.I., I found this online and I'm not sure what to think about it. It kind of made me chuckle, only the the US could this be a thing. Arizona is a state in...

F.Y.I., I found this online and I'm not sure what to think about it. It kind of...

MoKayD

•4 years ago

12 Replies

Help Please

Has anyone ever started a petition with parliament? I just found this https://petition.parliament.uk/ and started typing one, but then read that you need 5...

Has anyone ever started a petition with parliament? I just found this https://pe...

auntieb

•4 years ago

12 Replies

Painfull Mouth

For the last several months my mouth hurts so bad, I was deficient in iron and B12 severly I have been taking my supplements every day. But the pain in my...

For the last several months my mouth hurts so bad, I was deficient in iron and B...

HMBradley53

•4 years ago

6 Replies

Buying methylocobalamin Injections.

Can I ask does anyone buy this and where do they buy it from? I currently take hydroxocobalamin, I inject daily. My sister has just been diagnosed with PA like...

Can I ask does anyone buy this and where do they buy it from? I currently take h...

PhilAB

•4 years ago

6 Replies

Anybody experience Hypokalemia on B12 injections?

Asking as I already have atrial fibrillation (ablated 2017) and have been having increased ectopics since the start of 20. However, since starting injections...

Asking as I already have atrial fibrillation (ablated 2017) and have been having...

DaveT81

•4 years ago

20 Replies

B12 Readings

Hi New here, Based in Ireland, Just wondering on what is considered a low reading, i had a reading of 320 & GP said B12 is normal, however i have a lot of...

Hi New here, Based in Ireland, Just wondering on what is considered a low readi...

Mel4857

•4 years ago

3 Replies

B12 loading injections

Hi there, just wondering? I’ve had B12 deficiency since 1983. (Total non absorption due to Crohn’s surgery) My last loading dose of B12 was in 2001 followed...

Hi there, just wondering? I’ve had B12 deficiency since 1983. (Total non absorp...

B12_crohnie

•4 years ago

2 Replies

Breathlessness

Really breathless all the time, anyone else have this?

Hayley31

•4 years ago

26 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for August 2020

Naturally occurring cobalamin (B12) analogs can function as cofactors for human methylmalonyl-CoA mutase

B12 Injection

Asking a couple of questions- thank you ☺️

Should a B12 injection be given slowly ?

Weird (heart) healing symptoms - any one else?

B12 frequency

Does anyone use these brands ?

Strange praise

First time self injecting

Intrinsic what?

Could someone interpret my blood test results, please?

Buying b12 ampules

Still waiting on B12 injections resuming

Confused!

Worse before better / breathlessness

Excess B12 Injections

iron's role in B12 injections

B12 injections not working??

Can pernicious anemia cause sudden, severe diarrhea?

Burning Mouth??

Home blood testing

ordering B12 ampules

B12 Party?

Help Please

Painfull Mouth

Buying methylocobalamin Injections.

Anybody experience Hypokalemia on B12 injections?

B12 Readings

B12 loading injections

Breathlessness

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive