Great support

[Ziggyzugg]

It great to have all your support during these difficult days. It's hard to get across how totally devastating the fatigue is to those who don't know. Great forum.

[Nackapan]

Yes it's such a debilitating chronic fatigue thars very hard to explain. As is all the other symptoms . I'm a retired health worker (Nhs N.N) after 36yrs. So all my 'contacts' are being told too.

Some give the injections and are taught to give the injection but know little of the condition. Hardly surprising when a friend recently retired from being a Gp has asked if I'm off the Injections now!! 🤷‍♂️He was in the same of 'you will be skipping down the road after a few injections. '

I'm still not skipping!

So yes within your circle of colleagues spread the word. Especially about getting it on the blood form so people have a baseline of what the level is when well. Then surely that will help in early treatment ans on a individual basis. A start! I've got it on the agenda at my surgery. I know how slow any change takes.

Hope you improve . Welcome to the forum.

[Cherylclaire Forum Support]

Some good news:

I used to have to sleep a lot in order to exist at all. 14/15 hours sometimes, or crashing onto the sofa exhausted after doing the shopping and sleeping for 3 hours in the afternoon. I task a day -often just to the local library and back, as I didn't have a computer then and needed contact with this forum as a lifeline. Forcing myself to do ordinary things I couldn't really manage, due to lack of strength: grate a carrot, mash potatoes, stand without support in queue at bus-stop. Couldn't see how to get better -or even stop getting worse.

Now: no naps at all, sleep at night for about 10 hours, and actually look forward to and enjoy whole days out, now everything doesn't feel like a chore. Not symptom-free, not as I was, but a relief to have got this far.

It can happen. It takes a while and to me, it felt like forever. But it's getting better and I'm keeping it !

[wedgewood in reply to Cherylclaire]

It’s great to hear that . Brilliant ? Good for people who are still struggling t hear .

[Cherylclaire Forum Support in reply to wedgewood]

Hope so. wedgewood

[Ziggyzugg in reply to Cherylclaire]

Yes, thank you. It is so reassuring when you are being proactive with SI but seeing little appreciable improvement. Although my wife says I am falling asleep less during conversations! Another question which I am sure has been covered elsewhere, what does the PA forum consider a B12 deficient serum level. I am aware the BHS guidance mentions below 147 but this is certainly not what Sally Pacholok thinks. If I am to challenge GPs I need some evidence. My GP said my level of 107 was only a "bit" low, he was of the belief above 150 was OK. As always your experienced opinion is greatly appreciated