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Pernicious Anaemia Society

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All posts for February 2019

A useful app for tracking PA symptoms

Hi all I was diagnosed with PA six months ago. After many doctor visits have finally received a prescription for enough doses of B12 to last six months self...

Hi all I was diagnosed with PA six months ago. After many doctor visits have fi...

Greena51

•5 years ago

2 Replies

Restarting loading doses?

Hi, I started 6 loading doses last June after B12 came back at 89, and then on 3 monthly injections. Drs retested B12 as I was still feeling awful in November...

Hi, I started 6 loading doses last June after B12 came back at 89, and then on 3...

H212312

•5 years ago

3 Replies

Review on B12 with my Gp

Does anyone have any idea if I should ask for another blood test regarding B12 issues, I feel like the injection does not last long enough, I get a top up...

Does anyone have any idea if I should ask for another blood test regarding B12 i...

Cb1963

•5 years ago

3 Replies

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Opinions please on b12 and anaesthetic

Hi everyone, I am due to have surgery soon, and it could be as much as 12 hours. I asked my surgeon to check my b12 along with other bloods he was...

Hi everyone, I am due to have surgery soon, and it could be as much as 12 hours....

Kay1986

•5 years ago

24 Replies

B12 ampoules to buy

I’ve been on B12 hydroxocobalamine injections since 2005 after contracting a “virus” in hospital for a minor procedure in 2000. My GP ignored me for 5 years...

I’ve been on B12 hydroxocobalamine injections since 2005 after contracting a “vi...

Efalump

•5 years ago

1 Reply

Advice please on different forms b12

Hi there just finished my last loading dose 4 weeks ago was on the cyno shots, still quite tired and have heaviness in legs arms etc, have read that cyno not...

Hi there just finished my last loading dose 4 weeks ago was on the cyno shots, s...

sbadd

•5 years ago

5 Replies

An example of a good article on research studies

Whilst the subject matter of this article is off topic for the forum - about artificial sweetners - I think it is a good example of what to look for in a...

Whilst the subject matter of this article is off topic for the forum - about art...

Gambit62

Administrator•5 years ago

1 Reply

Zinging!

Hi All I have started to develop a ‘zinging’ sensation like low level pins and needles on my cheeks, around my mouth, neck, arms hand and the back of my legs....

Hi All I have started to develop a ‘zinging’ sensation like low level pins and n...

Alfabeta

•5 years ago

3 Replies

Did I inject air bubbles into a vein?

I've been doing b12 Injections for awhile now but today was new. There's redness underneath, with pain that moves around after the injection. I did the...

I've been doing b12 Injections for awhile now but today was new. There's redness...

Sirclaxr

•5 years ago

4 Replies

PA testing

What sort of specialist would you see to have test for PA?

Sunnydevon

•5 years ago

6 Replies

Can I replace 10 weekly injections with 1000micro gram tablets daily.A PMJ paper from 2003 suggested this was efficacious.

Recently been encountering resistance to getting injections at 9 to 10 weeks intervals. A Med professional (retired) dug out the paper "Oral vitamin B can...

Recently been encountering resistance to getting injections at 9 to 10 weeks int...

RonnyP

•5 years ago

6 Replies

Just started self injecting B12 (methylcobalamin form) -- how often should I do it?

I finally got everything I needed to begin self-injecting B12 (I just don't have the strength to face the uphill battle with the doctor at the moment, so just...

I finally got everything I needed to begin self-injecting B12 (I just don't have...

AmethystTrask

•5 years ago

8 Replies

Atrophic Gastritis

Can you have Atrophic Gastritis without having Pernicious anemia?

Sunnydevon

•5 years ago

16 Replies

legs ache 24/7 after 6 years shots

I had very low B12 6 years ago, to the point that I had muscle wasting in my calves. I found a doc who prescribed weekly shots and my legs came back with...

I had very low B12 6 years ago, to the point that I had muscle wasting in my cal...

pejka62

•5 years ago

2 Replies

help re: cracked / sore lips

HI My Mum has very sore / dry / deep cracked lips (in particular the bottom one both inside her mouth and outside) as a result of the pernicious anemia - she...

HI My Mum has very sore / dry / deep cracked lips (in particular the bottom one...

0000000000000000

•5 years ago

7 Replies

Blood tests

Please see attached some recent private blood tests I had . I have made an appointment with my GP Is there anything I should be flagging up or does anyone...

Please see attached some recent private blood tests I had . I have made an appoi...

TJSTICKYBLOOD

•5 years ago

3 Replies

PA / Low iron early stages with NHS - advice please

Hi all, Thank you for creating such an informative and supporting PA community here! I wonder if anyone can weigh in on my scenario please. I’m new here so...

Hi all, Thank you for creating such an informative and supporting PA community h...

youngatheart123

•5 years ago

6 Replies

How does this happen?

I just got my test results back after an 11 injection load. IIt said the serum b12 was OVER. 2000. I know it’s clincally unimportant because all it means is...

I just got my test results back after an 11 injection load. IIt said the serum ...

Freezeframe

•5 years ago

4 Replies

PA testing

Hi there, I saw an endocrinologist last summer and in his letter to my gp said he thought I may have a second autoimmune disease by definition as my b12 levels...

Hi there, I saw an endocrinologist last summer and in his letter to my gp said h...

Sunnydevon

•5 years ago

7 Replies

Me again.... update, partly positive / partly negative?! Not understanding or supportive no further tests, but will 'try' another jab....

Hello again from the off-piste Gloucestershire, thank you all for advice and solidarity so far... So, heard back from my GP, who had been willing at least to...

Hello again from the off-piste Gloucestershire, thank you all for advice and sol...

eclilley

•5 years ago

10 Replies

B12 injection causing Changes to periods?

I have just called for a Doctors appointment with the only Doctor in my surgery that seems to know anything about B12, and I cant get an appointment until 11th...

I have just called for a Doctors appointment with the only Doctor in my surgery ...

Itchyislander

•5 years ago

8 Replies

As b12 defiency caused migrains can it cure them?

I've stated a new post to follow my consult with neurologist yesterday. He thought my present symptoms are from migrains silent or otherwise. Every day...

I've stated a new post to follow my consult with neurologist yesterday. He thoug...

Nackapan

•5 years ago

16 Replies

A little advice please as confused

Had a b12 blood test first one 124 level the next 156 is this a normal level Thank you in advance

Had a b12 blood test first one 124 level the next 156 is this a normal level Th...

Swiftmountains

•5 years ago

20 Replies

Is there a link between b12 deficiency and Fibromyalgia?

Hi all, Does anyone know if b12 deficiency can lead to Fibromalgia symptoms? I only ask as I have been getting pains in the most of the areas linked to...

Hi all, Does anyone know if b12 deficiency can lead to Fibromalgia symptoms? I o...

Jessie8

•5 years ago

11 Replies

Still Have Dizziness and Tinnitus

Hi everyone, I’ve been on this forum for a year and a half. I’m still experiencing dizziness and tinnitus. Last time I had my B12 level checked, it was pretty...

Hi everyone, I’ve been on this forum for a year and a half. I’m still experienci...

terrybraden

•5 years ago

8 Replies

Help with neuro questions

I was diagnosed with b12 deficiency in November when a facial twitch turned into a legs and whole body twitching. I never had the neuropathy but recently I’ve...

I was diagnosed with b12 deficiency in November when a facial twitch turned into...

Jcallag02

•5 years ago

1 Reply

Help B12 levels after loading dose and follow up treatment

In Nov 18 I presented to my GP, anxiety, extreme tiredness, pins and needles in hands, extremely cold, ibs, headaches, brain fog. My blood tests revealed B12...

In Nov 18 I presented to my GP, anxiety, extreme tiredness, pins and needles in ...

GJOW

•5 years ago

7 Replies

how long can it take b12 fatigue to correct

hi all, as per previous posts symptoms have slowly slowly improved. you will also notice i’ve been using b complex only so no injections (i’ve noticed people...

hi all, as per previous posts symptoms have slowly slowly improved. you will als...

WilfriedZaha

•5 years ago

4 Replies

Iodine def. and b12, has anyone experienced this please?

Hi, I've discovered a severe iodine deficiency and am wondering if anyone can recommend an iodine supplement please? I have a functional b12 def. and have...

Hi, I've discovered a severe iodine deficiency and am wondering if anyone can r...

Jo5454

•5 years ago

18 Replies

B12 and Hair Loss (Fixed) ?

I’ll do a short post. Any male notice reversal of Male Hair Loss (Baldness) with B12 injections. I’m 42 and I’m last few years my hair got very thin as in...

I’ll do a short post. Any male notice reversal of Male Hair Loss (Baldness) with...

Ryaan

•5 years ago

11 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All things Pernicious Anaemia Society(76)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2019

A useful app for tracking PA symptoms

Restarting loading doses?

Review on B12 with my Gp

Opinions please on b12 and anaesthetic

B12 ampoules to buy

Advice please on different forms b12

An example of a good article on research studies

Zinging!

Did I inject air bubbles into a vein?

PA testing

Can I replace 10 weekly injections with 1000micro gram tablets daily.A PMJ paper from 2003 suggested this was efficacious.

Just started self injecting B12 (methylcobalamin form) -- how often should I do it?

Atrophic Gastritis

legs ache 24/7 after 6 years shots

help re: cracked / sore lips

Blood tests

PA / Low iron early stages with NHS - advice please

How does this happen?

PA testing

Me again.... update, partly positive / partly negative?! Not understanding or supportive no further tests, but will 'try' another jab....

B12 injection causing Changes to periods?

As b12 defiency caused migrains can it cure them?

A little advice please as confused

Is there a link between b12 deficiency and Fibromyalgia?

Still Have Dizziness and Tinnitus

Help with neuro questions

Help B12 levels after loading dose and follow up treatment

how long can it take b12 fatigue to correct

Iodine def. and b12, has anyone experienced this please?

B12 and Hair Loss (Fixed) ?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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