Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,952 members • 23,093 posts

All posts for February 2019

Treatment post Loading doses

Thanks to the wise advice I have been able to learn from here and take to my GP, my PA has been treated so far with x6 loading doses every other day followed...

Thanks to the wise advice I have been able to learn from here and take to my GP,...

Hambledonia

•5 years ago

11 Replies

Pica

I thought I didn’t have this symptom until I read that it can apply to ice. I’m interested to know who else finds this? Just curiosity really. I don’t eat...

I thought I didn’t have this symptom until I read that it can apply to ice. I’m...

AmyG6500

•5 years ago

8 Replies

Folic Acid 5mg too much?

Hello, My doctor prescribed me 5mg folic acid for 4 months because my red cell folate was low 221nmol/l out of 285-1474. My serum folate was 4.9ug/L out of...

Hello, My doctor prescribed me 5mg folic acid for 4 months because my red cell f...

GastritisB12

•5 years ago

6 Replies

Want to take advantage of all our features? Just log in!

Daily Message - HU having problems

HU are working on a glytch that is stopping the daily message go out - Only 14% went out yesterday and they are still working to resolve the problem This post...

HU are working on a glytch that is stopping the daily message go out - Only 14% ...

Gambit62

Administrator•5 years ago

Diagnosis issues

Hi, I have had a history of b12 def in pregnancy 23 years ago. My levels were at 700 when tasted in 2011 without having had a b12 injection for 5 years...

Hi, I have had a history of b12 def in pregnancy 23 years ago. My levels were at...

Numbsew

•5 years ago

5 Replies

How much folate?

I am trying to figure out how much folate I should be taking daily. I also am confused with folic acid/folate and mg/mcg dosing. My current b complex vitamin...

I am trying to figure out how much folate I should be taking daily. I also am c...

shaylynn

•5 years ago

6 Replies

B12 in normal range

Hi all, I have been suffering from a b12 deficiency for 10 years. I have a family history of pernicious anemia and have had chronic gastritis in the past. I...

Hi all, I have been suffering from a b12 deficiency for 10 years. I have a famil...

Rkb12

•5 years ago

6 Replies

Confused about symptoms

I self inject B12 once a week. In the last few months I have been feeling really run down, same symptoms I get with B12 deficiency. Tiredness, brain fog, low...

I self inject B12 once a week. In the last few months I have been feeling really...

Hayley31

•5 years ago

7 Replies

b 12 pro but no cons

I get my b12 from Germany syringes from boots b12 cost 10quid syringe free..I been looking on net and 150quid + see private doc you have to and over 150quid...

I get my b12 from Germany syringes from boots b12 cost 10quid syringe free..I be...

Ken-ard20

•5 years ago

25 Replies

Brexit and medication

I understand most of our meds thyroxin inperticuarly will be coming from Far East They can spend up to two years hanging around before get here.Going through...

I understand most of our meds thyroxin inperticuarly will be coming from Far Ea...

Ken-ard20

•5 years ago

1 Reply

B12 needs to stay in my body

So i had weight loss surgery in 2014 and now my body doesnt allow b12 in my system.. So i have to take 2 ml every week. Then my blood work came back in the...

So i had weight loss surgery in 2014 and now my body doesnt allow b12 in my syst...

Sexysnowbunnie

•5 years ago

1 Reply

B12 injections what type

I would like to know what type of b12 injection people are given. My integrative practitioner mentioned that I should have one as I have so many symptoms of...

I would like to know what type of b12 injection people are given. My integrativ...

Tempe1

•5 years ago

4 Replies

Is this my pernicious anemia declining?

I’ve been having a lot of symptoms recently and I’m wondering if they are PA related. For months I’ve been having dizziness, particularly when I’m doing...

I’ve been having a lot of symptoms recently and I’m wondering if they are PA rel...

megleigh17

•5 years ago

5 Replies

Follow-Up from Naturopathic Doc

Opinions! So I went to a naturopathic doctor on Thursday after finding that my Cyano injections didn’t seem to be helping my symptoms (despite having them...

Opinions! So I went to a naturopathic doctor on Thursday after finding that my C...

kjl3

•5 years ago

17 Replies

Help with supplementing please

Hi all, I have popped over from the thyroid UK forum. I am newly diagnosed with Hashimoto’s and hypothyroidism. I’m feeling very tired with brain fog and...

Hi all, I have popped over from the thyroid UK forum. I am newly diagnosed wit...

Redrosegirlie

•5 years ago

7 Replies

My story of self assessment.

Hi to everyone on this pas site, this is my first contribution of information after reading blogs for approx two years now, Im in the Uk and although my...

Hi to everyone on this pas site, this is my first contribution of information af...

Phil8k

•5 years ago

2 Replies

Tablets

Hi All, I started taking these cyan b12 tablets as doctors didn't want to give me injections as my b12 Still is ok but I have symptoms and wanted to do...

Hi All, I started taking these cyan b12 tablets as doctors didn't want to give m...

Emmapemma

•5 years ago

5 Replies

Is b12 1400 while supplemetnig normal?? Please help, worried

Hi dear people, my dad has been fighting with anxiety, depression, panic disorder....for a long time. After reading online we have suspected that his symptoms...

Hi dear people, my dad has been fighting with anxiety, depression, panic disorde...

Musicmochi

•5 years ago

3 Replies

Weird feeling in arm

Has anyone experienced what feels like a ‘heavy arm’ ..my right arm feels super heavy and it seems to take a lot of concentration to move it, weird feeling and...

Has anyone experienced what feels like a ‘heavy arm’ ..my right arm feels super ...

kjl3

•5 years ago

1 Reply

IM lnjection

Hello all. I'm looking for some advice regarding intra muscular injections. I've been diagnosed with PA for about four years now and my (non medically trained)...

Hello all. I'm looking for some advice regarding intra muscular injections. I've...

MarMcL

•5 years ago

9 Replies

Lab results 2 of cont. from last post

These are non-fasting. Although i wonder if it would’ve made a difference. Just a recap, b12 levels were 364 pg/ml (range: 211-911) on 5/12/17 and 671 ng/ml...

These are non-fasting. Although i wonder if it would’ve made a difference. Just...

JennaShi

•5 years ago

2 Replies

B12 deficiency

Hi All I was diagnosed as b12 deficient over 6 years ago. I have been reading blogs and their answers for most of that time and I have not found any...

Hi All I was diagnosed as b12 deficient over 6 years ago. I have been reading bl...

Alfabeta

•5 years ago

9 Replies

B12 deficiency and hyperthyroidism: a double whammy?

I’m curious to know whether anyone has these two conditions and whether they’ve noticed symptom similarities? And how have their doctors and specialists dealt...

I’m curious to know whether anyone has these two conditions and whether they’ve ...

CyclingDog

•5 years ago

11 Replies

PA in the United States - order Methylcobalamin online!

I have seen many threads here with people asking where they can safely purchase methylcobalamin and hydroxocobalamin online. I tried the German location...

I have seen many threads here with people asking where they can safely purchase ...

MightyK

•5 years ago

2 Replies

Getting b12

People worried about b12 .I to worried about getting supplys but not only b12 quite a few things are problematic some arthritis meds hydrocortisone creams etc...

People worried about b12 .I to worried about getting supplys but not only b12 qu...

Ken-ard20

•5 years ago

10 Replies

Alcohol and b12

Does anyone find alcohol has a different effect on them when injecting B12? Is it ok to drink it occasionally? Thank you

Does anyone find alcohol has a different effect on them when injecting B12? Is i...

Numbsew

•5 years ago

8 Replies

Dentures

This is a bit of an odd one, and in some ways I can’t believe I am asking this. I have dentures and I have too use a fixative as I have very little jaw bone...

This is a bit of an odd one, and in some ways I can’t believe I am asking this. ...

Patjamber

•5 years ago

27 Replies

GP & being given a hard time getting jabs - over a blood test

Hi, well today as predicted, I was phoned & told I have really high B12 & to come in & see the GP! I have an appointment with the nicer one on the 12th anyway,...

Hi, well today as predicted, I was phoned & told I have really high B12 & to com...

scorpiojo

•5 years ago

4 Replies

Anyone else have hoarseness and/or GORD with B12 neuropathy? Vagal nerve problems?

Around the same time my peripheral neuropathy started I developed a weakness in my voice and also reflux which I never had before. I was wondering if any of...

Around the same time my peripheral neuropathy started I developed a weakness in ...

aksundell

•5 years ago

1 Reply

B12/Vit D and heart rate

Anyone else notice a change in heart rate with these deficiencies? My heart rate speeds up more than normal when I’m up moving around. But will go back down...

Anyone else notice a change in heart rate with these deficiencies? My heart rate...

dingusgirl

•5 years ago

9 Replies

Search posts

Pinned Posts

See all

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

Latest poll

See all polls

How Often do you feel you actually need your B12 injection?

Vote

Topics

All posts(75)

All things Pernicious Anaemia Society(75)

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2019

Treatment post Loading doses

Pica

Folic Acid 5mg too much?

Daily Message - HU having problems

Diagnosis issues

How much folate?

B12 in normal range

Confused about symptoms

b 12 pro but no cons

Brexit and medication

B12 needs to stay in my body

B12 injections what type

Is this my pernicious anemia declining?

Follow-Up from Naturopathic Doc

Help with supplementing please

My story of self assessment.

Tablets

Is b12 1400 while supplemetnig normal?? Please help, worried

Weird feeling in arm

IM lnjection

Lab results 2 of cont. from last post

B12 deficiency

B12 deficiency and hyperthyroidism: a double whammy?

PA in the United States - order Methylcobalamin online!

Getting b12

Alcohol and b12

Dentures

GP & being given a hard time getting jabs - over a blood test

Anyone else have hoarseness and/or GORD with B12 neuropathy? Vagal nerve problems?

B12/Vit D and heart rate

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive