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Pernicious Anaemia Society

31,952 members • 23,094 posts

All posts for February 2019

Interesting MMA and Homocysteine results!

My HOMOCYSTEINE 11.4 H and METHYLMALONIC ACID 97 (87-318 nmol/L) I understand that with high MMA means that I have B12 deficiency but that is not the case...

My HOMOCYSTEINE 11.4 H and METHYLMALONIC ACID 97 (87-318 nmol/L) I understand th...

itsnotl

•5 years ago

2 Replies

B12 stopped

I had a call from my GP yesterday.The haematologist has told him that I don’t have PA and to stop my injections. This is despite the fact that i...

I had a call from my GP yesterday.The haematologist has told him that I don’t ...

Numbsew

•5 years ago

11 Replies

B12 supply

Hi. Just did my last b12 injection today. Wondering where does everyone order theirs from? Already had a look at previous posts buy most of the websites dont...

Hi. Just did my last b12 injection today. Wondering where does everyone order th...

Gumball77

•5 years ago

13 Replies

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Not sure where to ask this question...

... but seeing as I have PA I'll post it here for now. I'm sure the same question has been covered elsewhere in this goldmine of a forum but until I get my...

... but seeing as I have PA I'll post it here for now. I'm sure the same questio...

Emjaytee

•5 years ago

9 Replies

MMA Test - Urine or Blood Best?

Hi everyone. I have come over from thyroid uk, as I am desperately searching for an answer to my mum's deteriorating health. She has graves disease, confirmed...

Hi everyone. I have come over from thyroid uk, as I am desperately searching for...

arcticsun

•5 years ago

3 Replies

Vertigo?

Hi it’s been a while since I wrote as I’m fed up complaining my moods energy levels are at an all Time low had my shot last week so waiting for the miracle,...

Hi it’s been a while since I wrote as I’m fed up complaining my moods energy lev...

Amth

•5 years ago

5 Replies

Self inject

Help can any one please tell me where I can buy B12 to self inject and what quantity I should be using many thanks Robert 50

Help can any one please tell me where I can buy B12 to self inject and what quan...

Robert50

•5 years ago

4 Replies

Intolerance test

Hi, i have sent off hair samples for a complete intolerance test as doctors will not test me for allergies as like looking for needle in haystack. Has anyone...

Hi, i have sent off hair samples for a complete intolerance test as doctors will...

Tal1

•5 years ago

1 Reply

Stomach acid

Hi i have PA JUST HAD endoscopy and told I have an inflammed stomach, doc given me acid inhibiter, but when I do sofa test it comes back I have low acid, very...

Hi i have PA JUST HAD endoscopy and told I have an inflammed stomach, doc given ...

ollie7horse

•5 years ago

12 Replies

Versando Ordering ... What is New?

Hi Everyone, Just wondering what the latest is on Versando as my ampule supplies are running down and even though I am OK for a few weeks or more I am sort of...

Hi Everyone, Just wondering what the latest is on Versando as my ampule supplies...

Catsgalour

•5 years ago

11 Replies

Blood results

I have symptoms of PA\\b12 deficiency - I have Hashimotos, vitiligo and am coeliac, I believe an aunt had PA but am estranged from the rest of my family. I...

I have symptoms of PA\\b12 deficiency - I have Hashimotos, vitiligo and am coeli...

ollymummy

•5 years ago

2 Replies

Trying to decipher symptoms

Hello. Since seeing second neurologist I'm trying to distinguish what symptoms belong to which problem. The first neurologist thoughts were demyelination of...

Hello. Since seeing second neurologist I'm trying to distinguish what symptoms b...

Nackapan

•5 years ago

6 Replies

B12 STOPPED

I am in shock to suddenly discover that my B12 injections have been stopped AGAIN, this happened two years ago and with help from the Pernicious Society the...

I am in shock to suddenly discover that my B12 injections have been stopped AGAI...

pembrokeshire

•5 years ago

11 Replies

Any significance in consistently low neutrophils since last July?

Hi guys, Been suffering with a whole list of weird symptoms since last July - breathing problems (24/7, worse on exertion), new digestive issues that include...

Hi guys, Been suffering with a whole list of weird symptoms since last July - b...

DaveT81

•5 years ago

1 Reply

Pernicious anaemia diagnosis

I have low ferritin, low folate, low hb, low b12, positive partial antibody screen but negative intrinsic factor screen. GP says it is not pernicious anaemia...

I have low ferritin, low folate, low hb, low b12, positive partial antibody scre...

Ferrett1

•5 years ago

2 Replies

p.a/b12 def any link to lung disease ?

Hi,all out there,as a sufferer of b12 def and p.a is anyone aware that b12 def/p.a could be linked to lung disease at all,I’ve recently been diagnosed with...

Hi,all out there,as a sufferer of b12 def and p.a is anyone aware that b12 def/p...

fenty

•5 years ago

2 Replies

Vitamin D If taken late in day does it impact sleep

I try to take my vitamin D with my fattiest meal of the day but sometime I forget and don't realise until late afternoon so I skip the dose. Does vitamin D...

I try to take my vitamin D with my fattiest meal of the day but sometime I forge...

carer999

•5 years ago

2 Replies

B12 or shingles?

For the past 5 or 6 days I've had a very sore area of skin around my shoulder blade and extending under my armpit on one side. It feels kind of like bad...

For the past 5 or 6 days I've had a very sore area of skin around my shoulder bl...

BlackInk

•5 years ago

12 Replies

Newby

Hi my first day here. I was diagnosed with PA approx 10 yrs ago. I had regular injections, monthly then three monthly but they stopped abruptly at age 50. I...

Hi my first day here. I was diagnosed with PA approx 10 yrs ago. I had regular i...

Hidden

•5 years ago

7 Replies

Trying to order B12 online but I need to speak with physician?

So I saw a list around here and was trying to get some hydroxocobalamin shots. Two places I check are goldpharma and ushcgshots and both seems to require me to...

So I saw a list around here and was trying to get some hydroxocobalamin shots. T...

itsnotl

•5 years ago

2 Replies

Feeling worse after B12 jab 18 months down the line?

Hi all, just wondering if anyone has experienced feeling worse after some B12 jabs and better on others, even after being on them a while? I've been having...

Hi all, just wondering if anyone has experienced feeling worse after some B12 ja...

Alesia

•5 years ago

4 Replies

Gastritis Hashimotos Omeprozale?

After having my Hysterectomy almost 3 yrs ago,i started suffering from a heavy bloated stomach and inflamed bladder.I put it down to the healing process, as it...

After having my Hysterectomy almost 3 yrs ago,i started suffering from a heavy b...

Debzeewestmids

•5 years ago

1 Reply

B12 and Vit C interaction...

Hello, I haven't posted in a long time but continue to read and learn here frequently and think this is probably the best place to look for an answer to my...

Hello, I haven't posted in a long time but continue to read and learn here frequ...

Emjaytee

•5 years ago

13 Replies

Omeprazole & PA - B12 - Folate

Hello again all. I've got Martyn Hooper's books plus some others I've downloaded onto my Kindle app. I've got such a lot going on personally at the moment...

Hello again all. I've got Martyn Hooper's books plus some others I've downloade...

Ritchie1268

•5 years ago

17 Replies

Low iron high cholesterol

Does anyone know if low iron causes high cholesterol? My cholesterol is very high after taking 40 mgs of statins a day. Just found out my iron is low. I...

Does anyone know if low iron causes high cholesterol? My cholesterol is very ...

mikeymeany

•5 years ago

3 Replies

Told no need fo further injections Advice on B12 supplements please

In Nov 18 I presented to my GP, anxiety, extreme tiredness, pins and needles in hands, extremely cold, ibs, headaches, brain fog. My blood tests revealed B12...

In Nov 18 I presented to my GP, anxiety, extreme tiredness, pins and needles in ...

GJOW

•5 years ago

5 Replies

Brain Fog

How do you deal with Brain Fog? After my initial loading jabs my brain fog disappeared and I was back to being able to think, spell, read etc. I've since had a...

How do you deal with Brain Fog? After my initial loading jabs my brain fog disap...

Itchyislander

•5 years ago

16 Replies

Trying my GP again

Hi l am fairly new to the site but have had PA for almost 34 years and there wasn't much information back then so l have just tried my best to get on with it...

Hi l am fairly new to the site but have had PA for almost 34 years and there was...

CraftyKit

•5 years ago

13 Replies

A bit more info on Pernicious Anaemia.

Just a short explanation of Pernicious Anaemia . https://www.medichecks.com/blog/what-is-pernicious-anaemia

Just a short explanation of Pernicious Anaemia . https://www.medichecks.com/blog...

wedgewood

•5 years ago

7 Replies

Itching

Hey, I am new in here 😊 .. only had 2 of my loading injections due to have 4 more 2 ever week and then 're test.. I was wondering if anyone has suffered with...

Hey, I am new in here 😊 .. only had 2 of my loading injections due to have 4 mo...

Burt43

•5 years ago

4 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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All posts(75)

All things Pernicious Anaemia Society(75)

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2019

Interesting MMA and Homocysteine results!

B12 stopped

B12 supply

Not sure where to ask this question...

MMA Test - Urine or Blood Best?

Vertigo?

Self inject

Intolerance test

Stomach acid

Versando Ordering ... What is New?

Blood results

Trying to decipher symptoms

B12 STOPPED

Any significance in consistently low neutrophils since last July?

Pernicious anaemia diagnosis

p.a/b12 def any link to lung disease ?

Vitamin D If taken late in day does it impact sleep

B12 or shingles?

Newby

Trying to order B12 online but I need to speak with physician?

Feeling worse after B12 jab 18 months down the line?

Gastritis Hashimotos Omeprozale?

B12 and Vit C interaction...

Omeprazole & PA - B12 - Folate

Low iron high cholesterol

Told no need fo further injections Advice on B12 supplements please

Brain Fog

Trying my GP again

A bit more info on Pernicious Anaemia.

Itching

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive