Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for February 2019

Magnesium (L-Threonate)

Does anyone have experience taking magnesium along with their b12? I have been advised to take the Magnesium supplement below due to some of my symptoms. Any...

Does anyone have experience taking magnesium along with their b12? I have been a...

kjl3

•5 years ago

2 Replies

Seen neurologist

His opinion is that you can over dose on B12 and this can cause symptoms and harm. I gave him symptoms of before and now. Stated i only started improving when...

His opinion is that you can over dose on B12 and this can cause symptoms and har...

Nackapan

•5 years ago

52 Replies

High Serum B12 of 1552, does this test mean anything? I was supplementing b50 complex and b12. stopped 24hrs prior to test. do I repeat test

Hi everyone I had a serum B12 test, results were 1552 which should have been no higher than 771. I am told this is not accurate form of test. I know I am B12...

Hi everyone I had a serum B12 test, results were 1552 which should have been no ...

FixHealthNow

•5 years ago

3 Replies

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High b12 struggle goes on

Hi - thank you for all your helpful replies in the past. I have had a ct scan of liver which was normal & further liver blood tests following above range...

Hi - thank you for all your helpful replies in the past. I have had a ct scan o...

Irismay

•5 years ago

16 Replies

B12 patches

I’ll start a new thread with this as you’ve all been so helpful on my initial thread that it’s got very long. In desperation I researched B12 patches (and a...

I’ll start a new thread with this as you’ve all been so helpful on my initial th...

Dragonwalker

•5 years ago

2 Replies

Unclear diagnosis

Hi everyone My doctor told me I’m low in B12 (my level was 114) and I’ve just finished the 2 week course of 6 shots. I’ve also had a second blood test to test...

Hi everyone My doctor told me I’m low in B12 (my level was 114) and I’ve just fi...

Hidden

•5 years ago

3 Replies

Is B12 261 pmol/L while doing SI OK?

I was diagnosed low B12 last year Jan (68 pmol/L; adequacy >221). Symptoms = tiredness, peripheral neuropathy. Started SI and over the year the symptoms got...

I was diagnosed low B12 last year Jan (68 pmol/L; adequacy >221). Symptoms = tir...

Katherine_dT

•5 years ago

5 Replies

I had silver fillings

Hi everyone. new here. I had silver fillings for almost 7 years. removed them last year. ever since I had them on, my health went downward. anywhoo, I lost...

Hi everyone. new here. I had silver fillings for almost 7 years. removed them l...

FixHealthNow

•5 years ago

3 Replies

Too much iron?

Hi, Got test results back and my Folate is right at the top end, which is good? But, my Ferritin (iron store) is right at the bottom end. I must explain that...

Hi, Got test results back and my Folate is right at the top end, which is good? ...

Booblet

•5 years ago

1 Reply

Can you have PA if Haemoglobin is ok?

Just taken my daughter to gp (different one in the surgery) to discuss test results and what to do next. Coeliac negative, intrinsic factor negative. Other gp...

Just taken my daughter to gp (different one in the surgery) to discuss test resu...

Vicky2822

•5 years ago

6 Replies

Not to give folate until B12d is cured - It makes neurological symptoms worse!

Here is quote I came across today in paper on diabetes/metformin and B12d: "Folate administration prior to correcting vitamin B12 deficiency should be avoided...

Here is quote I came across today in paper on diabetes/metformin and B12d: "Fola...

No_fixed_abode

•5 years ago

14 Replies

To GP today to ask for treatment as per guidelines, questions about a few results & symptoms...?

Thank you for the really helpful info, links and advice in replies to my previous post a couple of weeks back. I had already read quite a bit about B12...

Thank you for the really helpful info, links and advice in replies to my previou...

eclilley

•5 years ago

18 Replies

How long for MCH and size of blood cells to return to normal ?

I was diagnosed with low B12 about 1 year ago and have since been having vitamin B12 injections every 12 weeks - my MCH is still marginally high and my blood...

I was diagnosed with low B12 about 1 year ago and have since been having vitamin...

KarlNorge

•5 years ago

5 Replies

Advice needed b12 injections

So 3 weeks since last loading dose, head feels better but still have heaviness in arms and legs (prior to injections did not have) also heart rate has started...

So 3 weeks since last loading dose, head feels better but still have heaviness i...

sbadd

•5 years ago

2 Replies

B12 deficiency and injection frequency.

Hi everyone, sorry in advance for the long post. For 6 plus months I’ve been have heart palpitations, night sweats and anxiety waking me up at night. My doctor...

Hi everyone, sorry in advance for the long post. For 6 plus months I’ve been hav...

Jcallag02

•5 years ago

16 Replies

Does the need for injection frequency increase?

I have tried self injecting and I seem to be better on daily injections. Does this mean I am becoming tolerant and will need to increase the frequency further...

I have tried self injecting and I seem to be better on daily injections. Does th...

Numbsew

•5 years ago

2 Replies

Chronic Cough

Morning Everyone, I have pernicious anaemia (PA) diagnosed after I presented with symptoms for several years. I am 27 and have a persistent cough - I had the...

Morning Everyone, I have pernicious anaemia (PA) diagnosed after I presented w...

StephhGray

•5 years ago

6 Replies

Haematologist - Neurologist??

Good morning all. Hope you're all keeping well. In my last post I mentioned the really good chat I had with my amazing nurse & how encouraging she was...

Good morning all. Hope you're all keeping well. In my last post I mentioned t...

Ritchie1268

•5 years ago

32 Replies

B12 side effects

Hi, Has anyone had any side effects from B12 injections. I have had burping and rib pain. This seems to have started about the time of my 6 loading doses. Last...

Hi, Has anyone had any side effects from B12 injections. I have had burping and ...

Itchyislander

•5 years ago

17 Replies

Thoughts on Intrinsic Factor supplements

I have seen labs like Metagenics sell a combo vitamin of B12 and intrinsic factor. I think the IF is derived from pigs. Any research if this is effective?

I have seen labs like Metagenics sell a combo vitamin of B12 and intrinsic fact...

kclusa

•5 years ago

3 Replies

Seeking recommendations for the form of B12 injections you think work best

Hello! Does anyone have thoughts on the best form of B12 injections - methylcobalamin, cyancobalamin, hydroxocobalamin or others?

Hello! Does anyone have thoughts on the best form of B12 injections - methylcob...

kclusa

•5 years ago

6 Replies

Recently diagnosed with b12 deficiency

Hi, I'm new here. I've had my 2 week loading doses of b12 after being tested for the first time ever my level was very low at 58, the last one was 6 days ago....

Hi, I'm new here. I've had my 2 week loading doses of b12 after being tested fo...

Showgem

•5 years ago

8 Replies

Bone pain and tight chest.

My main symptoms other than being super tired seem to be the having to take deep breaths a lot thing and my bones hurt literally ache all the time towards the...

My main symptoms other than being super tired seem to be the having to take deep...

Clhxx

•5 years ago

1 Reply

Hematologist in London, expert on b12?

Can anyone recommend a private hematologist In London, who’s expert in b-12 deficiency? Thanks very much. This is such a useful group. Admin Edit: Please...

Can anyone recommend a private hematologist In London, who’s expert in b-12 defi...

Ratherbewalking

•5 years ago

1 Reply

Diet related b12 deficiency

Hi All I have diet related b12 deficiency (I have a vegetarian/vegan diet and knew nothing about b12 until I became ill) and have had pretty serious problems...

Hi All I have diet related b12 deficiency (I have a vegetarian/vegan diet and kn...

Alfabeta

•5 years ago

24 Replies

Advise please on b12

Hi all. Can you advise.. the bloods results are my kast taken. Sinse then my levo has been up to 100mcg. Im also hashi . Low normal vit d aswell Ive been...

Hi all. Can you advise.. the bloods results are my kast taken. Sinse then my lev...

Spotydave

•5 years ago

11 Replies

Normal blood test?

Kind Folks Here are some blood tests that I have got back having been told they were normal, as I don't understand them well, comments please: Bob Follow-up...

Kind Folks Here are some blood tests that I have got back having been told they ...

No_fixed_abode

•5 years ago

2 Replies

No more B12 injections

Hi everyone, I went back to my GP loaded with all the information from BNF and NiCE guidelines to see what she would say face to face. This didn’t go so...

Hi everyone, I went back to my GP loaded with all the information from BNF and N...

Jessie8

•5 years ago

6 Replies

Ferinject - iron infusion

Hi folks. Fairly recently diagnosed as having PA and have just completed my first six loading doses of B12 (8 days ago). I also have Graves disease (which is...

Hi folks. Fairly recently diagnosed as having PA and have just completed my firs...

ickyrocket

•5 years ago

5 Replies

Is there any difference between Galactooligosaccharides and Fruchtooligosaccarides ? Calling fbirder !

Have started taking Bimuno prebiotic preparation to benefit my gut (it’s a Galacto-oligosaccharide). It’s quite expensive. £20.00 for 220grams , conveniently...

Have started taking Bimuno prebiotic preparation to benefit my gut (it’s a Galac...

wedgewood

•5 years ago

8 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for February 2019

Magnesium (L-Threonate)

Seen neurologist

High Serum B12 of 1552, does this test mean anything? I was supplementing b50 complex and b12. stopped 24hrs prior to test. do I repeat test

High b12 struggle goes on

B12 patches

Unclear diagnosis

Is B12 261 pmol/L while doing SI OK?

I had silver fillings

Too much iron?

Can you have PA if Haemoglobin is ok?

Not to give folate until B12d is cured - It makes neurological symptoms worse!

To GP today to ask for treatment as per guidelines, questions about a few results & symptoms...?

How long for MCH and size of blood cells to return to normal ?

Advice needed b12 injections

B12 deficiency and injection frequency.

Does the need for injection frequency increase?

Chronic Cough

Haematologist - Neurologist??

B12 side effects

Thoughts on Intrinsic Factor supplements

Seeking recommendations for the form of B12 injections you think work best

Recently diagnosed with b12 deficiency

Bone pain and tight chest.

Hematologist in London, expert on b12?

Diet related b12 deficiency

Advise please on b12

Normal blood test?

No more B12 injections

Ferinject - iron infusion

Is there any difference between Galactooligosaccharides and Fruchtooligosaccarides ? Calling fbirder !

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