Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for January 2017

Anything else.

Hello😊 im new to all this. Got diagonesd with pa last year. Allso aurtistic so all this very confuseing. Had blood tests again.gp isnt happy .thinks 3 months...

Hello😊 im new to all this. Got diagonesd with pa last year. Allso aurtistic so ...

Ghostshadow

•8 years ago

3 Replies

Buying Hydroxocobalimin whilst in The Cech Republic on Holiday

I am off to Cech republic this weekend. I will try buy Hydroxocobalamin for my mother. Does anyone know if there any restrictions flying and bringing...

I am off to Cech republic this weekend. I will try buy Hydroxocobalamin for ...

1776monkey

•8 years ago

3 Replies

Latest Active b12 Blood Results and increasing MCHC. Advice really appreciated.

https://drive.google.com/open?id=0B797W4qJ_AGXLTRrdlgzU0pjN3M Hi I'm posting the link above to my latest blood results along with the comments from the...

https://drive.google.com/open?id=0B797W4qJ_AGXLTRrdlgzU0pjN3M Hi I'm posting t...

Steap

•8 years ago

13 Replies

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Holo test at st Thomas

I am going to London next Friday and want to order active b12 and mma at st Thomas. I called viapath customer services and they were nigh on useless. I call...

I am going to London next Friday and want to order active b12 and mma at st Thom...

Binky68

•8 years ago

7 Replies

Anxiety - loading dose 4 of 6

Hello, I posted 4 days ago after experiencing breathing difficulties after my 3rd loading dose. Thanks to everyone's support I had the courage to have my 4th...

Hello, I posted 4 days ago after experiencing breathing difficulties after my 3r...

Colb53

•8 years ago

5 Replies

Help with B12 Injections

Hi Everyone I’m after some much needed help! I have very low B12 levels over the past 6 months - readings 151. My doctor gave me a course of 5 loading dose...

Hi Everyone I’m after some much needed help! I have very low B12 levels over th...

Daisy54

•8 years ago

10 Replies

Hi not been on here for ages. I tried injections but felt worse in my mood and dizzy and feeling sick

So im tryingvto follow mfthr protocol have done hair mineral test But i feel really ill i have ache in my calf mucle My feet ache my legs ache, j feel very...

So im tryingvto follow mfthr protocol have done hair mineral test But i feel r...

Mandlou

•8 years ago

3 Replies

iron levels

for a while my iron levels have been 8 but have now dropped to 5. i take 210mg ferrous fumarate 3 times a day and have a reasonably good diet. can anyone tell...

for a while my iron levels have been 8 but have now dropped to 5. i take 210mg f...

meddy

•8 years ago

4 Replies

Disabled

Hi I put on here a few weeks ago that I had an Occupational Heath Appointment last week. I received the report yesterday (and again today after some...

Hi I put on here a few weeks ago that I had an Occupational Heath Appointment la...

Moosey

•8 years ago

9 Replies

B12 and detached retina

Has anyone ever heard of B12 injections causing a detached retina?

ZennorB

•8 years ago

11 Replies

Injections v sublingual spray

I need some advice please. Just over a year ago I was feeling very unwell and had been for some time. I was very tired, emotional, pins and needles and...

I need some advice please. Just over a year ago I was feeling very unwell and ha...

Becs67

•8 years ago

13 Replies

Craving of Ice - ANAEMIA

Back in 2013, I 've the same problem of eating ice .I have been eating ice for past 4 years. For me ice gave me a euphoria but I don't know the ill effects of...

Back in 2013, I 've the same problem of eating ice .I have been eating ice for p...

Hidden

•8 years ago

2 Replies

Symptoms

Hi All I have just read the blog on pa symptoms. The Fog describes my symptoms to a T and I had been suffering them for several years before I was diagnosed. I...

Hi All I have just read the blog on pa symptoms. The Fog describes my symptoms t...

Alfabeta

•8 years ago

7 Replies

Doc appt with my daughter

Update What a most obnoxious doctor. had my daughters appt with gp today to discuss low b12 result. He wants her to try tablets then he test bloods in one...

Update What a most obnoxious doctor. had my daughters appt with gp today to dis...

catherinejordan

•8 years ago

5 Replies

My struggle continues - Low B12 and Hashimotos

Please can I have your advise on my first set of bloods to be taken since last January My B12 has dropped from 179 (130-1100) to 130 (130-1100) Still the...

Please can I have your advise on my first set of bloods to be taken since last ...

Sammys19

•8 years ago

5 Replies

Feeling So low

I am new here and was given the site name by a friend of a friend also a sufferer. I have had lots of different symptoms since I turned 50 (i'm 57 in...

I am new here and was given the site name by a friend of a friend also a suffere...

lotusblossom

•8 years ago

9 Replies

Normality

What is a normal reading for B12 etc.?.There seem to be so many alternatives quoted on site.I have injections 2 mthly so now am at a loss as to when to ask for...

What is a normal reading for B12 etc.?.There seem to be so many alternatives quo...

Mrsannabbott

•8 years ago

3 Replies

Bloated/feeling full symptom?

What does the symptom on the website "bloated and feeling full" mean. Like I know what it means obviously but anyone ever expirenced this symptom? Thanks

What does the symptom on the website "bloated and feeling full" mean. Like I kno...

Emmy1991

•8 years ago

4 Replies

Advice on injections

Have received hydroxy colabamin from Amazon de German am I ok to use it Wasdelivered very quickly ,site all in English, and already had an account with them...

Have received hydroxy colabamin from Amazon de German am I ok to use it Wasdeliv...

may61

•8 years ago

5 Replies

London doctor please

I have an NHS doctor who scowls at me if I suggest any more than my miserly once every three months b12 injection. I would self administer but I'm a tad iffy...

I have an NHS doctor who scowls at me if I suggest any more than my miserly once...

dandino100

•8 years ago

5 Replies

Newbie advice needed urgently

I am a 42 year old female and over the past 10 years I have had many health problems. Mainly balance/severe tinnitus/extreme fatigue/buzzing in legs/brain...

I am a 42 year old female and over the past 10 years I have had many health prob...

lorrilang

•8 years ago

12 Replies

Cobalamin News January 2017 - New Groups for Berkshire and Worcestershire

For members of the forum who are also members of the PAS - Just to highlight that the latest newsletter went out a few days ago. Check spam filters if you...

For members of the forum who are also members of the PAS - Just to highlight tha...

Gambit62

Administrator•8 years ago

Be the first to reply

Help with test results please

Hi, I'm new here, I was directed to this forum from the Thyroid UK one after posting my latest blood results which show low Vit B12. I had a total...

Hi, I'm new here, I was directed to this forum from the Thyroid UK one after pos...

pooky70

•8 years ago

3 Replies

Blood tests

Could a gone please advise me the best blood tests to have done. I am fighting my GP over the change to sublingual tablets for my PA ( the script for my...

Could a gone please advise me the best blood tests to have done. I am fighting m...

ellj

•8 years ago

3 Replies

Serum level lower after jags?

Hi guys I had my loading doses at start of dec...roughly 2-3wks after stopping sublinguals and a level of almost 1700. Almost 1 month after loading doses my...

Hi guys I had my loading doses at start of dec...roughly 2-3wks after stopping s...

kirsty1946

•8 years ago

11 Replies

Blood Test for B12

Hi, I recently had a blood test fir my B12 and folat which both came back as normal (419 and 5.2). However, I am still having symptoms, mainly bad pins and...

Hi, I recently had a blood test fir my B12 and folat which both came back as nor...

Serendipity_28

•8 years ago

12 Replies

Still on 2-a-week - how long does it takes to get brain back?

I know I'm getting better because: people keep saying I look better, my hair rarely falls out now, my mouth rarely splits at the corners or bleeds, and my...

I know I'm getting better because: people keep saying I look better, my hair ra...

Cherylclaire

Forum Support•8 years ago

12 Replies

Daily injections?

This might be a silly question but for those who self inject, why do you do it every other day and not on a daily basis for the loading dose? I've had...

This might be a silly question but for those who self inject, why do you do it e...

Vickylou79

•8 years ago

6 Replies

Just a quick question re how long benefit of inj B12 lasts please

Hi all, brilliant forum. I self injected B12 every other day for 10 doses. Completed Christmas Eve. Have felt core strength improve so mucn, could potter about...

Hi all, brilliant forum. I self injected B12 every other day for 10 doses. Compl...

Footygirl

•8 years ago

5 Replies

Need to convince doc to give every other day

I need a bit of advice from anyone who has managed to convince their doctor to give them every other day B12 injections or let them do it themselves at home,...

I need a bit of advice from anyone who has managed to convince their doctor to g...

JordanC

•8 years ago

18 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2017

Anything else.

Buying Hydroxocobalimin whilst in The Cech Republic on Holiday

Latest Active b12 Blood Results and increasing MCHC. Advice really appreciated.

Holo test at st Thomas

Anxiety - loading dose 4 of 6

Help with B12 Injections

Hi not been on here for ages. I tried injections but felt worse in my mood and dizzy and feeling sick

iron levels

Disabled

B12 and detached retina

Injections v sublingual spray

Craving of Ice - ANAEMIA

Symptoms

Doc appt with my daughter

My struggle continues - Low B12 and Hashimotos

Feeling So low

Normality

Bloated/feeling full symptom?

Advice on injections

London doctor please

Newbie advice needed urgently

Cobalamin News January 2017 - New Groups for Berkshire and Worcestershire

Help with test results please

Blood tests

Serum level lower after jags?

Blood Test for B12

Still on 2-a-week - how long does it takes to get brain back?

Daily injections?

Just a quick question re how long benefit of inj B12 lasts please

Need to convince doc to give every other day

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