Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,058 members • 23,206 posts

All posts for January 2017

Optovite B12

Just wondered if anybody has experience of Optovite B12 (Cianocobalamina). I am in Spain and my normal injection for B12 is well overdue and I am feeling the...

Just wondered if anybody has experience of Optovite B12 (Cianocobalamina). I am ...

SusanMargaret47

•7 years ago

Breathlessness

Hi everyone. I have an appointment tomorrow with General Medecine regarding my breathlessness. They seem to be ruiling out my B12 deficiency as the reason...

Hi everyone. I have an appointment tomorrow with General Medecine regarding my ...

•7 years ago

Bladder problem.

Hello All, My bladder has been overactive and easily irritated for 30 yrs, from July 16 to November 16 it returned to normal, getting to the loo on time , no...

Hello All, My bladder has been overactive and easily irritated for 30 yrs, from ...

•7 years ago

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Admitted My Sins to GP re SI

Yet another half hearted GP appointment at my practice though with a new GP. The idea being a joint decision with my old GP to have a new mind to look at me....

Yet another half hearted GP appointment at my practice though with a new GP. The...

•7 years ago

Advice before apt with doctor tomorrow please?!

I was 2 weeks overdue for my recent B12 injection and I saw a new nurse. She spoke to a doctor and advised me that they would not give me the injection without...

I was 2 weeks overdue for my recent B12 injection and I saw a new nurse. She spo...

•7 years ago

Advice about lack of B12 needed

I'd like to find out more about lack of B12. I've been unwell for about 7 years after surgery for thyroid hemithyroidectomy. I've seen lots of docs. I've...

I'd like to find out more about lack of B12. I've been unwell for about 7 years...

•7 years ago

High B12 levels in a blood test

Hi All I am new here, My son is 10 and he has been struggling for few years with odd, what I can only describe as system-shutdowns. He starts feeling...

Hi All I am new here, My son is 10 and he has been struggling for few years wit...

•7 years ago

Pernicious anemia

I've been told by my doctor that my iron is really low so have been on iron tablets, my mum then told me that her grandmother died from pernicious anemia aged...

I've been told by my doctor that my iron is really low so have been on iron tabl...

•7 years ago

Updated B12 and folate results

Hi all, I have posted a couple of times before but I have just got updated blood results- GP has given me B12 and folate results over the phone but will...

Hi all, I have posted a couple of times before but I have just got updated blood...

•7 years ago

Good news

I've had B12 deficiency caused by metformin taken for Type II diabetes. I saw the GP last Friday and I seem to be successfully reversing the diabetes so she...

I've had B12 deficiency caused by metformin taken for Type II diabetes. I saw t...

•7 years ago

New to the society. Undiagnosed AND desperate.

Hello guys! Hope everyone is making progress with their journey to health. I have had a hard few years since my last pregnancy and recently I decided to take...

Hello guys! Hope everyone is making progress with their journey to health. I ha...

•7 years ago

B12 ampules

Hi all, I am trying to buy b12 Methylcobalamen ampules from AMazon de. I need some advice before I buy. Please can anyone tell me if 500mcg ampule is...

Hi all, I am trying to buy b12 Methylcobalamen ampules from AMazon de. I need so...

•7 years ago

How much is too much?

In a recent discussion I mentioned that I'd previously been using 2500mcg of sublingual methylcobalamin garden of life spray per day albeit in divided doses....

In a recent discussion I mentioned that I'd previously been using 2500mcg of sub...

•7 years ago

Seeking advice for my mother. Is there any link among Hashimoto thyroid, B12 deficiency and mutation of the gene JAK2?

My mother has had Hashimoto for over 15 years now and she also takes pills for to control cholesterol and high blood sugar. In the last 2 years, the blood...

My mother has had Hashimoto for over 15 years now and she also takes pills for t...

•7 years ago

Last resort

Going to find out from my clinical commissioning group how my gp should be treating me Cos if he treating me as they recommend ?If he not then I want to know...

Going to find out from my clinical commissioning group how my gp should be treat...

•7 years ago

Experimenting with Supplements for Pins and Needles

For the past 18 months I have been trying out different supplements for peripheral neuropathy. Some of them provide temporary improvement but then it is back...

For the past 18 months I have been trying out different supplements for peripher...

•7 years ago

Another one bites the dust !

Hello all,after 36 years working as a Health Service Professional I was diagnosed with PA last October.The last year has been terrible -the fatigue and...

Hello all,after 36 years working as a Health Service Professional I was diagnose...

•7 years ago

B12 def Worse before period

One for the ladies does anyone else find symptoms worsen before their period? Im due my first 3 monthly jab next week had my loading doses 3 months ago and...

One for the ladies does anyone else find symptoms worsen before their period? Im...

•7 years ago

B12 lml ampules

Please can I get the address for Amazon de

Please can I get the address for Amazon de

•7 years ago

Thankful for this group

Hi Everyone, I've been diagnosed with PA since 2003, it's the hereditary type that my mother and grandmother had. I'm lucky to have a Nurse Practitioner that...

Hi Everyone, I've been diagnosed with PA since 2003, it's the hereditary type th...

•7 years ago

Happy heart rate

Before my P.A. diagnosis, even a very gentle walk would send my heart rate soaring up to 180 beats per minute, averaging about 130. Gradually over the months,...

Before my P.A. diagnosis, even a very gentle walk would send my heart rate soari...

•7 years ago

Clutching at straws with haptocorrin?

This is probably one for the scientists: haptocorrin seems to be 1st phase binder to B12 and comes from the salivary glands and then on to the stomach, where...

This is probably one for the scientists: haptocorrin seems to be 1st phase bind...

Forum Support•7 years ago

Eye probems

Hi dose anyone have problems with there eyes. Since haveing pa. My coulor vision is not right. Why my b12 is low. Colours look different.shade go lighter or...

Hi dose anyone have problems with there eyes. Since haveing pa. My coulor vision...

•7 years ago

B12 lozenges

Hi who takes these and is deficient and finds they help as well as injections, instead of or top up? Curious as they get really good reviews from people have a...

Hi who takes these and is deficient and finds they help as well as injections, i...

•7 years ago

B12 patches and mma test

Hi all, Symptoms seem to be returning, it has definitely hit me this week with the brain fog, sensitivity to light, no focus/concentration, and legarthy (just...

Hi all, Symptoms seem to be returning, it has definitely hit me this week with ...

•7 years ago

cramp in diaphragm

does anyone else experience cramp in the diaphragm muscles?

does anyone else experience cramp in the diaphragm muscles?

•7 years ago

How many people have never read the pinned posts? I can't believe I've just noticed them even though various people have mentioned them

https://healthunlocked.com/pasoc/posts/133983852/information-about-b12-deficiency-from-stichting-b12-tekort-and-the-b12-research-institute

https://healthunlocked.com/pasoc/posts/133983852/information-about-b12-deficienc...

•7 years ago

Jumpy diaphragm

Does anyone with b12 deficiency symptoms ever experience an involuntary spasm in their diaphragm? I'm getting it occasionally and it's annoying. It's not quite...

Does anyone with b12 deficiency symptoms ever experience an involuntary spasm in...

•7 years ago

Margggg

Hi help needed my doctor stated to that my B12 is off the scale ? Not sure what that means any answers please 😀

Hi help needed my doctor stated to that my B12 is off the scale ? Not sure what ...

•7 years ago

B12 and under active thyroid

Hi all Does anyone have an under active thyroid and is self injecting b12 or being treated by dr? I'm on 125 levo and have raised antibodies, I take selenium...

Hi all Does anyone have an under active thyroid and is self injecting b12 or be...

•7 years ago

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Pinned Posts

NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

Reminder - posts offering injectable B12

Providing advice on safe sources for self injection

COVID Vaccines and PA and forum guidelines

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How Often do you feel you actually need your B12 injection?

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All things Pernicious Anaemia Society(76)

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