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Pernicious Anaemia Society

31,966 members • 23,107 posts

All posts for January 2017

B12 and folate deficiency

I was told by GP that I had b12 deficiency and iron deficiency anemia. Given 6 loader jabs for b12 (last one today) and iron tablets. Now told by another GP...

I was told by GP that I had b12 deficiency and iron deficiency anemia. Given 6 l...

Poodoo

•7 years ago

9 Replies

New results advice please

Hi, I've been advised to post my results here from a post in the thyroid UK group. Should I be concerned? Any advice would be greatly appreciated. Thanks x...

Hi, I've been advised to post my results here from a post in the thyroid UK grou...

Salphy

•7 years ago

4 Replies

should monthly b12 injections be automatically reduced to every 4 months after 6 months?

so i have had my 6 monthly B12 injections and now the doctor wants to change to 1 injection every 4 months. i am doubtful this will be enough as when i missed...

so i have had my 6 monthly B12 injections and now the doctor wants to change to ...

Robson957

•7 years ago

5 Replies

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How long until symptoms resolve after loading dose?

Hi Everyone I'm newly diagnosed after many months/years of strange symptoms and feeling unwell My b12 level was 140 and I've just finished the loading doses...

Hi Everyone I'm newly diagnosed after many months/years of strange symptoms and ...

Aro1

•7 years ago

6 Replies

Backwards & forwards now stuck!

Hi I'm new here & have browsed through the old P A forum and thought it was well and truly worth me signing up to this forum. I've always been a skinny,...

Hi I'm new here & have browsed through the old P A forum and thought it was well...

Kateefc

•7 years ago

11 Replies

Blood test results help please! B12 Folate Ferritin

Hi all, I haven't been diagnosed with PA so I hope you don't mind me posting. I've just moved to a different GP practice after several years of struggling to...

Hi all, I haven't been diagnosed with PA so I hope you don't mind me posting. I'...

-___-

•7 years ago

12 Replies

Numbness and sharp pain after bedoyecta tri shot

Hello all, hoping to find some answers here as I'm not entirely sure where else to post. This was the main forum where I found people with adverse reactions to...

Hello all, hoping to find some answers here as I'm not entirely sure where else ...

Amtz420

•7 years ago

7 Replies

NM doctor recommendations?

Reading some old posts about folks finding the doctors who finally treated them, and thought I'd ask--anyone from the US have a good doctor in New Mexico, or...

Reading some old posts about folks finding the doctors who finally treated them,...

Jeast

•7 years ago

1 Reply

Educating doctors

Just read Martin Hoopers latest book and was struck by his emphasis on educating to change the medical community's reluctance to address b12 deficiency. Wish...

Just read Martin Hoopers latest book and was struck by his emphasis on educating...

Jeast

•7 years ago

16 Replies

My lovely GP - he's officially wonderful- has listened to advice I found through this site.

Thanks to the people and information here which helped me persuade him: a) to give me 2 injections this week even though they are not "due" til February. b)...

Thanks to the people and information here which helped me persuade him: a) to gi...

Mashie44

•7 years ago

11 Replies

U.S. MTHFR Genetic Test?

Hi all! Has anyone in the U.S. been tested for the MTHFR genetic mutation? Based on past posts, it looks like people have used 23andme.com, but that's pretty...

Hi all! Has anyone in the U.S. been tested for the MTHFR genetic mutation? Based...

srmika

•7 years ago

9 Replies

Inject daily? Feel down today

Hi guys Hope u all had a great xmas and new year. All is good but I'm feeling moody tired and just want to sleep. I'm interested to know is it actually ok to...

Hi guys Hope u all had a great xmas and new year. All is good but I'm feeling mo...

Ndobins

•7 years ago

23 Replies

Return of symptoms

Not diagnosed with PA hope you don't mind me adding my experience. I'm from thyroid forum Blue horizon test showed B12 411, anyway because of tingling in...

Not diagnosed with PA hope you don't mind me adding my experience. I'm from thy...

Gcart

•7 years ago

2 Replies

Are you legal?

I found something out yesterday on the Ataxia UK forum.. If you suffer from peripheral neuropathy (numbness and tingling in fingers and/or toes) and you are a...

I found something out yesterday on the Ataxia UK forum.. If you suffer from peri...

fbirder

•7 years ago

17 Replies

B12

Had my first b12 injection this morning got another 5 to go this week how long does it take to make a difference

Had my first b12 injection this morning got another 5 to go this week how long d...

Newberryk

•7 years ago

7 Replies

Scared

Happy new year to everyone Sorry for posting again, I've realised all I have done since being part of this forum is post and moan. I am posting again just to...

Happy new year to everyone Sorry for posting again, I've realised all I have don...

Moosey

•7 years ago

13 Replies

MCHC blood test

Hi all Quick question - just had my blood results back from a FBC/liver & kidney tests, everything seems ok except for my MCHC which is at 35.1 so its slightly...

Hi all Quick question - just had my blood results back from a FBC/liver & kidney...

Kayanne1980

•7 years ago

10 Replies

Extreme stress eating up B12 too fast?

Hi. I have been self injecting cyano B12 daily for about 3 months, and I was feeling great. I have just recently (29th December) had a very stressful break up...

Hi. I have been self injecting cyano B12 daily for about 3 months, and I was fee...

patez

•7 years ago

9 Replies

Just had the worst week of my life!

Hi all. I'm pretty new here, I joined a couple of months ago and I have posted once or twice but never actually introduced myself properly. I’m 60 and I have...

Hi all. I'm pretty new here, I joined a couple of months ago and I have posted ...

auntieb

•7 years ago

17 Replies

Low Blood Pressure and B12

Hello, I've not posted in a while. I wish it was because I had recovered but sadly I'm still battling various health issues! I was diagnosed with low B12 last...

Hello, I've not posted in a while. I wish it was because I had recovered but sad...

Booksellercate

•7 years ago

12 Replies

Joining pas

Hi all hope someone can say yes or no to this. I was thinking of joining pas for health help sheets info etc, ive just been turned down on my renewal for P.I.P...

Hi all hope someone can say yes or no to this. I was thinking of joining pas for...

shortytlc

•7 years ago

7 Replies

B12 problem with me from year ! after i left smoking and drinking !

guys its really horrible wen i feel scared in nights , terror attacks , pain in neck and body , cant run , cant breath much , pain in hands and legs all day ,...

guys its really horrible wen i feel scared in nights , terror attacks , pain in ...

kennypeter9

•7 years ago

1 Reply

B12 from france

Happy Christmas and new year to all. Can someone help? I self injected for the first time in December, it's definitely the way forward, don't know why I waited...

Happy Christmas and new year to all. Can someone help? I self injected for the f...

Mr_E

•7 years ago

8 Replies

Pernicious Anaemia sufferer for 11 years, now experiencing severe Iron deficiency anaemia. Type 1 insulin dependent diabetic for 50 years.

Hi, I have 3 monthly B12 injections. I eat red meat and green veg. I have had recent blood tests that indicate I am extremely low in iron stores in my body...

Hi, I have 3 monthly B12 injections. I eat red meat and green veg. I have had r...

Bali1962

•7 years ago

7 Replies

Vit B12 issue please respond

I have vit b 12 injections every 3 month the Dr wants me to take the same orally dose 1.000 up daily in between! I am stable at present having had non...

I have vit b 12 injections every 3 month the Dr wants me to take the same orally...

vlfreer

•7 years ago

4 Replies

desperate

Hello I have just found this site and don't know if it will help me but I am getting kinda desperate About 18 months ago I got some small itchy spots on my...

Hello I have just found this site and don't know if it will help me but I am get...

buggybootkins

•7 years ago

18 Replies

Dr wants me to return to 3 monthly injections 🙈

I have been on 6 weekly hydro injections for about 3 years from Dr. Just received a letter telling me dr wants me to go back to 3 monthly and to come in for...

I have been on 6 weekly hydro injections for about 3 years from Dr. Just receive...

littlecarol

•7 years ago

7 Replies

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

Various B12D/PA resources

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Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2017

B12 and folate deficiency

New results advice please

should monthly b12 injections be automatically reduced to every 4 months after 6 months?

How long until symptoms resolve after loading dose?

Backwards & forwards now stuck!

Blood test results help please! B12 Folate Ferritin

Numbness and sharp pain after bedoyecta tri shot

NM doctor recommendations?

Educating doctors

My lovely GP - he's officially wonderful- has listened to advice I found through this site.

U.S. MTHFR Genetic Test?

Inject daily? Feel down today

Return of symptoms

Are you legal?

B12

Scared

MCHC blood test

Extreme stress eating up B12 too fast?

Just had the worst week of my life!

Low Blood Pressure and B12

Joining pas

B12 problem with me from year ! after i left smoking and drinking !

B12 from france

Pernicious Anaemia sufferer for 11 years, now experiencing severe Iron deficiency anaemia. Type 1 insulin dependent diabetic for 50 years.

Vit B12 issue please respond

desperate

Dr wants me to return to 3 monthly injections 🙈

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

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