Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for January 2017

Does Intestine bacteria control the passage of vitamins.

End 1986 from Merchant Navy to shore based job; Shift work days and nights; Lack of Sun and sleep disruption. Feb 1993RTA to Ldn Col Hosp...Antibiotics but no...

End 1986 from Merchant Navy to shore based job; Shift work days and nights; Lack...

Hidden

•8 years ago

1 Reply

Injections

Had my last injection out of 6 what happens now will I have to have a blood test to check my levels

Had my last injection out of 6 what happens now will I have to have a blood tes...

Newberryk

•8 years ago

3 Replies

How long does it take to improve

Hi I'm new. Never had blood test but suffering from Underactive thyroid. Depression and extreme tiredness and feeling very cold after exercising and so out...

Hi I'm new. Never had blood test but suffering from Underactive thyroid. Depre...

Millerk

•8 years ago

8 Replies

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Breathing difficulties

Hi - I am new to this forum (female 45) but would value your advice. In summary, my B12 deficiency (152) has been identified following referral to a...

Hi - I am new to this forum (female 45) but would value your advice. In summary...

Colb53

•8 years ago

17 Replies

My latest blood test and thanks

Hi all Thanks for the below help trying to explain that I dont have to have a blood test saying Aneamia to have PA... I thought I would share my latest...

Hi all Thanks for the below help trying to explain that I dont have to have a b...

scorpiojo

•8 years ago

5 Replies

New here, but not new to PA. Back on loading doses after GP thought a break would be a good idea!

Hi, I'm recovering from 6 months of continuingly severe neuropathic issues from lower leg pain, burning feet, numb hands, to upset tummy, disturbed vision,...

Hi, I'm recovering from 6 months of continuingly severe neuropathic issues from ...

Hidden

•8 years ago

4 Replies

PA and the Anaemia bit...

Can someone please tell me how to explain to a US friend that I don't have to see Anaemia in the blood to have PA.... I know that it's down to the name of the...

Can someone please tell me how to explain to a US friend that I don't have to se...

scorpiojo

•8 years ago

14 Replies

IGNORE THIS POST: Admin Testing Hyperlink/Format Funtion Errors. Will Delete When Testing Completed

Test One: Copy paste hyperlink Word b12deficiency.info (try re-format with keep hyperlink)...

Test One: Copy paste hyperlink Word b12deficiency.info (try re-format with keep...

Foggyme

Administrator•8 years ago

6 Replies

update on gp

saw my gp today for another matter, but at the end of the consultation I mentioned the dreaded b12 - she cut me off at the pass by saying that she thought...

saw my gp today for another matter, but at the end of the consultation I mention...

jillc39

•8 years ago

9 Replies

Advice on b12 levels post loading doses

Hi i am after some advice please. I had 6 b12 loading doses in October 2016. I was deficient in b12 and folate after bloods tests. My GP requested PA serology...

Hi i am after some advice please. I had 6 b12 loading doses in October 2016. I w...

faras66

•8 years ago

2 Replies

Newish, Confused and struggling

Hello, thought it time to introduce myself as I have been lurking for a few months now. I'm 43 and have been increasingly ill over the last ten years 😕 It...

Hello, thought it time to introduce myself as I have been lurking for a few mont...

SuzanneM

•8 years ago

14 Replies

Methylcobalamin

As I only get 6 good wks after my 12 weekly B12 injection, I've just found in Holland and Barrett 1000 /ug Methylcobalamin which you dissolve in under your...

As I only get 6 good wks after my 12 weekly B12 injection, I've just found in Ho...

Smartpants

•8 years ago

23 Replies

Low Vitamin B12

Hi everyone, I'm new on here so just to give a bit of information about me. I have hypothyroidism and type 2 diabetes for approximately 20 years which are both...

Hi everyone, I'm new on here so just to give a bit of information about me. I ha...

Cali25

•8 years ago

8 Replies

"Time to abandon the serum cobalamin level for diagnosing vitamin B12 deficiency"

This is an article from the journal of the American Society Of Haematology. Hope the link works as I went to it from a facebook link from Sally Pacholek:...

This is an article from the journal of the American Society Of Haematology. Hope...

Frodo

•8 years ago

13 Replies

Return of symptoms

Hi All I was diagnosed with b12 deficiency last July. I had 6 injections and I am now on 10 weekly loading doses. Although I had a range of symptoms which...

Hi All I was diagnosed with b12 deficiency last July. I had 6 injections and I a...

Alfabeta

•8 years ago

1 Reply

So, I've only had it for 38 years and,,,,,,

it's really only in the last couple of months am I actually learning anything about it. all I could have told you was that when I first git it and it was...

it's really only in the last couple of months am I actually learning anything ab...

auntieb

•8 years ago

6 Replies

Has anyone used Hydroxo (as chloride)?

I have had an adverse reaction (felt nauseous and had to stay close to bed all day) after the B12 shot at the Dr surgery. I did not think any more of it until...

I have had an adverse reaction (felt nauseous and had to stay close to bed all d...

BethattheBeach

•8 years ago

24 Replies

Come from Thyroid UK forum

Hi I have come from the Thyroid UK forum to ask for advice about these results: SEP-16 Serum ferritin - 9 (15 - 150 ng/L) Serum vitamin B12 - 137 (180 - 900...

Hi I have come from the Thyroid UK forum to ask for advice about these results: ...

Blue33

•8 years ago

1 Reply

B12 -MCV - FOLATE

RESULTS B12 445 (200-900) SERUM FOLATE 7.8 (2.00 - 17.00) MCV 84 (75-105) FERRITIN 75 (15.00 - 250.00) HOW DO YOU GUYS INTERPRET THESE RESULTS PLEASE? MY MOST...

RESULTS B12 445 (200-900) SERUM FOLATE 7.8 (2.00 - 17.00) MCV 84 (75-105) FERRIT...

jefftall

•8 years ago

3 Replies

Haematomochrosis: 'Normal' or High Levels of Serum B12 but all the Symptoms of B12 Deficiency: This Might be Why.

Hi All. Just been thinking about another post which asked if having a gene variant for haematomochrosis could skew serum B12 results and 'mask' a potential...

Hi All. Just been thinking about another post which asked if having a gene varia...

Foggyme

Administrator•8 years ago

3 Replies

A little vent

My daughter 28y old has been diagnosed b12 deficiency today .... she went for a pill check ... The nurse casually said oh your last blood results say you are...

My daughter 28y old has been diagnosed b12 deficiency today .... she went for a ...

catherinejordan

•8 years ago

8 Replies

Full bloods - low B12, low neutrophils and other white cells, low vit D - please can anyone offer advice on next steps and supplements?

Hi all, I have been trying to make sense of the data I now have (ta-daa) from GP... but there is a lot of info and I see others have asked for help...

Hi all, I have been trying to make sense of the data I now have (ta-daa) from GP...

Mashie44

•8 years ago

4 Replies

U.S. doctors who specialize in b12 deficiency?

Are there any doctors in the U.S. who specialize in b12 deficiency? I'm a middle-aged woman who had previously been in excellent health, and have a rather...

Are there any doctors in the U.S. who specialize in b12 deficiency? I'm a middle...

jde2004ss

•8 years ago

4 Replies

hemochromatosis carrier, masks b12 test results?

Someone recently wrote in a post that your b12 test results could be inaccurate if you're a hemochromatosis carrier (as I am)...that somehow it masks the...

Someone recently wrote in a post that your b12 test results could be inaccurate ...

jde2004ss

•8 years ago

6 Replies

Co factors blood test

I'll be going for my annual thyroid blood test (I was over active a few years ago) and will ask my gp to also test folate, ferritin, potassium (which was...

I'll be going for my annual thyroid blood test (I was over active a few years ag...

JanD236

•8 years ago

5 Replies

Blood tests with PA

How many of you have regular blood tests- how many of you also take iron tablets?

How many of you have regular blood tests- how many of you also take iron tablets...

SarahFerguson

•8 years ago

17 Replies

Symptoms

Hi All I am having my booster injections every 10 weeks - I have b12 deficiency not PA. After my last injection I had one day of symptoms - my body began to...

Hi All I am having my booster injections every 10 weeks - I have b12 deficiency ...

Alfabeta

•8 years ago

6 Replies

American holiday worry

Hi all, I'm wondering if anyone can help me.... I'm fro the UK and have managed to get my doctor (after writing a letter with evidence to the practice manager,...

Hi all, I'm wondering if anyone can help me.... I'm fro the UK and have managed ...

JordanC

•8 years ago

5 Replies

Wish me luck!

Got my docs appt in the morning. Asking for B12 jab early (a whole 4 days - whoo) But I'm also asking if I can have it monthly and self inject. I've written my...

Got my docs appt in the morning. Asking for B12 jab early (a whole 4 days - whoo...

auntieb

•8 years ago

13 Replies

Symptom diary

Hello, I was just wondering if anyone has found a good template for a symptom diary that makes it easy to track symptoms over time? I'm imagining a...

Hello, I was just wondering if anyone has found a good template for a symptom d...

Holnee

•8 years ago

15 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for January 2017

Does Intestine bacteria control the passage of vitamins.

Injections

How long does it take to improve

Breathing difficulties

My latest blood test and thanks

New here, but not new to PA. Back on loading doses after GP thought a break would be a good idea!

PA and the Anaemia bit...

IGNORE THIS POST: Admin Testing Hyperlink/Format Funtion Errors. Will Delete When Testing Completed

update on gp

Advice on b12 levels post loading doses

Newish, Confused and struggling

Methylcobalamin

Low Vitamin B12

"Time to abandon the serum cobalamin level for diagnosing vitamin B12 deficiency"

Return of symptoms

So, I've only had it for 38 years and,,,,,,

Has anyone used Hydroxo (as chloride)?

Come from Thyroid UK forum

B12 -MCV - FOLATE

Haematomochrosis: 'Normal' or High Levels of Serum B12 but all the Symptoms of B12 Deficiency: This Might be Why.

A little vent

Full bloods - low B12, low neutrophils and other white cells, low vit D - please can anyone offer advice on next steps and supplements?

U.S. doctors who specialize in b12 deficiency?

hemochromatosis carrier, masks b12 test results?

Co factors blood test

Blood tests with PA

Symptoms

American holiday worry

Wish me luck!

Symptom diary

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