Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

32,319 members • 23,535 posts

All posts for December 2016

Conference

Phew! What a day. Just back to my hotel for a much-needed lie down. So much interesting stuff jammed into a single day. Lots of positive news of interesting...

Phew! What a day. Just back to my hotel for a much-needed lie down. So much inte...

fbirder

•8 years ago

26 Replies

PA and iron deficiency

Hi everyone Its been a while since I last wrote. So after long fight and many check ups as well as consult with haematologist I have been diagnosed with PA...

Hi everyone Its been a while since I last wrote. So after long fight and many c...

madness07

•8 years ago

6 Replies

B12 still over 2000 no supps

Hi there, another b12 test done and again over 2000, but whereas below previous tests it flagged it as discuss with doctor, this one says it's normal 'modified...

Hi there, another b12 test done and again over 2000, but whereas below previous ...

Binky68

•8 years ago

3 Replies

Want to take advantage of all our features? Just log in!

Where can I safely buy methylcobalamin injections

Where can I safely buy B12 methylcobalamin injections? Frightened to just go searching on the Internet.

Where can I safely buy B12 methylcobalamin injections? Frightened to just go se...

ZennorB

•8 years ago

12 Replies

B12 deficiency

Hi I wonder if I am on the correct site. I was diagnosed with b12 deficiency in June and I've looked up the symptoms including auditory hallucinations which...

Hi I wonder if I am on the correct site. I was diagnosed with b12 deficiency in ...

Alfabeta

•8 years ago

11 Replies

Trying to grasp (a) when further testing beyond B12 is needed, (b) when B12 sublinguals are called for, and (c) which sublinguals are best

My quick background: I was found to be B12 deficient in July 2016 with a level of 150 that had apparently been going on unnoticed for 2-3 years. (I take PPIs...

My quick background: I was found to be B12 deficient in July 2016 with a level o...

Dopey-Grumpy-Sleepy

•8 years ago

8 Replies

Normal b12 levels high folate

Hi guys, I had my b12 retested 2 days ago and my b12 level is 651 and folate is 19.3. I have been supplementing heavily with b12 for about a year now because...

Hi guys, I had my b12 retested 2 days ago and my b12 level is 651 and folate is ...

yogamom1

•8 years ago

3 Replies

Allergic reaction after taking B12!

I took a night flight from a holiday in the sun, and with the 4 hour time difference (from UAE), missed breakfast. On returning home, took my usual supplements...

I took a night flight from a holiday in the sun, and with the 4 hour time differ...

AiryFairie

•8 years ago

21 Replies

Went for appointment with nurse... she did a GPcog assessment!

Hi, again. This new surgery has a mandatory, welcome to the practice medical run by a nurse. It was 4.30, not the best time and I was exhausted anyway as per....

Hi, again. This new surgery has a mandatory, welcome to the practice medical run...

Footygirl

•8 years ago

2 Replies

Reluctance of GP's

As I haven't been confirmed to have PA but a lot of the symtoms point to it, palpitations, lethargic, anaemia, low vitamin B12, sore mouth and so on, I just...

As I haven't been confirmed to have PA but a lot of the symtoms point to it, pal...

greenbexy

•8 years ago

10 Replies

PA?

Hi everyone I'm new to this forum, I hope anyone could possibly shed some light on my confusion of PA. I have been anaemic on an off for about three years,...

Hi everyone I'm new to this forum, I hope anyone could possibly shed some light ...

greenbexy

•8 years ago

4 Replies

Low folate and B12

Hi I have come from the Thyroid UK Forum I have been told I need to speak to doctor about folate and B12 results what do I need to ask for re pernicious...

Hi I have come from the Thyroid UK Forum I have been told I need to speak to doc...

ElleK

•8 years ago

1 Reply

Do symptoms improve the longer you are treated?

Hi I have looked through quite a few posts about how quickly symptoms should improve and understand this varies drastically. What i am wondering is whether...

Hi I have looked through quite a few posts about how quickly symptoms should im...

Clare184

•8 years ago

7 Replies

Carpal Tunnel

Hi all, For a bit of background, I recently discovered I'm B12 deficient and started B12 injections 3 weeks ago (every 5 days). I self-injected yesterday...

Hi all, For a bit of background, I recently discovered I'm B12 deficient and sta...

etreas

•8 years ago

14 Replies

Could this be B12

I've been back and forward to the Gp for a good few years complaining of fatigue and brain fog. I occasionally got little electric tingles down my spine at...

I've been back and forward to the Gp for a good few years complaining of fatigue...

Steap

•8 years ago

37 Replies

Body Hair Changes & Some Progress Maybe?

Hi all haven't posted for a while but kept up others. This is a bit of a strange one but I haven't found any similar on this site about it so here goes. Since...

Hi all haven't posted for a while but kept up others. This is a bit of a strange...

Sallybones

•8 years ago

8 Replies

Anyone else having b12 injection every 6 weeks instead of 12 weeks??

I had my loading dose in September...and since then been having one every 6 weeks as a feel the Symtoms start returning 😕. My anxiety, numbness and fatigue....

I had my loading dose in September...and since then been having one every 6 week...

Tehmeena

•8 years ago

11 Replies

More Autoimmune Connections Emerging

Some psychosis cases an 'immune disorder' - BBC News http://www.bbc.co.uk/news/health-38220610 "Depression: A revolution in treatment "Sarah was rapidly...

Some psychosis cases an 'immune disorder' - BBC News http://www.bbc.co.uk/news/...

Polaris

•8 years ago

2 Replies

My first post

Hi, I had my last of 6 initial B12 injections last Saturday & although I feel much better I'm still getting tired easily and my concentration seems variable....

Hi, I had my last of 6 initial B12 injections last Saturday & although I feel mu...

HonorElizabeth

•8 years ago

3 Replies

Interesting post on Martyn Hooper's blog

http://www.martynhooper.com/2016/12/08/is-she-cured/ Martyn Hooper went to see someone with PA who hasn't had an injection for a long period and is using...

http://www.martynhooper.com/2016/12/08/is-she-cured/ Martyn Hooper went to see s...

Sleepybunny

•8 years ago

3 Replies

B12 injection expirences?

Just wondering what everyone's expirences are with the b12 injections?. I'm having my first next Tuesday. Eek! And what was everyone's side effects if any?

Just wondering what everyone's expirences are with the b12 injections?. I'm havi...

Emmy1991

•8 years ago

7 Replies

Goitre, bloods normal, Vitamin B low

Hi everyone, I'm really confused and I hope someone can help or offer advice. I have been suffering with symptoms of underactice thyroid for over 10 years....

Hi everyone, I'm really confused and I hope someone can help or offer advice. I...

Nattii

•8 years ago

11 Replies

Surgery

Hope ok to ask here usually on thyroid uk Had B12. 411 back in June I know that's not very low, but I had symptoms of pins and needles and numbness in feet...

Hope ok to ask here usually on thyroid uk Had B12. 411 back in June I know th...

Gcart

•8 years ago

4 Replies

last one! thank u for reading!

pg 4 of 4 hopefully i posted in order :/ any help or reassurance is appreciated. thanks!

pg 4 of 4 hopefully i posted in order :/ any help or reassurance is appreciated...

tjmom82

•8 years ago

4 Replies

next...

•8 years ago

•8 years ago

Need some help...

I'm so impatient! My 12 year old had labwork done after his well check up because he's not growing. We had been telling the dr something was wrong for the last...

I'm so impatient! My 12 year old had labwork done after his well check up becaus...

tjmom82

•8 years ago

4 Replies

Co factor

What s considered a low does iron tablet to take as a co factor

blondie2505

•8 years ago

5 Replies

Relationship with b12 and folate

I have been self injecting b12 for quite some time now from home (three years or so). I have stumbled on a few people who have mentioned that the proper...

I have been self injecting b12 for quite some time now from home (three years o...

Krealan

•8 years ago

8 Replies

12 year old pa?

Hi again everyone. It's been 5 months since blood tests showed my daughter was deficient in B12 & Vit D. We are British expats living in South India. She has...

Hi again everyone. It's been 5 months since blood tests showed my daughter was ...

Hidden

•8 years ago

10 Replies

Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

All posts for December 2016

Conference

PA and iron deficiency

B12 still over 2000 no supps

Where can I safely buy methylcobalamin injections

B12 deficiency

Trying to grasp (a) when further testing beyond B12 is needed, (b) when B12 sublinguals are called for, and (c) which sublinguals are best

Normal b12 levels high folate

Allergic reaction after taking B12!

Went for appointment with nurse... she did a GPcog assessment!

Reluctance of GP's

PA?

Low folate and B12

Do symptoms improve the longer you are treated?

Carpal Tunnel

Could this be B12

Body Hair Changes & Some Progress Maybe?

Anyone else having b12 injection every 6 weeks instead of 12 weeks??

More Autoimmune Connections Emerging

My first post

Interesting post on Martyn Hooper's blog

B12 injection expirences?

Goitre, bloods normal, Vitamin B low

Surgery

last one! thank u for reading!

next...

next page

Need some help...

Co factor

Relationship with b12 and folate

12 year old pa?

Search posts

Pinned Posts

Latest poll

How Often do you feel you actually need your B12 injection?

Topics

Archive