I wonder if I am on the correct site. I was diagnosed with b12 deficiency in June and I've looked up the symptoms including auditory hallucinations which occur with b12 deficiency and which I suffer from. I've posted several times on hear and no-one seems to recognise this symptom. I spoke to a Benenden doctor who did not recognise the symptom and suggested thyroid, stress or psychotic problems. One member who answered my post said that I should be very careful as his daughter had been sectioned because of her symptoms.
I had blurred vision lasting about 10 seconds; bouts of overwhelming fatigue; instability; aphasia and memory loss I was an English teacher yet became totally inarticulate because words would escape me mid sentence; I could watch an episode of a tv programme and, although I remembered watching, it could not remember what happened this preceded the former symptoms and I just put it down to getting old (I'm 66). But the worst symptom was auditory hallucinations. My body started to tingle, I began to lose a degree of consciousness yet knew where I was, then I would hear total static noise and heard gibberish being spoken. These bouts lasted for 10 seconds and ion the worst days I had repeats of up to four bouts.
I had six injections every three days and although the symptoms continued during the injection period all symptoms stopped for just over 8 weeks then the auditory hallucinations recurred again, usually in bouts of up to four times in a day. At worst I had 7 experiences over a fortnight.
My doctor sent me back for a retest and my b12 and folate levels were okay. However, I had taken a 1000ml b12 tablet some days before so my results were possible skewed.
I self medicated on boost 12 and b complex daily and several 1000ml tablets a week. I had no more symptoms.
I had my first booster injection in early November and was fine until Monday when the auditory hallucinations almost recurred four times. I say almost because the tingling sensation started and I began to lose partial consciousness but then it stopped before the hallucinations occurred.
This might be a sign that my body is healing or is this wishful thinking.
My gp nurses (who are fantastic) are going to let me have the injections every 10 weeks without the gps knowing but I had several semi hallucinations during sleep last night and one when I got up.
As I say, I am fairly sure I do not have pa (at least not yet) but I do have b12 deficiency.
1. What is wrong with gps that they reject this condition and, given it is so cheap to have the injections, why are they so obstinate - I got the impression that my doctor was really pissed about me requesting more investigation and a great big 'I told you so' when the results came back saying that I had enough b12.
2. I do not understand why my Benenden doctor and some respondents on this site do not recognise the auditory hallucinations - they are a symptom of b12 deficiency.
I was on omaprezole 10ml for over five years and I am a vegetarian but I get about 30% b12 from soya yoghurt and milk every breakfast and I have started putting cheese back into my diet. However, I do drink too much alcohol around two pints of string lager a day with several days drinking nothing.
Sorry for the length of this but I am just a bit distressed.