Anyone else having b12 injection ever... - Pernicious Anaemi...

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Anyone else having b12 injection every 6 weeks instead of 12 weeks??

Tehmeena profile image
Tehmeena
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I had my loading dose in September...and since then been having one every 6 weeks as a feel the Symtoms start returning πŸ˜•. My anxiety, numbness and fatigue. Has anyone else had this experience. My GP was quite hesitant to give me The injection every 6 weeks but I insisted. I'm also have a vitamin d deciency, could that be the reason I'm not recovering as fast?

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Tehmeena profile image
Tehmeena
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11 Replies
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fbirder profile image
fbirder

My GP has prescribed injections every 2 weeks, which isn't quite enough so I add my own injections to increase the frequency slightly. I think he decided that it would be better if I injected NHS stuff, rather than the B12 bought from Germany.

jillc39 profile image
jillc39

on my goodness how did you manage that? Every 6 weeks! saw my gp yesterday - on and on she went about protocol and how as a special special favour I could have one every 2 months. She says she had to get special permission from above (?) to move from every three months to two.

clivealive profile image
clivealiveForum Supportβ€’ in reply tojillc39

As I say jillc39 it took six years and a change of doctor.

If you have P.A. it should be every two months anyway per the BNF Guidelines

Tehmeena profile image
Tehmeenaβ€’ in reply tojillc39

My GP is fab..so understanding, she said she had a couple of other patiences who have them sooner too. 😊

clivealive profile image
clivealiveForum Support

You are certainly "not alone" Tehmeena as this was virtually my first question on this forum six years ago.

In my case, as I've been on cyanocobalamin 1000mcg B12 injections every four weeks since 1972 I was beginning to feel the need for more frequent injections after 3 weeks and despite having a "one size fits all" doctor, after a bit of a battle do now have the jabs every 3 weeks.

We are not "all the same" and our individual needs are different. Your doctor should treat your symptoms not just read the computer screen.

Do you know what your Folate level is? This gets used up processing the B12.

Your low Vit D will not help how you feel either.

I wish you well.

Tehmeena profile image
Tehmeenaβ€’ in reply toclivealive

My vit d level 12 and folate 4.2

clivealive profile image
clivealiveForum Support

Both far too low!!! :(

Tehmeena profile image
Tehmeenaβ€’ in reply toclivealive

I'm taking 5mg folic acid and 3,200 vit d. I hoping it will all start kicking in soon

blondie2505 profile image
blondie2505β€’ in reply toTehmeena

You need at least 10 000 vit d to raise levels go on to the facebook vitamin d def support group they have a protocol to follow if your def

blondie2505 profile image
blondie2505β€’ in reply toblondie2505

You also need to take k2 vitamin to get it into the bones

Sleepybunny profile image
Sleepybunny

Wow, hang on to that GP.

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