Posts - Pernicious Anaemia Society | HealthUnlocked

Pernicious Anaemia Society

31,973 members • 23,121 posts

All posts for December 2016

Too good to be true??? doc will contact the neurologist about B12 injections

After having had 18 x B12 injections and my neurological symptoms starting to get better, the doc has now said that he has to contact the neurologist to set a...

After having had 18 x B12 injections and my neurological symptoms starting to ge...

•7 years ago

Help

Serum free T4 14.8 Serum Tsh below range 0.02 I have other results but don't understand them, go keep dropping thyroid but has inrcased b12?

Serum free T4 14.8 Serum Tsh below range 0.02 I have other results but don't un...

•7 years ago

Bad B-12 Side Effects - Try Methylfolate?

Hi Everyone, I am newly diagnosed and put out a couple of recent posts - thanks to all for the feedback! Now I am stuck in a total rut because I have tried all...

Hi Everyone, I am newly diagnosed and put out a couple of recent posts - thanks ...

•7 years ago

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Tickets anyone?

Has anyone got any tickets for the conference on sat that they will not be using? Admin has said they will transfer to me :)

Has anyone got any tickets for the conference on sat that they will not be using...

•7 years ago

Do B12 injections deplete iron/folate &/or other B vitamins?

Hi all, my B12 was virtually non existent in July but since loading injections followed by monthly injections my brain fog, dizziness, memory & confusion have...

Hi all, my B12 was virtually non existent in July but since loading injections f...

•7 years ago

B12 symptoms returning when treatment going so well

My 20 year old daughter has been on alternate day B12 injections for past month. We had a battle with the GP to get this but armed with information from this...

My 20 year old daughter has been on alternate day B12 injections for past month....

•7 years ago

Martyn Hooper's blog nominated

Martyn Hooper's blog has been nominated for an award. Martyn is the chair of the PAS (Pernicious Anaemia Society)....

Martyn Hooper's blog has been nominated for an award. Martyn is the chair of the...

•7 years ago

I didn't have pernicious anemia I have cancer

This is just a heads up for anyone who has read some of my earlier posts. Several months ago I had been trying to find answers to my recently diagnosed...

This is just a heads up for anyone who has read some of my earlier posts. Sever...

oldtimeradioguy

•7 years ago

I`m new here, and confused

Hi All, I have been diagnosed as having P.A., ( Intrinsic factor antibodies - positive, and Parietal cell autoantibodies- positive ) which showed up on a...

Hi All, I have been diagnosed as having P.A., ( Intrinsic factor antibodies - po...

•7 years ago

Fullness?

So the past 2 months I feel full after everything I eat in the upper part of my stomach. A few bites and I am full. People just think I'm being awkward with...

So the past 2 months I feel full after everything I eat in the upper part of my ...

•7 years ago

Is my b12 low?

Hey I'm new to this site and hoping someone can shed some light My story began in 2014. When I started to get bruises on my legs and had a dramatic weight...

Hey I'm new to this site and hoping someone can shed some light My story began...

•7 years ago

Cigarettes and serum b12

I've read an interesting post about how smoking cigarettes can deplete serum b12 levels, as a smoker myself i am curious to know if anyone has heard this too?...

I've read an interesting post about how smoking cigarettes can deplete serum b12...

•7 years ago

diet

Does anyone have recommendations for what type of diet is good for PA? I am gluten free but still have bouts of digestive issues. Thanks

Does anyone have recommendations for what type of diet is good for PA? I am glut...

•7 years ago

Steroid treatment update

Just thought I'd let You all know what happened when I saw my gastro doctor. If You remember I was finally getting some relief from gastric symptoms after...

Just thought I'd let You all know what happened when I saw my gastro doctor. If ...

•7 years ago

Help with blood test results

Hi, I'm new to this site but hoping that you can all help with my recent blood results. I've been feeling unwell for a while now and was sent for a full blood...

Hi, I'm new to this site but hoping that you can all help with my recent blood r...

•7 years ago

Recent B12 diagnosis

Hi I'm new to the forum and was wondering if anyone had an views on my situation. I was diagnosed with under active thyroid in 2013 and have been on...

Hi I'm new to the forum and was wondering if anyone had an views on my situatio...

•7 years ago

Serum Ferritin and full blood count results

Hi, Here's a follow up from my last post, my full blood results. I wanted to make sure that I am taking the right type of iron which is ferrous sulphate 200 mg...

Hi, Here's a follow up from my last post, my full blood results. I wanted to mak...

•7 years ago

Meet my mate!

May all your wishes come true Love 🎅⚽️

May all your wishes come true Love 🎅⚽️

•7 years ago

B12 deficencey

Hi, ive just recently been diagnosed with B12 deficencey. I get really tired in the mornings, its a real struggle to get out of bed but then when it gets to...

Hi, ive just recently been diagnosed with B12 deficencey. I get really tired in ...

•7 years ago

Self supplementation although serum Ferritin 'in range' confused!:-(

Hi, would someone be able to help me with my recent blood results? I have had problems with my iron since I was 16 I am now 31. Its been on and off and I...

Hi, would someone be able to help me with my recent blood results? I have had ...

•7 years ago

Update: B12 Toxicity (Ha)...B12 Not Working...Diagnostic Busses Rolling In...Treatment Has Commenced...and a Big Thank You.

Hi All. A quick recap on where I was when I first joined...severely ill with gastric problems, 2 stone weight loss, unable to eat at all for 4 weeks, symptoms...

Hi All. A quick recap on where I was when I first joined...severely ill with gas...

Administrator•7 years ago

MRI + Lumbar Puncture

Two weeks ago I had an MRI on my head and one on my shoulder at the same appointment, today I got a letter from neurology with an appointment for a lumbar...

Two weeks ago I had an MRI on my head and one on my shoulder at the same appoint...

•7 years ago

False positive reading for pernicious anemia?

Hello again. Thanks for all the great advice on my first post a few weeks ago. I have a question I wonder if anyone can help me with. my gp told me I had...

Hello again. Thanks for all the great advice on my first post a few weeks ago. I...

•7 years ago

Upon reflection

The new GP said I cant have PA as red cells too small. My vit D is very low end again having had a months intensive supply a year ago followed by monthly top...

The new GP said I cant have PA as red cells too small. My vit D is very low end ...

•7 years ago

Gastro Issues, fatigue, Vitamins Low

At last I have found some people who are experiencing some similar symptoms as me. I have not been well for around 30 months with fatigue, more frequent bowel...

At last I have found some people who are experiencing some similar symptoms as m...

•7 years ago

Saga update: Brand new practice. New GP. I've only got ten minute

But, lasted 25. Very good first impression. Wont throw my knickers in the air just yet but very promising. I asked for, copy of lastest Hospital blood tests....

But, lasted 25. Very good first impression. Wont throw my knickers in the air j...

•7 years ago

Can I expect Anything Else !

Hi Guys and Girls, I have been diagnosed as having PA, and like everyone have a whole selection box of symptoms. My GP is useless, and I have told him so,...

Hi Guys and Girls, I have been diagnosed as having PA, and like everyone have a ...

•7 years ago

WBC AND B12?

Hi everyone! It's been a while since I posted. I had a question/concern. Usually my WBC is always in low range of 4.0 (has been this way for 5+ years when...

Hi everyone! It's been a while since I posted. I had a question/concern. Usually...

•7 years ago

Tickets anyone?

Does anyone have any tickets to the bham conference? Really want to go but seems they have sold out:(

Does anyone have any tickets to the bham conference? Really want to go but seems...

•7 years ago

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NICE guideline on B12 Deficiency diagnosis and monitoring in...

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