Normal b12 levels high folate - Pernicious Anaemi...

Pernicious Anaemia Society

31,973 members23,121 posts

Normal b12 levels high folate

yogamom1 profile image
3 Replies

Hi guys,

I had my b12 retested 2 days ago and my b12 level is 651 and folate is 19.3. I have been supplementing heavily with b12 for about a year now because if I don't my levels fall to 200s range. I have been unable to convince doctor to give injections. When you have normal b12 levels, what does high folate indicate? It seems to be a pattern in my blood work. Previously in July b12 was 603 and folate was 25.5. When my b12 level falls (300s range) my folate is in more normal range (17.5). I've had horrible GI and neurological symptoms for years and mentioned in previous posts that it's likely that I have Zollinger Ellison syndrome (extremely high gastrin over 5,000, high parietal cell over 120, high chromogranin A 65.5) maybe in addition to pernicious anemia but who knows? Still waiting for a complete diagnosis. I see GI doc tomorrow and hematologist next week and hoping for more answers. If anyone has any info on normal b12 levels with high folate id love to hear your thoughts. Thanks!

Written by
yogamom1 profile image
yogamom1
To view profiles and participate in discussions please or .
Read more about...
3 Replies
vezily profile image
vezily

I have just had my blood test results and my b12 is normal but I have high serum folate. I need to see my doctor about this - currently researching what the reasons could be, if I find out I will let you know. Did you work it out, as your post was 8 months ago? thanks

hamestate profile image
hamestate

Hi yoga mom. I have Just got my folate and B 12 levels checked. My folate is high and b12 is “normal”. I have numbness and tingling in both feet. As well as my left arm but mostly the ring and pinky finger. My feet get very cold which was never a problem before the surgery

All this started after I had a complete hysterectomy. My thyroid tanked at that time too. I take nature throid Rx. I have 2 MTHFR defects.

Seen numerous dr’s. Endocrinologist, naturopath. Neurologist

I have started taking b12 supplements. Hoping it might help with tingling and numbness

I would love any input none has!!!

Thanks so much!

DevH profile image
DevH in reply to hamestate

My numbness and tingling resolved post injections - seems you are B12 deficient. My b12 was in the 200ng/l and folate 7. your symptoms indicate severe B12 deficiencies, I have alot of other symptoms too link sore tongue, ringing in ear, sciatica, migraines.

See websites below for info.

Tracey Witty

b12deficiency.info/about-me/

Dr Chandy

b12d.org/overview/symptoms

You may also like...

Low 'normal' B12 and high folate - B12 deficient?

which shows a B12 serum level of 228.0 ng/L (i.e. normal range), a serum folate level of 8.40 ug/L...

B12 normal but folate low normal

show low but in range folate. He has previously been vit D deficient and his folate has dropped...

Re: high Folate levels & diminished returns from b12

Rising post. 4)any comments/insights on the high Folate levels also welcome? anyhow, i'd be most...

Folate and B12 levels

B12 is 827 [ 197-866 ] folate is 19 [ 4.6 - 18.7 ] These results are within range,...

Folate & B12 levels

comment on my filsteblevel compared to b12. Folate is 6ug.. b12 is 428. Ive had an ongoing problem...