Help develop a testing tool

[Suzym2u]

EULAR and ARC are conducting research to develop a tool for determining the efficiency of treatments for patients with Vasculitis.

They are looking for people who have AAV Vasculitis Granulomatosis with Polyangiitis and Microscopic Polyangiitis.

vasculitis.org.uk/news/help...

[Nadine99]

I showed this to my husband and he registered but we had trouble understanding what was being asked of him, so we just came out of it. For example, the second question was just 'Death', well how can that be anything but Critical? and couldn't explain the positive & negative questions of 1, so we just gave up. Sorry.

[Suzym2u Moderator Vasculitis UK in reply to Nadine99]

No problem ... it’s not an easy survey to complete I appreciate that , but we did not create it....

.Apparently over 100 patients have completed it in the USA....