Post coronavirus symptoms: Is it possible that... - Vasculitis UK

Vasculitis UK

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Post coronavirus symptoms

amms43 profile image
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Is it possible that Covid-19 is in some cases triggering vasculitis? It seems as though many people are for months suffering symptoms so similar to certain forms of vasculitis. It seems that "ground glass" lung damage, fatigue, muscle weakness, breathlessness, musculoskeletal pain, leg rashes, exercise making patients worse rather than better, etc., etc. are not uncommon and that this is attributed by certain doctors to systemic inflammation of the blood vessels. Sound familiar?

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amms43
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Investigator1 profile image
Investigator1

Hi amms43, it’s an interesting theory. It’s inconclusive but the medical profession are convinced the start of vasculitis May be caused by some sort of trauma / inflammation in the body. The other issue for me is that I have GPA and although regarded as “highly vulnerable” my specialist has told me that the Jury is still out regarding the effects on some Vasculitis Patients that Covid will have. The reason for this is that certain types of vasculitis are where the white cells are attacked and turn against the body but if the white cells are not there because of Immune system is low because of treatment ????????? I don’t know, but it’s a theory that far more intelligent people than me will answer. Stay safe.

paullevans profile image
paullevans in reply toInvestigator1

Thank you for your positive comments

I was a bit worried re ams43 until I read yours:)

amms43 profile image
amms43 in reply toInvestigator1

I did not mean my post to be alarming, I understand that although it is not certain, it is believed that vasculitis is often triggered by an infection or by certain drugs. In my case I picked up a lung infection on a transatlantic flight, became ill, developed a purpuric rash on my legs and an 'idiopathic' pneumonia. I was in a high dependency unit on i.v. antibiotics for 8 days but was not diagnosed with vasculitis for several years despite several flares.

I just wondered if the covid-19 infection was triggering vasculitis in some patients after seeing four patients still with symptoms similar to my own up to 100 days post covid infection, and two specialist doctors on tv explaining that they had inflammation of the blood vessels leading to lung, kidney, cardiac, fatigue and musculoskeletal problems. Dexamethasone is a corticosteroid and is proving useful in patients on ventilators who suffer from inflammation in their lungs. I have MPA and my specialist has also told me that the jury is out. It was just an idea but as Investigator1 suggests, those who know will undoubtedly find out if it is a possibility.

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